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Posted 3/3/2010 12:28 AM (GMT 0)
Hello  I am new to this forum.  I have been diginosed with fibro for a couple years.  I have gone through 2 deployments with this disease already but my pain has not ever been as bad as it is now.  My husband is getting ready for another deployment and I have days where I can barely move.  I have talk to my doctors about this and all they say is Im just going to have to deal with it.  i need some advice because I can't just slow down I have three small kids and no family any where close.  We just bought a house so moving is not an option.

Please help!!!! Im really afraid that I will not make it through this next deployment and will push myself so hard to where I can't walk.

Thanks

 

Posted 3/3/2010 12:52 AM (GMT 0)
Hi Armywife and welcome to the family. I'm a retired army wife. Might I suggest you get a civilian doctor if at all possible, just my opinion and experience. It doesn't matter what kind of doctor, some use internist, rheumatologist or prime care. My GP dxd me.

 

I'm sorry your DH is being deployed. Stress is our enemy and can make us hurt like crazy and your going through a lot of it.

 

Read the fibro 101 thread, second on first page, it contains all kinds of helpful info.

 

This is a great group of people you have found and we truly care about each other and do what we can to help each other through the bad times, share info that we have found works to make life better for us and a virtual shoulder to cry on.

 

luv and hugs

Marlee

Posted 3/3/2010 1:19 AM (GMT 0)
Hi, Armywife, and welcome!  I'm so glad you found us and joined in.  We do have a wonderful group of members that love to help one another and we really do care about each other, too.  I think you will like it here.

 

It is important to keep moving and stretching or you will be stiff as a board and have more pain.  Gentle exercises like walking and swimming are very good for fibro.  There are some gentle stretching exercises in Fibro 101 that really do work, too.

 

Hot showers and baths feel wonderful.  Many use a Bed Buddy.  You can find these at Walgreen's and other places or you can make your own by taking a tube sock, filling it 2/3's full of raw long grain rice, and tying a knot at the end.  Pop it in the microwave and it will give off moist heat due to the moisture in the rice.

 

I take malic acid/magnesium supplements and vitamin D3 supplements and they do help with my pain and fatigue.  Many with fibro seem to be deficient in these vitamins and nutrients.  The supplements don't work for everyone but they might work for you.  Pass this by  your doctor.  There are links in Fibro 101 about the malic acid and vitamin D3 and how they work in the body.

 

As Marlee said, stress is our enemy.  Try not to stress over your husband's deployment.  You can't do anything about it so worrying will only make your pain worse.  You will be amazed what you CAN do.  Look at all the positive things in your life, starting with a loving husband and three beautiful children!  Look at all you can do, not what you have problems doing.  Believe it or not, a positive attitude is a huge help with this illness...that and a good sense of humor.  

 

Just take one day at a time.  We all can handle that.  Don't project yourself in the future.  One day is enough.  Plus, we sure don't know what the future holds for us, either, so why worry about something that hasn't happened!  Look forward to each new day with anticipation.  With fibro, we have our good days and our bad days.  Every day I look forward to a good day and this way, my bad days aren't nearly as bad!

 

Don't hesitate to ask questions.  We are here to help you.  I hope to hear more from you soon.

 

Sherrine 

Posted 3/3/2010 1:44 AM (GMT 0)
Hi Armywife,

Another welcome for you. I am so glad that you have joined us. You have already gotten some wonderful advice so I basically wanted to welcome you to the forum.

We can keep you company while your husband is gone. There is a wonderful source of support here and we look forward to hearing from you daily.

Wishing you a wonderful pain free evening. Try to relax. Taht is the best thing you could do for yourself.

Hugs, Karen
Posted 3/3/2010 4:03 AM (GMT 0)
Hi Armywife, welcome to our fibro family. Sending you gentle hugs! Hoping you will
feel better soon. I'm glad you have joined our family. We really do care!

Hugs, Robin
Posted 3/4/2010 12:09 PM (GMT 0)
thank you all for your thoughtfullness. I found a place that specializes in Fibro massages so im going to try that. Does anyone have any other things that help them with the stress I can't exercise I've tryed that and it just makes it worse. Also I wanted to ask is Fibro genetic? My sister was in a bad car accident when she was 15 and now she is having alot of my same symtoms.

Thanks
Seanna
Posted 3/5/2010 2:37 AM (GMT 0)
Hello armywife, Welcome to the group, you are not alone any more. We are here if you need to cry, vent, have a question and we can help you through it.
I know where you are comming from, my husband is in the air force and has been deployed also. That is how i found this group, i needed someone to help me get through it and this group has been wonderful. Another thing that helped me was being able to talk to my husband over the internet through what is called yahoo messenger (the new one) it has vidio calls and is free. I take one day at a time and this sight can be very additive which also helps. Pace yourself and don't stress if everything doesnt get done.
So sorry that you have to go through this, but you can do it. Remember you are not alone, we are here when you need us.

Tressia
Posted 3/5/2010 12:23 PM (GMT 0)
Seanna, I hope the massages help you as much as they help me!  Make sure they are gentle massages.  If, for some reason, you don't care for your massage therapist, here is a site that lists excellent massage therapists in what ever region you live in the US.  My massage therapist is on this site.  These people have to take courses regularly to be in the American Massage Therapy Association.

 

http://www.amtamassage.org/findamassage/locator.aspx

 

I'm not sure if genetics are involved but I do have a first cousin with fibro too.  I guess only time will tell.  But, many on here have developed fibro after accidents.

 

Sherrine

Posted 3/6/2010 3:24 PM (GMT 0)
Welcome! I hope you find some comfort while hubby is away. Those massages sound like a nice place to start! I know exercise is not a great option for everyone, but have you tried just slow stretches? I am thinking of giving some absic yoga a try to see if it helps with my stiffnes. Tried exercising the other day but my hips hurt too much afterward. As for the hereditary, everything I have read says no. But both my sisters have fibro too. The funny thing is, I was adopted, so it is obviously not genetics in our case. I am wondering if it not environmental. One doctor said he believes it is caused by a retrovirus that hides insode many people and picks its own time to pop out. I do know me and my two sisters shared the chicken pox together, along with every childhood flu that went around. Maybe it is something like that.
Posted 3/7/2010 8:49 AM (GMT 0)
Hi Armywife!

Welcome to the forum. You will find lots of support here. How old are your children? If they are small, then just slow things down and do not worry about the house so much. If they are in school, then you will have to keep to the schedule, but you will have some downtime.

I am versed in those long deployments. They are the pits for sure. My husband is retired navy. We had 3 children that were close together in age, so it can be very stressful and very tiring!

I hope the massages help. I am going to see if my dr. can get a referral through tricare for some of those! That would be great if he could get approval for it.

The dr. gave me Pristiq to help deal with the overused nerve pain. It helps. On the days that are really bad, I have Darvon to deal with the pain. I hate taking those, so I try to deal with the pain until it just becomes unbearable. One thing that we are trying is adding an additional thyroid med to see if it helps to get the pain levels down. I am into my 2nd week of trying those and so far so good.

I hope you feel better and that possibly your squadron support leader can be there to help lookout for you.
Posted 3/8/2010 8:31 AM (GMT 0)
Hi there! What helps me with stress relieve is a hobby (crafts, drawing, scrapbooking). I love taking warm baths with sports salts or stress relieving oils. My mama also sent me sports cream called Thermo Derm pain relieving warming lotion, its awesome to use it before you go to bed just put some on your back and shoulders , or at wutever hurts. I also use icy hot pain relieving liquid with rolling applicator it is max strength and i use it during the day at work. Thermo Derm is more gentle and feels nice, helps me sleep better. I cannot exercise as well because i have rediculous flare ups the next day but i try to walk daily, short distances on bad days and little longer on better days. I also use cane due to random aches and balance issues. But just try nice warm baths, heat packs, and creams. Make you bathroom a gateaway spa looking :) It works for me
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