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Posted 7/29/2009 4:08 PM (GMT 0)
Well, I found a new doctor and I am SOOOO happy! Went to see him yesterday. He is an internist/rheumatologist...board certified in both and practicing both. He also told me he can manage my hypothyroidism, so I can get rid of my endocrinologist. Three docs in one! I sure hope I'm not kidding myself about this guy. He seems like the real deal. He's in practice by himself. I am coming from a HUGE practice of rheumys and orthpedic surgeons. I was really unhappy with the last guy I was going to, after my rheumy retired from the same practice. I really felt he didn't believe in FM; I had to walk away from him.

In any case, this guy wants to change meds around and I'm wondering if anyone can give me their personal experience with anti inflammatories? He wants to put me on Relafen. I am currently taking Vicoprofen. He claims it doesn't have enough NSAID. So, he wants me to switch to Vicodin ES, and then add Relafen 750, twice a day. I read side effects on the drug and it scared me. Anyone using it?

He is also talking about weaning me off of Prozac and going on Celexa. We also discussed Savella and Lyrica.

In addition, he sent me for an xray of my lower back, because of significant changes seen on an MRI from last year. This is something my previous rheumy didn't even discuss with me.

Ok, now i'm off the subject...just wondering if anyone can give me any input...

thanks so much'

Miriam  tongue tongue tongue

Posted 7/29/2009 5:15 PM (GMT 0)
My doctor originally had me on Celexa...then put me on Savella. I found Savella made me irritable and I couldnt sleep at night. He put me back on Celexa a couple of days ago and I'm doing much better now.
Posted 7/29/2009 5:19 PM (GMT 0)
I've been taking the NSAID Etodolac (Lodine) for several months now for sacroiliitis (inflammation of the sacroiliac joint).  I was in excruciating pain before I started taking it, and now the pain is manageable.

 

My doc told me that mine was going to be a chronic condition (I have scoliosis and have had 2 back surgeries), so I would probably have to stay on it long term to manage the inflammation and pain.

 

I was concerned about the cardiac side effects that you hear about on tv, but my doctor said that he thinks that long term useage is safe for people without serious cardiac or gastrointestinal issues.  For me, the pain was so bad that the benefits outweigh the risks. 

 

The only side effects I notice is a sporadic increase in heartburn (I already have GERD) if I don't eat enough or drink enough water when I take it.  You are supposed to drink a full glass of water to dilute it so it won't upset your stomach.  Other than that, I don't notice any other problems.   It has been MUCH easier for me to tolerate than any of the medications I was prescribed for fibro.

 

Hope it works out well for you.  :-)

 

Hugs - Austen

 

Posted 7/29/2009 5:27 PM (GMT 0)
I take Relafen (generic Nabumatone). I don't think I'd be able to get out of bed without it. It really helps me for stiffness and inflammation. The only problem I have with it is that I need prilosec for my stomach. But I don't even take that every day. I would say it's been a good drug for me.
Posted 7/29/2009 6:14 PM (GMT 0)
 

 

   Dear Miriam,

 

     Good afternoon. My name is Dani. It is a pleasure to meet you. I do hope I am not intruding in your forum. If I am though, let me know. :-)   The subject line of your thread caught my eye.

 

     I have been taking Nabumetone (relofen) for over a year now. I have progressive spinal problems, and many arthritic areas in various other areas IE Hips . I love my nabumetone. You will notice a big differance in just a few days time.  I highly recommend it for anyone who is able to take NSAIDS.

     

     Okay, Ill stop trolling your forum. Have a great day :-)   It was very nice to meet you.

 

   *huggs*

      dani

Posted 7/29/2009 9:29 PM (GMT 0)
Thank you all!
I am also seeing a cardiologist. I had a stent placed two years ago; I have coronary artery disease (CAD), so I wonder if I need be concerned with NSAIDs? I did let the new doctor know this. Maybe I should call my cardiologist and ask him?
Posted 7/29/2009 11:08 PM (GMT 0)
Miriam,

 

I'm certainly no doctor, but I would probably call my cardiologist and just get his opinion (and some peace of mind :-) ).  I don't know how it works with NSAIDs, but I know some sub-groups of medications are better for certain conditions than others.  For instance I take a Beta Blocker for a heart arrhythmia, but because I have asthma, I have to take a certain type that is more "cardio-selective" (my doc's words) and doesn't affect my whole body as much, including my lungs.

 

I hope you find what works best for you.

 

Hugs - Austen

Posted 7/29/2009 11:50 PM (GMT 0)
I know that anyone with Crohns can't take them with their regular drugs unless they talk to their GI first. Something to do with blood thinners and what some of the Crohns meds can cause bleeding. Thought I'd just put that out there since after my last surgery...when they said I had Crohns and put me on certain meds definitely...I'd call the surgeon 'cause of pain and they told me to take all sorts of NSAIDs. Aleve, Advil, etc. I finally told the nurse that I'd read that I'm not supposed to (especially with the cocktail of meds I WAS on). She humphed and told me to take Tylenol (which I'd been told to avoid 'cause of a very young suicide attempt...and some liver damage). I took them and ended up with bile-D. Seriously...some people are great with all these OTC meds...and some people can get sicker on them. So keep an eye on how you feel after taking them.
Posted 7/30/2009 5:09 PM (GMT 0)
Just got off the phone with the cardiologist and he said Relafen is okay, just have to watch out for fluid retention. I'm looking forward to trying it out and seeing if it helps. Like most of you, I am so tired of this constant pain. I haven't exercised since early last week, which I know only makes the fibro symptoms worse, but you can only do what you can do...fingers crossed,
Miriam
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