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Need a liitle lift me up please...

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Posted 1/25/2011 3:15 AM (GMT 0)
Was hoping that you all could just give me a little bit of a lift me up... I am flaring right now and just really down in the dumps.

I was diagonosed december 2009. I have been pretty lucky when it comes to the pain, mostly walking pain and extreme fatigue. However, I had an appendectomy on the first (woohoo happy new year to me and I didn't even get to be the first of the year I was second and I went into surgery at 1:30 am!!hahaha) since then it's all been down hill :(

The first week after surgery was just plain awful as it always is after surgery but worse... Then we believe I was allergic to the glue he used on me because I broke out in a rash and have been itchy like crazy!! To top it all off I haven't slept but two hours at the most usually less at a time since two days before the surgery.

I work full time as a nanny and don't have the option to quit as my husband is a full time student (he graduates in may praise Jesus!!) luckily my mom lives in town and doesn't work so she has been nanny-ing with me and the family has tried to be as flexible as possible but I feel so useless!!

I am sick of laying in bed (on bed rest via orders of surgeon since he thinks I'm not healing all the way because of my fibro and lack of sleep) I'm sick of hurting. I am sick of not sleeping... *tears flowing down cheeks*

:( I don't care what you say just leave me a comment so I have something to look forward to at least. A joke would be great, even better a stupid website I can cruise while I am wide awake and my husband is sound asleep...

Thanks for reading...

Em
Posted 1/25/2011 4:46 AM (GMT 0)
Hi Evey, I'm so sorry you are hurting...pain is difficult to deal with, and not sleeping well only compounds the pain. I do understand, I've had problems with insomnia since I was a kid.

Perhaps your doctor can give you something to help with the sleep, pain and itching problems.

I've had a few surgeries and it does take some time to recover.
If it is all possible, could you take time off to get your energy back? You need some rest, and I truly hope you are able to get some.

Sometimes stress will keep me awake, and doing deep breathing relaxation exercise will calm me down. There are quite a few websites that you can Google...find one that works best for you.

Sending gentle hug anf prayers your way. I truly hope you feel better soon!

Hugs, Robin
Posted 1/25/2011 7:07 AM (GMT 0)
Hi, Evey.  Well, as you can see, I'm sitting up with you.  I can't sleep either because of back pain...a front is coming through.  I'm so sorry you are having such a rough time right now.  I can't imagine what it would be like to be allergic to glue that was used in surgery!  I've had major surgery and worried about the staples they use, since I'm allergic to metal.  I was itchy but could handle it.  They couldn't even tape gauze on the wounds because the adhesive in the tapes has metal, too.  But, I did get better and so will you!  Just try to take one day at a time.  Each day, you are a day closer to feeling much better again. 

 

When I can't sleep because of insomnia, I will lay there and pray for family and friends.  That relaxes me, I'm not checking the clock every thirty seconds, and I do fall asleep easier.  Tonight I'm up because of pain, not insomnia.

 

I don't know if you have read Fibro 101 yet...the first thread on the forum...but there is a great link called Maintaining a Positive Attitude.  It really is excellent and it just might be the ticket for you the way you are feeling at the moment.  This might help you focus on other things and your pain might fade some in the background.  It's worth a try.  I know I wouldn't be able to function with fibro without my faith and a positive attitude.  I'd be depressed all of the time.  So, give this a try.  I really hope this helps you.

 

Try and rest and take one day at a time.  I truly hope you start feeling better soon. 

 

Sherrine

 

Posted 1/25/2011 7:32 AM (GMT 0)
Hi Em...

And it's wonderful to meet you! Welcome to the Fibro Family. Now that you joined you're stuck!...lol We not only will torture you with pathetic humor but will keep bugging you to take care of yourself! And the worse part of this family is we always are there to support each other. So, are ya ready for us?...lmbo

Seriously, being and feeling so alone if one of the hardest parts of fibro. Even when I have lots of people around me I feel alone. It's like I'm either invisible or I realize that everyone else goes everyday things with out any appreciation of how easy it is. And I have to constantly think about each and every thing I do.

Also, I have to force myself to get out and become active beyond the confines of my home. I'm happy to just stay here but the longer I stay the harder it is for me to leave, especially if I'm going alone. It's torture most days if I have to go anywhere unless hubby is with me.

As you can see, you are in quite good and safe company here. We all are living and fighting our battles but at least we have the compassion of each other to get us through. Please stick with us and we'll make it together...(extending hand)

Warm hugs,
Chutz

here are a couple of sites for fun...

I just found this first one..it's the Crayola company. There over 1,000 pages to print and color, another 1000 art projects and on and on. Cool stuff.
www.crayola.com/

And have you ever thought about digital scrap-booking? There is so much free stuff out there, even software to get you up and running. Just do a search for free digital scrapbook and you'll be stuck to your monitor for days. I use Photoshop Elements and sometimes Photoshop CU and have a blast.

here's a start:

freedigitalscrapbooking.com/digital_scrapbooking_freebies.html
Posted 1/25/2011 12:25 PM (GMT 0)
Hi!

Sending love and understanding! My suggestion is Netflix. You can watch on yr laptop and some phones and ipods. Instant streaming video is like 4.99 a month and first two weeks are free. Lots of commedies. Also you can get an ereader program free on yr laptop or phone from amazon (kindle) or barnes and noble (nook) and have instant access to great books. Google free ebooks and you will have hundreds of free options too!

Wishing you a speedy recovery!
Posted 1/25/2011 12:50 PM (GMT 0)
Hi!
I understand your pain...I hope that you find some relief. I also take care of kids and sometimes I don't know how I will get through the day. My husband and I are foster parents and we had just taken care of a 10 mo old baby for 4 days as an emergency placement and before that we had a 10 yr old for over a year and she left last week. The stress is sometimes overwhelming and it affects my fibro. I find that if you take up a hobby or expand on an existing one that may help. I enjoy scrapbooking and stamping. It is a great stress reducer and my mind is somewhat occupied. And I find that watching favorite TV shows also help. I love the Golden Girls :). PLease email me if you need a distraction or find me on facebook Lisa Grace Fuller.
Hope you find relief and remember to lean on your support systems!
Take care,
lisa
Posted 1/25/2011 3:24 PM (GMT 0)
Hi Em, and welcome. I'm sorry you are having such a rough time. Healing from surgery can be such a bear. I'm praying that you will heal quickly and get back on your feet soon.

I have a couple of fun websites to recommend:

One is for a game called "Boomshine." It is very simple but fun and addictive.
http://www.k2xl.com/games/boomshine/

The other is called Neopets, and you can find it at www.neopets.com.
You create virtual pets that you dress, feed, etc., and there are tons of games and activities. It's a very elaborate website. I started playing it with my daughter years ago. She got busier and stopped playing for the most part, but I still play. smilewinkgrin It sounds like it's just for kids, but it is sophisticated enough for adults, and there are many adults who play.

Hugs - Austen
Posted 1/25/2011 7:05 PM (GMT 0)
Hi Evey, welcome to our fibro family. I am so sorry you are having so much pain right now and the insomnia has to be making the pain even worse. You have had some great suggestions from all everybody. I guess what I do when I dont have energy is I play hidden object games from Big Fish Games. The only problem is you have to pay for these. The good news is you can get most of them for 6.99. I am addicted to them and since I quit smoking in August I have probably spent a small forune on them. lol
I hope you get some relief from your pain and insomnia soon. Sherrine is right about praying for others. That helps to relax me and makes me feel better. Hope to hear from you soon.
Gentle Hugs
Shirley
Posted 1/25/2011 9:29 PM (GMT 0)
Thanks everyone!!

Robin- my rheum won't help with my sleeping problem because "it isnt from fibro" really? Never had the problem before...ugh and I haven't had time to get ahold of my reg doc. Also I would love to take time off but the family is a single parent family and she just got back from a vacation so I'm outta luck on that one haha! Like i said though my mom has been helping me out and that is a big blessing!

Sherrine
Posted 1/25/2011 9:39 PM (GMT 0)
Ugh it cut me off stupid iPad...

Sherrine- thanks for the advice. I have read the 101 and think it's very helpful but even the most optimistic people can have their days when they are feeling down. What's most frustrating right now is that I'm not normally down like this. Most of the time I just fight through the pain to live my life the way I want to live it, so being down for almost a month is extremely hard to deal with.

Chutz- thanks for the websites, I'm already addicted to digital scrap booking :):)

Graceful1- I think I have seen everything on Netflix for all the time I have spent watching it!!! Ok so not really but seriously I have seen almost every tv episode on there :)

Lisa- will be looking you up on Facebook :)

Austen- pretty funny you mention neopets my husband and I were just talking about that site a couple days ago!!

Shirley- lol I have spent so much money on gamefish!! I love gamefish!




Like I said thanks everyone for the kind words, I slept a bit last night but the pain is still pretty bad tonight which is a bummer as I was supposed to go to a concert at a new concert hall here in town tonight. I was going as my daddy's arm candy hahahaha! All well my husband has been very kind to me today his classes got out at 11 so he's been home all day and has been spoiling me. If the pain wasn't here i would say it's been a vacation :)


Hope everyone is doing well!!


Evey
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