Minnie, I'm sorry you're having so many problems. I wish I could give you some advice but all I can say is I care. I noticed on another thread that you've read that book by Devin Starlanyl - me, too. I thought it was really good....it's been several years and I don't remember (of course!) most of it.
In your signature, you said you have issues caused by being severely double jointed...my daughter seems to have the same problem, but no doctor has really taken an interest. One time, skiing, she fell and her leg turned all the way around 
, and she felt fine. And recently, she pulled a ligament next to her knee, bad enough to keep her out of work for a week, just by regular dancing. (This isn't a girl to try crazy moves or anything.) She has rolled her ankle SO many times. Her dad accidentally sat on her hand one time when she was little and her fingers bent backwards to her arm. Again, no pain. Does this sound like what you have?