HealingWell
Search Close Search
☰

New member

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/5/2009 9:22 PM (GMT 0)
Hi, I am a new member who has been somewhat diagnosed with Fibromyalgia and/or CFS. I basically have chronic joint pain as well as the whole TMJ ordeal. I have been on anti-depressants for awhle now, which does help to a certain degree. However, I have difficulty in motivation and focus, so I was thinking about asking my General doctor for an ADD med prescription. I have read great things about Adderall for "Fibro Fog" and was wondering if I could get some input. I also went to a Fibromyalgia Center a few days ago. They were nice, but basically wanted alot of money before giving advice and/or treatments, and as a college kid I do not have that type of money. Anyways, they explained that they believe the entire problem arises from the mitochondria and ATP production. What are some supplements that I can take for better ATP production and for Fibromyalgia in general? Thanks
Posted 12/6/2009 3:38 PM (GMT 0)
Hi Jrda and welcome to the family. Sorry, I missed your post yesterday, normally you get a response much quicker on here. I tried adderal and it seemed to make me more anxious so didn't take much of it. My ins. wouldn't pay for it til my doc wrote them a letter telling them why I needed it so you may have some problems getting it if you want to try it.

 

From what I have heard that's about all the fibro centers do for you is take your money.

 

Make sure you read the fibro 101 thread, second one, it contains lots of great info about many different things.

 

Many with fibro are low in vit D so you might want to get that checked if you haven't already. Treating fibro is trial and error cause we are all different and what works for one may not be what works for someone else.

 

I'm glad you found us cause you will get a lot of input on here about what works for fibro.

 

luv and hugs

Marlee

Posted 12/6/2009 5:42 PM (GMT 0)
Hi there,

And welcome!!!

Marlee has given you some great advice, do check out the fibro101 thread.

I take adderall and it does really help. Some of us can't tolerate it though. But I can and it gives me a lot of energy. I am now working part time, as I hadn't worked in seven years.

I hope that you find what works for you.

Hugs, Karen
Posted 12/6/2009 5:51 PM (GMT 0)
Hi everyone, Ive been off line for a while and just wanted the new male members to know they can email me anytime my email address is in my profile please make sure you put fibro or healingwell in the subject area or I wont open it. Im Ed and Im 60 years old with fibro and chronic insomnea , osteoarthritis, and allot of pain I take allot of meds, please feel free to email me, Have a great week and be good to you

God Bless.

Edsmilewinkgrin

Posted 12/6/2009 6:10 PM (GMT 0)
Hi jrda
I'm interested in the Adderal. I didn't have a problem until I had surgery 6 weeks ago. No I have a real problem with short term memory - go to the kitchen to get something and forget why I went there. I was never like this before.

Ed -
I'm not a male but over 60. I take Neurontin 100 mg 3 hours before bedtime, get some help from this. Once getting on a schedule I get better sleep. I take a second one at breakfast and get a little pain relief. I still need a couple of tramadol to get through the day and sometimes if I wake up at night for my arthritis and sciatica. With the Neurontin, I am able to get back to sleep quickly. It lasts about 12 hours, no effect on thinking, doesn't make me sleepy during the day. I started with just the evening dose. I'm planning on an afternoon capsule because I do get some pain relief. At least it's generic and cheap to try. I didn't tolerate Lyrica - 1/2 lb a day weight gain and expensive!
Posted 12/6/2009 6:14 PM (GMT 0)
Hi, and welcome!  I'm sorry you are going through this at such a young age but we probably can help you.  I've never gone to those fibro centers because the top specialists haven't discovered what causes fibromyalgia yet.  Make me wonder how certain places "know" what causes it and how to treat it.  I don't think we'd need this forum if they were accurate.  So, I'm waiting to hear from the doctors that have been studying it for years.  I'm hoping they will come up with the cause soon and then we really can get some help.

 

I use ibuprofen with food and extra strength Tylenol.  I also use malic acid/magnesium supplemets and vitamin D3 supplements.  Many with fibro are deficient in these vitamins and nutrients and that can cause pain and fatigue.  There are links in the Fibro 101 thread...the second thread on the forum.  You will learn a lot about fibro there.

 

The joint pain may actually be fibro, too.  Many of us have that.  Fibro affects the muscles, tendons, and ligaments and we have those around our joints to make the fingers, etc., move.  It feels like arthritis but it's actually fibro.  A rheumatologist would be able to distinguish that through blood work.

 

Do keep a positive outlook and look forward to each new day.  You will be surprised what you can do with this illness.  Earlier this week I walked through the entire Magic Kingdom at DisneyWorld and that surprised the daylights out of me!  Not only have I had fibro for years but I'm also 62 years old.  So, try not to limit yourself.

 

I'm so glad you found us and joined in.  Don't hesitate to ask more questions because we are here to help you.  I'm looking forward to getting to know you better and I hope to hear more from you soon.

 

Sherrine   

Posted 12/6/2009 6:43 PM (GMT 0)
Hi Alcie, Fibro can cause short term memory loss I have that too and I take 7 differant drugs now, as far as the Neurontin I take 300mg 3 times a day and 30mg of morphine 3 times a day and 20 mg of Baclofen at beed time and a few others. The Baclofen has realy helped with pain. well I got stuff to do so please feel free to email me the address in in my profile I can tell you of a hobby that realy helps with everything as far as going to Fibro centers there is one 50 miles from me and they too ask for to much money in fact its a rip off for what you get for the money
Have a great day and I hope and pray everyone has good dreams.
Ed
Posted 12/7/2009 1:53 PM (GMT 0)

Ed, I deleted your new question in this thread and started a new thread about the question of motor control that you asked. 

Sherrine

Posted 12/7/2009 4:01 PM (GMT 0)
I will try it this way,, I have Fibro real bad and Ostioarthritis and the osti. in my neck with the Fibro ( is or may be ) as the doctor put it, having an affect on the nerves in my neck and causing motor control to my arms and hands, he wants me to where a neck brase that puts my neck in traction to see if that will help, he thinks the nervs are being pinched. Has anyone had this or hered of this. Please bear with me Im not very good at writing or spelling either. Thanks for the help and have a great day, and God Bless.

Edconfused

  Fibromyalgia, ostoarthritis, chronic pain, chronic insomnia,

  Lots of meds.

Posted 12/7/2009 4:05 PM (GMT 0)
Getting by,,,,, may I ask about the Adderall you take what is it, you said it gives you energy Please explain
Ed
Posted 12/7/2009 10:02 PM (GMT 0)
Hi,
I am a new member and I have had Fibro for a year. When I started getting the Fibro fog, I used FocusSmart, a supplement sold at Costco and it has helped with it alot. I wish I knew what to do about the increased pain during drops in Barometric pressure! Any suggestions?
Posted 12/8/2009 12:33 PM (GMT 0)
Ive never heard of Barometric pressure and pain, but I started taking a new drug called Bacofen I take 20 mg at bed time and it helps allot but when you start taking it you have to be weined off because you can get hooked on it, you should only take it at bed time and do not drive a car on it, but it realy helped with the pain at night and it helped me sleep an hour or tow do to Chronic Insomnia Talk to your doctor and see what he sayes.
Have a great day and God Bless.
Ed
✚ New Topic ✚ Reply