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Posted 6/19/2009 7:46 PM (GMT 0)
At least know I know why I'm feeling double icky, I have lymes in addition to fibro. Let the good times begin, I'm happy that I finnaly know what the heck is wrong with me
Posted 6/19/2009 7:59 PM (GMT 0)
Grats and condolences. 

It is a relief to understand an underlying condition.  Lyme is a tough disease to treat if you've had it a long time.  Any idea how long you've had the Lyme?

All's I know is I'm glad I don't have Fibro.  Mine is the fatigue and cognitive stuff.  I don't want to over-information you all at once on Lyme.  You should see some improvement with treatment - tho it'll probably be slow if you have late stage disease.  You can also expect of have periodic worsening of symptoms during treatment.  These are Herxheimer reatcions (Herxes).  Killing the bugs releases toxins and that's where the Herxes come from.

Be sure and post when you're ready for more info.  There is also a pretty good Lyme forum.  I don't have Fibro but the good folks on this forum let me hang out with them  :-)    There are many similarities between Lyme and Fibro and really, all people with a chronic illness have much in common.

Posted 6/19/2009 8:32 PM (GMT 0)
So there is a chance I don't have fibro, that I have Lymes only? Interesting

Posted 6/19/2009 8:34 PM (GMT 0)
I'm sorry Monica but glad you found out and will get treatment now.

 

luv and hugs

Marlee

Posted 6/20/2009 6:44 AM (GMT 0)
Monica,
You may have Lyme (not Lymes) and not fibro. You won't really know until you've been treated for a while. If the fibro improves or goes away, then it was Lyme. I had a lot more pain before I was diagnosed and treated for Lyme Disease. After about 4 years of treatment I improved a lot. Unfortunately, I never got back to the way I was before.

I usually call what I have now - fibro. Some people would call it "Post-Lyme Syndrome" and others would say I am still infected. I've slowly improved over the last 15 years without any further Lyme treatment.
Posted 6/21/2009 6:36 PM (GMT 0)
And, to complicate matters Lyme can lead to fibro and you can have one or both at the same time.... (sigh!) Hang in there, girlfriend.
Posted 6/21/2009 9:50 PM (GMT 0)
Sorry to hear about your diagnosis, Monica. I have a good friend who also has both chronic lyme and fibro. The symptoms are quite similar. Like others have said, there's a good chance that you might just have Lyme and not fibro. Either way, what's important is that now you know what is wrong and you can get treatment-- especially for the Lyme-- and start feeling better. My friend's Lyme did get better with treatment, but she still has trouble sometimes. Of course, she contracted Lyme at age three and wasn't diagnosed until she was seventeen, so the bacteria was in her body for a long time. But, if you haven't had Lyme for that long, your chances of feeling much better soon are much greater. It's a tough diagnosis, but hang in there. You'll get through it. I wish you all the best. Let us know how you are doing!

Take care!

SaraBeth
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