STUPID, NO GOOD, ROTTEN, STINKIN' PAIN and FIBRO and I'm taking numbers and kickin' BUTT!

I HATE fibro and I HATE pain! I HATE being tired and I HATE having no energy. STUPID fibro stops me from doing just normal things like working on a sewing project for an hour. No matter if I stand or sit I hurt like crazy. My ribs, back, neck..OK, my entire body including my toenails and the hair on the inside of my nose!!! I'm just trying to prepare for Christmas and making gifts for the grandkids and what I used to do in an afternoon I literally take 3-4 days to do and then I'm exhausted and in horrid pain. Is it too much to ask to just keep the house a bit tidy without sitting in a puddle of tears??? Can't I have a life where I can plan more than 10 minutes ahead???

I can't remember what I came into this room for only 12 seconds ago; don't know what I had for breakfast and there is no way I can fill out disability forms since I have NO idea what year or what doctors I have been too in the past 10 years. Not even the YEAR!!! YES, I'm screaming!! This way it only hurts my fingers and the arthritis has set up camp there and taken over on days when fibro isn't stabbing every muscles in my hand. Then there's the costs! DON'T even get met started. I can't work so it really makes sense to up my doc visit copays 250%. I have to go once a month so that's more money I love to toss down a rat hole.

Anyone who comes over has to find the path from the door to wherever they want to go. They can find us by voice most days and by GPS on others. Have you seen my windows??? No wonder because they look like brown painted walls since I can't remember which year I washed them either! I'm not sure which walls have them and which don't.

Whoever came up with this freakin' disorder should sell it to the military. If they flung it on the enemy we would win every time. And YES, I DO wish it on my worst enemy...my EX! At least he has cluster headaches!! They combine nicely with pathological lying...lol

OK, so I maybe exaggerated a bit...maybe on the window deal..but I needed a place to yell and scream and I never learned how to yell out loud...really! So I came here cause you guys are at a far enough distance to be safe. It may or may not do any good but at least I had my say.

Does anyone want to join me??? Maybe we can yell this Dang Disease to death!!! Just keep in clean, OK???

Chutzie

OKAY CHUTZIE, take some deep breaths, breathe in deeply and let it out slowly and repeat several times. Fix a hot cup of tea, coffee or hot chocolate and sit back and enjoy it, you deserve to take a little break. Make a list of priorities that have to be done before Christmas, mine was shopping for grandkids so Santa would at least have gifts for the little ones in his bag. Second was putting up the tree, can't have Christmas without a tree. Actually, it took me about 4 days to do a little decorating but I quit this afternoon. Next will be making some homemade treats and then I will worry about cleaning. Our Christmas starts on the 18th. At least I hope so, I am so afraid someone will get sick or the weather will get bad and we have to postpone it til the 2nd of Jan. and then it will be me screaming my head off on here.

 

I will have 4 boys between the ages of 6 and 13 running through my house plus the 12 and 8 yr old girls. Oh yeah, can't forget the three dogs, one son and DIL bring their dog and my girls are not use to him, this could get interesting. Shayne will be the only one that stays put this year. His mother will drive us all crazy cause this is a baby that is not allowed to be anywhere near the nasty dogs or any kind of germs. I'm sure your house is going to be just as crazy and no one is going to be able to see what the house looked like five minutes after they arrive.

 

If this perfectionist can relax this time of year anyone can. Okay, I lied, I'm not the least bit relaxed but I'm trying very hard to.

 

No, this isn't fair and then you through in  the arthritis we both have and it sucks but the odds of us both being here for Christmas is greater than for many, many mothers and grandmothers.

 

luv and hugs

Marlee

I want to scream too!!!I go shopping and only get in one store and i'm done. Then I go out and walk to the car (parked in the same row also) and barely remember the drive home. 2 days on the tree and all I can say is its in the corner and upright. Maybe lights tomorrow....should be ready by christmas eve...I hope. My ribs hurt and everything else and I don't want to do anything. The laundry is piled, toys all over th eliving room and I don't care. Yes i do, just trying to convince myself I don't. I wouldn't let anyone in here to help me. Maybe I can just move.....no that won't work, I lost my job. I can remember loving the holidays, now I just dread them and despise winter. How many days left????

Ok, Mom. I am going to tell you what I tell my grandma. You need to pay attention to your limits. You are doing too much. You need to take time to rest. I know that this season is a busy one, but you won't even be able to enjoy it if you are so worn down and in so much agony because you didn't take the time you needed to to rest. So, take some deep breaths and relax. Take a day or two off. If you must do something, then do something light. Take it easy on yourself. Your family knows you have this condition. They know you have limitations yourself a break. You're not superwoman. You can't take it all on at once. So just listen to your daughter on this one. Take it easy for a day or two, then start by doing something light. And DON'T beat yourself up about it. Ok? If you need someone to vent to, you can always e-mail me. If I lived near you, then I would come over and give you a hand. As hubby to help with something. There has got to be a few things that he can do to help you. That is what he is there for. I expect to hear that you are taking it easy, or I will find a way to fly or drive there and tie you to the bed or a comfy chair so you can rest.

I'm feeling the Christmas fibro big time, too.  I have done ffaaarrrr to much this past month.  Everythiing hurts but my ear lobes.  I usually start in January getting things for the following Christmas and I usually have everything bought, wrapped and my Christmas cards waiting to be mailed by Thanksgiving but I didn't do that this year.  I was really "down" because of the economy and didn't have the motivation.  I finally snapped out of it but it was too late.  Now I'm trying to get things done.  And, as Chutz said, it takes us ten times longer.  That's why I always paced myself throughout the year.  I could always sit back and enjoy Christmas and remember WHY we are celebrating in the first place, but not this year.  I hate this and I won't do this again.

 

But, fellow fibromites, we will get through this and can sit back and heal shortly.  The rush is in the backstretch now.  Your perseverence will pay off big time for the smiles you will receive from  your loved ones.

 

Sherrine   

Ditto, ditto, ditto, ditto. I haven't been around much lately because I've been feeling so bad, but I just wanted to pop in and commiserate with the miserable.

I'm sorry you are feeling so bad Chutz (and everyone else who responded). I definitely understand.....

Soft, warm, gentle hugs - Austen

Lately, I have been having a lot of problems with my knees and back. I suppose the weather could be part of the problem. I HATE having fibro. I wish I could have a normal life. It hurts me to get down and scrub the bathroom and kitchen floors. It hurts me to stand and do dishes for too long. It hurts me to get down on my knees on the floor to change my son's diaper or to play with him. It hurts me to get off the couch. I HATE HATE HATE it! I just wish that pain would go away so I can play with my son and do the cleaning and take care of all the things I need to take care of. I used to be able to do all of that, but now I can't. It is soooo frustrating.

I agree with Chutzie, this sucks.

I have felt so miserable this month. Of course, I was trying to clean my home.
The other day I went into a store to holiday shop. I felt so miserable I could not bear to do it and left quickly to go home. The only thing I purchased wasa pair of fleece gloves to wear immeadiately (30 degrees ourtside).

I do not have grandchildren yet, only 3 young adult ones. so, I am buying most of the gifts online. However, even that is exhausting.

donnaeil