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Posted 9/2/2008 6:16 PM (GMT 0)
Okay, what is the deal with this pain?  I am new to this whole thing and thought the pain was just coming from a back injury. Didn't really know if it was fibro. Yesterday was the first day I've felt almost normal in 4 months. I felt happy and so relieved.  I thought hurray this is getting better.  Then today I wake up with alot of pain again.  And the pain moves around alot.  I feel like my family thinks I'm crazy.  One day the left side of my neck hurts, the next day the right side, then my shoulder or between my shoulder blades, low back hurts.  I've never dealt with pain that does not get gradually get better and then subside.  I have had chronic low back pain for 14 years, but that was due to an injury.  It was really bad inititally and then gradually got better, but just became a low grade pain.  This pain is all over the place, sometimes moving around to different spots within minutes.  It is so depressing.  mad
Posted 9/2/2008 6:55 PM (GMT 0)
Sounds like a good description of fibro.  I've had fibro for 21 years and it hasn't gone away yet.  We will have good days and bad days, and then the flares...OUCH!  Because you had a good day you probably overdid and are paying for it today.  Sometimes the pain comes because of weather.  This is my worst time of year for pain.  I live in Florida and all the storms and rain, and humidity do it to me, without my lifting a finger!  It seems when the barometric pressure changes for the storms, the pain kicks in worse.

 

You may have pain, but you can still have a full and enjoyable life with fibromyalgia.  You just have to keep moving and keep a positive attitude.  That works wonders.

 

Sherrine

Posted 9/2/2008 7:05 PM (GMT 0)
Welcome to the world of fibromyalgia Waterbaby. We have good times, bad times and horrible times but we have pain everyday somewhere on our bodies. Fibro seems to love weak places and old injuries on my body but it also likes places I've never had a pain before in my life.

 

It takes time to get use to all this but like Sherrine said we can live full lives with fibro just not the way we use to.

 

luv and hugs

Marlee

Posted 9/2/2008 7:10 PM (GMT 0)
It can be depressing, but the most important factor in dealing with FMS is not to give in to it. You've got to keep living your life. Yes, there are times when you must stop and rest, but don't just give up! Roaming pain is part and parcel of FMS. That's one of the distinguishing factors. Arthritis stays in one place, as does back damage. You never know from minute to minute where FMS will hit. You'll have good days and bad. Enjoy the good all that much more!

I live a normal life. I work as I can. I clean as I can. SOmetimes it will be a month before I can vacuum, but that has now become okay. I fought it for years, but only hurt myself. Don't fight it. Roll with it.
Posted 9/2/2008 8:27 PM (GMT 0)
Hi Waterbaby,

 

It sure sounds like you have gotten some very good advice here.  I think it all sums it up when said, "just roll with it".

 

That is about all that you can do, take it one day at a time and roll with it.  It becomes hard to make plans and stuff but if you don't over do it and go into a flare, you can have a somewhat predictable time.  Eventually you get use to it. 

 

You will find a lot of us use distraction to eleviate the pain.  It can work.  Try to keep your mind busy and the pain will eventually fade into the background.  In most cases that is.  There are times when it gets worse, but then you hope for the times when it becomes easier to tolerate.  And eventually those days come.

 

Stay with us too, we are good at distracting.  We get some pretty fun threads going and try to get a laugh every now and then.

 

Hugs, Karen

Posted 9/3/2008 2:17 PM (GMT 0)
Hi Waterbaby-
This is a whole new ballgame for me also. Yes, the pain does travel and each day is different and no you are not crazy! I'm learning it's normal for fibro to do that.
Having a support group, doing the best you can do for that day, distractions, distractions, distractions, and a good sense of humor has helped me alot.
The group here has helped me to adapt and I know they will help you too. :) GamJill
Posted 9/3/2008 3:37 PM (GMT 0)
I was told I had fibro from a rheum about 4 yrs ago, and really didnt understand it either. i know my knees and lower back are severe arthritis and DDD.  But lately now when i wake up it hurts my FEET to walk to the kitchen to turn the coffee on or go to the restroom, that is new for me. I never really had foot pain, havent been told I have arthritus in my feet, so I guess i will blame the fibro, some days are worse than others, somedays its only in the morning with this new foot pain, and sometimes all day, been trying to practice flexability exercises with my feet to help.

ANd also i think the fibro is casuing pain in my shoulder every night, it acutallly wakes me up and i have to readjust shoulder to hopefully releive some pain. I guess its the fibro, its been about a month now, i just came out of nowhere, and from what i have experienced and been told, fibro can do that, cause pain to come out of nowhere mad .

But we got to deal with it the best we can.  I have two kids they helps distract me from pain. Friends to visit and places to go help, even if i hurt, it gets me out of house doing something eventful, rather than, staying alone and hurting, Id rather be with somebody and in pain, then alone.  And coming here is a great distraction, but also offers a good source of advice and information and insight.  I feel like I can just be myself here. turn

Anyway keep on posting smilewinkgrin

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