It official...I don't like it...but it is what it is.

 So I guess it is official...I am not eligible for disability...and they haven't even looked at my medical issues. I am a bit lost so figured if I write it out maybe it will make sense in my cloudy brain...who knows. They say I do not have enough work history points in the last 10 years (even though I couldn't work due to medical) so no way to get regular disability. They processed an app for SSI. We are a one income family and yes we do make it...barely...but I don' t know how. I don't consider having $25 for the week after paying bills to be a safe way to get by. We need a second income but I just can't. I want to work...and who knows...maybe someday this will balance out and I will be able to again. Anyways...SSI used my hubby's income and calls it mine so we make 400 a month too much. Keep in mind that they use the same income standards as food stamps. I thought I had accepted this denial but everyone kept saying...get a lawyer...fight it...you have to fight it. So I did contact some people and in the meantime I guess I let my hopes get back up...only to have reality smack me in the face again. It is not an issue that can be appealed...so it is what it is...a big fat nothing. I have worked the majority of my life but it doesn't matter...I have nothing to fall back on for help. I don't really know what I am going to do right now...but somehow  it will all work out...it always does. I am just a bit frustrated and overwhelmed with the whole thing. Dr. told me to apply too so he was behind me all the way. Oh well. Thanks for letting me take us space to get this off my chest.

I'm sorry to hear this but I do understand.  I was a teacher and teachers don't pay into social security...at least they didn't when I was working.  I don't know how it is now.  So, I have almost no points towards social security. 

 

I left teaching many years ago to raise my family.  My husband died suddenly and all of a sudden I had no health insurance.  I have several other illnesses and no one would insure me.  So, I was able to draw off my husbands social security and that's how I managed.  It sounds like you are getting some from your husband, too. 

 

There was a time I was thrilled if I had $35 left over after paying bills.  My three children were young and a lot of money went for medication for me.  It was a bad time but we made it through.  I shopped at "generic" stores, went to garage sales for Christmas gifts, etc.  Even though this isn't what I thought my life would be like, we still had a great life!  By the way, if you have an Aldi's close by, check it out.  There are a lot of things I buy from them and they are inexpensive, too!

 

Also, you might get in control of your pain and can re-enter the work force.  I could work if I wasn't legally deaf.  I have to lip read to understand speech so I can't really work in an office...can't hear on the phone.  But, you could and if you find what helps you be in control of fibro, you will be able to jump back in the work force.  I hope this happens for you.  Meanwhile, we have had some members watch children after school, etc.  Perhaps this is a means of adding some income for you.  Just trying to think of things that could help you out.

 

I do understand your disappointment but there are better days ahead of you.  Just plan on them!

 

Sherrine

I was told the same thing. So sorry. I wish there were jobs that we could do at home.

I hope that good days come your way soon.

Thank you all so much for your kindness and support. It is frustrating to say the least. I know that things will work out...but I struggle with not being able to contribute. I hate that my hubby has to carry all the burden...and put up with me too...lol. I wish I had as much patience with myself as he has with me.

Sherrie...no I can't use my husbands points. They count his income against me...but won't use his points to help me. It really doesn't make any sense to me. They said the only way I could draw off of him is if he was already collecting. So...no I won't get any kind of help at all.

I am hoping that the pain will become more managable. In fact just in the last 2 days I think I can feel a difference from the Savella. I just went to a full dose over the weekend. Even my husband says it seems like I feel better. I am cautiously optimistic that it will stick around...and maybe even get better. I would love to get back into the work force. Unfortunately it won't be anytime soon. I have another surgery coming up. A joint replacement in my foot. Forth surgery on the same foot...hopefully it will be the last. So...for now...like you all said too...cut corners and get by...is all we can really do. We have perfected the art. I wish I knew a yarn fairy tho...all this time at home I really wanna work on afghans for christmas gifts...but that is on hold for now. I am happy that I made a really cute one for my granddaughter. It was all made from odds and ends that were given to me by my hubby's mom and gma. I thought it made a nice family pass down piece. It will be a while before she is old enough to understand the history...but someday.

Thanks again for all of your encouragement. It really means alot to finally have people in my world who understand...even when I don't completely.