Fibro????

    Hi Everyone

  I'm new to this forum, I've been on the ms forum since november trying to find out info about my symptoms. I've been sick since Sept of 2009. Didn't really consider Fibro because I'm not experiencing joint pain or the pain when someone touches you. I've had MRI'S, CT scans and a spinal tap that they say have come back normal and ms has been ruled out.. and they are saying most likely I have Fibro. I've been trying to research this but am not really finding alot of info on it so I thought this would be a good place..

  I've been having alot of muscle pain.. everywhere.. numbness, tingling, electrical pain... everywhere, tremors in my hands and muscle spasms.. I guess.. in my back that make my upper body jerk about.. especially my arms and neck. I've been using a cane to walk since the end of March because my legs feel weak and wobbly. I get tired very easily now too and whenever I try to do anything the jerking gets really bad and I have to stop.

  They put me on Vitamin D and citalopram just recently and was told it would take a month to kick in, and they told me to see a rhuematologist. I've heard that Fibro symptoms can be different for every person, but I'm not sure if this is what I have. I don't feel stiff and sore when I wake up, and I don't have the soreness when touched, although I do have arthritis in my spine and other parts of my body. I used to get stabbing pains everywhere but now it's been burning pain.

  Hope someone here can give me some info and incite into Fibro !!

I gave you a subject line! 

Post Edited By Moderator (Sherrine) : 8/3/2010 9:27:11 AM (GMT-6)

Most of us wake up very sore and stiff.  If you sit or lay too long with fibro, you will be stiff as a board and have more pain.  We can have pain most anyplace on our bodies but most have upper back, shoulder, and neck pain...along with more stuff.  I've never had tremors and I don't believe they are part of fibro.  You possibly could have fibro and something else because many of the symptoms you mentioned definitely sound like fibro.  There is also a list of symptoms in Fibro 101 and you just might see yourself there.

I'm glad you are going to see a rheumy.  Get a good one and one that treats fibromyalgia patients.  Believe it or not, there are still doctors out there, including some rheumies, that still think this is all in  your head.  If you don't get satisfaction there, you might want to see a neurologist.  We have several members that see neurologists, too.  I'm not a doctor but this is what I would do in your situation.

I know this is a frightening time for you but I have lived a full and enjoyable life in spite of fibro and the other health issues I have.  We are here to help you.  Just keep searching and you will find the answers. 

I'm really happy that you popped over here.  Don't hesitate to ask questions and I hope to hear more from you soon.

Sherrine

  Good Afternoon Everyone... Thank you for all the replies.

  I've gotten some blood work results back that show my vitamin D level to be very low and also mild inflammation?? I started taking the vitamin d on july 23rd and went for the blood work 2 weeks later... does it take awhile to get into your system? Now they're sending me for the blood work again. Saw my doctor last week and he says my symptoms don't really fit with fibro and I tend to agree with him, but he's refered me to a rheumatologist and I will see him on October 15th. So I will wait to see what he has to say. My doctor took me off of the citralopram because my tremors had become very bad and I was having a hard time functioning, and he put me on clonazepam for them. they have calmed a bit but not gone away. At my doctors visit he really shocked me by asking me if I had any trauma in my life like physical or sexual abuse. He says this type of abuse can maniifest itself years later  even tho the person may have blocked it from they're memory ??? If I have blocked memories of abuse I certainly don't want to remember them now anyway.. and no... I don't believe I was ever abused that way. I think he thinks because they can't find anything wrong ..I must be a whacko....

  Just want to share with you  my first attack and maybe find out if any of you experienced something like this... sorry for the lenght of this..

  Had been having pain in my feet for about 2 yrs that eventually led to electrical shocks going up my legs... stabbing pains in my feet and legs and then numbness and tingling all the way up my left leg to my waist.

  The weekend of the attack my legs were numb and tingly and I could feel the numbness in my lower back and stomach. I went to the ER. I was having muscle spasms in my abdomen and it felt like my intestines were straining... very strange... when the numbness went away I started having stabbing pains everywhere in my body, and I was having tingling on the top of my head, my forehead, and right cheek, my lips felt numb and numbness under my chin. They set me up with a neuro that day. When I went home I was totally exhausted and sick for 8 weeks. The pain kept coming back every night, and it would start all over again. During this time I was very weak. I sometimes could barely walk and even showering was exhausting. Sometimes when the stabbing pains went away I would feel like that part of my body had had a major work out and the muscles would be sore for days. I also had a couple of episodes of flashing lights in my peripheral vision and black wavy lines and blurred vision.

  Thanks for listening... I'm just concerned that they may be leading me to the wrong dx..