HealingWell
Search Close Search
☰

Ok is this common help

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/6/2009 2:47 AM (GMT 0)
I have been suffering from Fibromyalgia for all of my adult life but has gotten a lot more servre over the last few years. I commonly get Ovarian Cysts that are larger than what would be considered normal. When they rupture it can take me out for several days at a time and always sends me into a full on flare. Does anyone else experience this? Is this connected to the fibro? I currently have one forming when at last x ray was 4 1/2cm and I am dreading when it ruptures as I have been warned by the ER docs I could pass out from the pain. Does anyone know what I can do to make this stop?
Posted 2/6/2009 3:07 AM (GMT 0)
i just had one rupture last week. i think i've had at least one other rupture before. i had to go the the er both times because the doctors thought that i had appendicitis. im not sure how common they are. im 18, and i don't think that it's common for someone my age to have them, but maybe it's relate to the fibro. i was just wondering if maybe ive had them before and they just went away on their own and didn't rupture, or if i thought that the pain was just from the fibro, which i thought for a while this time.
-my doctor said that birth control should help stop them from forming, but im already on it (for my painful periods).
-Aliza
Posted 2/6/2009 3:43 AM (GMT 0)
First of all, talk to your OB/GYN. See what they say. Then look into PolyCystic Ovarian Syndrome aka PCOS. There may be things used for PCOS that could help you.

I am sorry you have this going on. It sounds like absolute agony. Take safety measures like having someone drive you and ALWAYS having a phone or cell phone in your pocket. If you don't have a cell phone contract, ANY cell phone with a charge can call 911 - federal law. So if it holds a charge, any phone can get help for you. If you are at home, having the land line in your pocket might be a good idea as the 911 operator can get your address from the number in most areas. And if you don't have a friend with an old cell you can have to use for 911, there are pay as you go phones for $20 or under at some stores.

Gentle Hugs.
Posted 2/6/2009 5:55 AM (GMT 0)
I've had cysts rupture since I was about 17. I've fallen to my knees in the mall, I've collapsed on my kitchen floor, I've doubled over in my classroom. I never passed out but if it ever happens when I am driving, I would be in trouble.

In my case, I can feel the pain building so I usually get about a one minute warning. This gives me enough time to pull over when driving or sit or lie down so I don't fall.

I ended up having surgery to remove a large cyst and was diagnosed with endometriosis. I only have cysts explode about twice a year now but it never gets easier.

Research PCOS and endometriosis and see if you think you may have either one. Then talk to your gyn about treatments. Birth control pills help a lot but you may have to try a few before you find out what one is best for you.
Posted 2/6/2009 3:32 PM (GMT 0)

Hi stillkickin-

I'm 52 and do not have anymore problems with ovarian cysts, but when I was your age I had many. One was the size of a golf ball. And talk about painful- I would be doubled over. My Gyn. would tell me that they would take care of themselves, and yes they did but it would take me out for a few days too. And that was before I got fibro. UG! That was years ago and you would think they would have more they could do to help with this now. Hopefully someone here can offer some advice on what they have done. It can be so miserable-

GamJill 

Posted 2/6/2009 3:46 PM (GMT 0)

It seems like many of us have suffered from ovarian cysts.  I'm and old broad now, but when I was in my 20's I had them non stop...the problem was they would never 'break' and two of them got to be the size of grapefruits, wrapped around my intestines and cut off the blood supply.  Mine were called 'bleeding cysts with torsion'.  So I was bleeding all the time, suffered from severe anemia and finally after four surgeries to remove them, they took out my ovaries and the rest of my 'parts' while they were at it.  I have a book that discusses fibro in grueling detail and it seems many woman with fibro have this awful condition..along with other 'female' problems including long, painful, heavy periods, endometriosis, severe PMS...you name it.

I guess it's just one more condition that can go along with this disease!

feel better

Huggies

donna

Posted 2/6/2009 6:24 PM (GMT 0)
I too have suffered the pain......It has taken a few gynos to request an ultrasound to find the source of my pain. Most times I just figured it was normal for a woman in the betweens of perimenopause and menopause. Heh, I didn't have anyone to bounce these things off of a few yrs ago but know I have a good gyno, actually was referred to her by my rhuemy, go figure. Anyways she has been good to me thus far, only been a few months with her so will see.

I kinda feel this is part of FM as well, cause these cysts only started appearing about the last few yrs and my doc thinks I have been suffering from FM for the last 11 yrs.

Take it easy dear, hope your gyno can give you the specific care that you need.

((((Hugs))))
Lori
Posted 2/6/2009 6:43 PM (GMT 0)
Rebecca, I had an ovarian cyst, too.  I'm surprised that so many members have them!  I was pregnant when the cyst started bothering me.  Since it was my first child, I thought that was what being pregnant felt like!  LOL  But it continued to get worse and I was doubled over in pain.  When I was five months pregnant they did exploratory surgery to see what was wrong and discovered the cyst.  It was 10 inches in diameter and weighed 4 pounds!  They took the cyst and my ovary and fallopian tube out because it was all intertwined.  I, thankfully, never had another one.  They really are soooo painful.  I hope you get the help you need.

 

Sherrine

Posted 2/6/2009 7:09 PM (GMT 0)
My dr. put me on seasonale You only get your cycle 1 every 3 months.. It has helped alot My duaghter is 13 almost 14 and she has had
cyst since she was 12 the dr put her on birth control as well. It is very painful. I would talk to your Dr about the seasonale .
✚ New Topic ✚ Reply