Busy day yesterday and the new game plan

Hi all my fibro family, Thanks so much for all of your support just knowing you are all with me on this new journey makes it easier to travel.

Yesterday was a very busy day for me. I was at the Cancer Doctor at 8:20 in the morning and believe me I am not a morning person lol. Anyhow this is what the game plan is. On Tuesday I will be having outpatient surgery to put a port in so that I dont have to get stuck with different needles each time. They can just use this port to put the drugs into and it is under the skin so not all that noticeable. Then on Thursday I will see my cancer dr. again and from there I will go get my first chemo treatment. They are going to use two different kinds to try to shrink down the cancer it the chemo works well they will then do pin point radiation to try and kill the remainder. Then I will have to be on maintenance pills to prolong its coming back. This all happens if the chemo is a success and being as I am trying to think only positive thoughts I didnt ask about what happens if the chemo doesnt work. He did confirm that it is stage 4 and he also gave me the new that I will definitely lose my hair. I wont dare go outside on a windy day because I have ears like dumbo the elephant and would probably fly away. lol

Well from there We went and talked to the surgeon who is going to be putting in the port she was very nice and explained that they will be putting it on the right side which is the worst in case during the surgery the lung collapses I will still have the better lung on the left. More lung issues to look forward too lol.

 

From there it was down to the lab for bloodwork. That needle didnt hurt going in but I was surprised how much it hurt coming out. Yikes. After that it was to pre registration and then we had to see another nurse. She said they should do an ekg and I said I dont think so, as by this time I was more than ready to leave the clinic. She said they will probably do one on Tuesday before the surgery I said that was fine just couldnt do it today.

Finally got out of there at 12:30, went and got something to eat as both hubby and I were starving by this time.

Then at 3:00 we had to be at the Social Security Office to talk to them about keeping hubbies disability. We told her that Charles has cut down hours and is even taking a leave of absence when my chemo starts. She is going to try to help us. I sure hope she can because without his disability we have nothing.

Anyhow we got done there at 4 and at 4:45 I had to be at the MRI place for a brain scan. The cancer doctor said that alot of times lung cancer will jump to the brain and that doesnt show up on a petscan. Good thing Im not claustrophobic. lol I did find out some good news there, I actually do have a brain, believe me I asked. lol

After that it was back home and by this time I was exhausted, One good thing is that the two sons who are out of town came home last night for the weekend. They are so worried with being gone all the time but I dont want them to put their life on hold for me. I know they love me and thats enough.

Sorry this is so long so moderators if you need to you can shorten it. Love you all

Gentle Hugs

Shirley

 

I just fixed your subject line.  I didn't touch your post....much too inspiring!

 

Sherrine

Post Edited By Moderator (Sherrine) : 8/13/2010 9:18:05 AM (GMT-6)

((((((((((((((((((((((((((((((((((((((((((Shirley)))))))))))))))))))))))))))))))))))))))))))))))))

We all will be thinking positive thoughts with you and will be right here praying for
you every step of the way my friend!

Get some much needed rest after that busty day lol :)

Hugs, Robin

Thinking of you through this difficult and trying time....you go, girl!  You have spunk, a positive attitude and are an inspiration to us all.  Your fibro family is with you all the way!

Huggies

Donna

((((Shirley)))),

You are definitely one strong lady. Many, many good thoughts for you here from all your friends. All your positiveness must surely be attracting a good outcome! I don't know how it could do otherwise!

Debbie

(Sorry for the delay)

Shirley, it sounds like your medical team is top notch. Your oncologist sounds like he has it all planned perfectly. This is so good to hear. You'll have all the right stuff being done. And like Sherrine said, now we know how to focus our thoughts and prayers. ;-)

I so love reading about how you're tackling this - and how you spend your days. When I'm in with my doc, I actually think of you, and say, "now wait a minute, Shirley would probably be making this a light hearted thing - I'm going to lighten up in my thoughts about what I'm treating, too!" So you've helped me so much - and I thank you for that.

Sherrine is also right that wigs, hats, scarves and wraps can make a world of difference. And you know, with a wig, you can keep it looking nice without all the labor or shampooing, conditioning, blow drying, curling ... etc. So maybe that's not a bad deal for a while.

I'm so glad your boys are showing their concern and love. You raised them right. Sounds like you've done a lot of things right. You're gonna get this treatment right, too. ;-)

love and hugs.

Wow can you believe it Im feeling speechless here. Im so overwhelmed by all the love and support you all have given me when you are all going through so much yourselves.
Sherrine thank you so much for fixing my mistake. I did laugh when I saw what I had done but it was rather embarassing too. Thanks also for your kind words. They help so much. Robin and Austen thanks for taking the time to laugh with me, around here everyday is a busty day. lol I bookmarked that site too Austen thanks. Debbie, Shannon and Donna thanks so much just for being here and giving me the support I need. You guys are all special. Princess you are as always my cheerleader and I thankyou so much for all that you do to raise my spirits. I also want to thank all of you out there that are pulling for me. Life is a roller coaster of ups and downs for all of us and I am so glad we have each other to lean on. Love all of you
Gentle Hugs
Shirley

P.S. I think I found my voice. LOL