Burning pains the last 2 and a half years?

Welcome to the forum! I'm so sorry that you are suffering with so many symptoms and having the frustration that doctors don't know what it is or think you are crazy.

Getting a diagnosis is difficult when you have many things going on. I don't know what bloodwork you have had but certainally the following tests should be done....
CBC- Complete Blood Count,...CMP-Comprehensive Metabolic Panel,...ANA 8 panel and testing for inflammation. These tests are normally done initially. Have you had abnormal tests?

If you are unhappy with your doctor, start looking for another.
As a patient it is your right to get the best care. If there is a teaching hospital near you...I'd call to get a recommendation.

Do check out fibro 101...top of page one. It is a wonderful resource that includes a list of all fibro symptoms, and a link called... What else could it be?

Good luck to you...glad you have joined us...keep us posted!

Hugs, Robin

PS. Stress does add to pain, so I do deep breathing and meditation during the day...it does help. Exercise also is very important!

Wishing you the best!

Post Edited (crazykitty) : 1/28/2011 10:32:50 AM (GMT-7)

Often depression can cause pain, hence the visit to the psychiatrist to see if you are depressed. I think that is a way of ruling something out. I don't think that the doctor thought that you were crazy. And you don't have to be crazy to see a psychiatrist, just depressed. As I myself go.

It does sound like you have fibromyalgia. The best thing that you can do is continue moving around. Find a way to deal with the pain, be it medication or natural supplements. Some of us take a supplement called malic acid/magnesium. There is a thread about it on the fibro101 thread. Also vitamin D3 helps a lot.

Drinking a lot of water is smart. I am glad that you do that. It helps lubricates the muscles. I am sorry that you have burning pain. It is horrible, I know. As you get use to it, it doesn't bother you as much. We all work on ways to distract from the pain. I know it seems hard, but once you get it under control, you will find it is possible.

Please do keep us posted on how you are doing. Being that it is the weekend, you might not get as many replies, but this forum is generally busy during the week. I hope that you feel better soon. Remember fibromyalgia waxes and wanes so you will have times with less pain.

Did the doctor give you a diagnosis?  If not, you might want to look for a doctor that you know believes in fibromyalgia.

Hugs, Karen

Oh, I forgot to say, you might not even have it....do look at the fibro 101 link!

Okay guys.. I have not realized I haven't posted here since the day i was here, and i'm sorry for that.. I have had quite a few new symptoms. Well the chest pain not sure if I mentioned it, visual disturbances specially at night, i've gotten eye pains recently, changes in hearing, like clinging change, forks/spoons, any high pitches in music *at times* can really be like nails on a chalkboard. I am having lots of morning stiffness, my arms, chest and back and everything in my upper body sometimes get REALLY warm, and at times my hands will be ice cold. *probably due to being on the computer a lot at home*. I'm also just so tired all the time, like I'm just so lazy to even get up and go to the gym, or go and make food lazy. It's really bad, even with exercise. I was on amitryptyline but I went off it cause I just felt so tired, but I almost feel like i'm on the meds with how lazy and tired i'm getting.

However I am trying to get a lot more exercise and it's not helping one bit, but I am sleeping better. I am having really irritable stomach stuff happen to almost anything I eat. I also can't smoke anymore due to getting a headache and feeling really dizzy, my stomach will feel like I have knots, drinking *alcohol* makes my chest and arms/neck break out in red marks in my skin, but it goes away, its like a red under the skin rash its really weird *but I get these anyways in heat since all this stuff has started*. Caffeine really messes me up, I get in so much pain after, it's bad. Also really irritates my stomach!  Not sure if that's any help.

Um I really have so much more to tell you all, but its just a lot to process =/ I asked the neurologist what these burning pains can be, he said "not really, but come in and we'll take another look", he has no idea and I feel so stupid going in because none of these doctors are helping.. I have Kaiser coverage, so I guess that really explains it all.

Post Edited By Moderator (Sherrine) : 5/27/2011 9:10:13 AM (GMT-6)

Sherrine said...



it.

http://www.mayoclinic.com/health/costochondritis/DS00626

If you haven't already, be sure to check out Fibro 101...the second thread on the forum. There are links to good info about fibro and you will learn a lot there. Be sure to read the links called Symptoms, What Else Could It Be and also A Thorough Explantion of Fibromyalgia. These are good starting places in understanding this illness. Knowledge is power and we do have to be out own advocates with this illness.

You go 2-3 hours at the gym???? [img]/community/emoticons/shocked.gif[/img] Man, they'd be carrying me out on a stretcher! Exercises is wonderful for fibromyalgia but it is GENTLE exercises that are good. I walk and swim as my exercise...daily. Very few fibromites could do a regular workout. If you can...wonderful! But, if you are worse afterwards, you will need to back down some until you find what works best for you.

You have no idea how many of us were told to see a psychiatrist and that is was all in our heads. A lot of doctors do that because they can't figure out what is going on with you! LOL We have been called hypochondriacs, too. I know. It's insulting but there are still doctors out in the Dark Ages when it comes to fibro. That's why it's important to see doctors that do treat fibro. You will get the most help there....that is IF you have fibro. You are still in the "discovery" phase of your illness.







http://www.amtamassage.org/findamassage/index.html?utm_source=%2Ffindamassage%2Flocator.aspx&utm_medium=web&utm_campaign=redirect



<font color=blue>I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. I hope to hear more from you soo!

<font color=#0000ff>Sherrine

Thank you for greeting me and the links, I will check them out. I have been diagnosed with chest wall inflammation, heart palpitations, tachycardia, etc.. It's never ending and new symptoms are there all the time.. I just want to start working, I'm only 21 never had a job, and it's been going on 3 years. Every doctor, urgent care doctor, emergency room doctor has no clue what to figure out, and unfortunately it's only what my insurance fully covers under my parents atm at this one hospital, but it's Kaiser and they have EVERYTHING. I am getting so sick of this, I am also having prostate pain *TMI I know* as of the last few days too that wont go away, and it's just one thing after another with me. My family hardly believes me, and I tell them when I'm in pain *sometimes* and they just seem to shrug it off and say start exercising more, but what they don't know is i'm going to the gym. And no I do not exercise 2-3 hours a day LOL. I exercise a good 3-4 days a week, and I go for a walk or two when I'm not exercising in the sun for about 15-20 minutes. But yeah, I have no clue who to go to. I did get a new lady doctor that I haven't met yet, so may go see what my 3rd opinion is.

cognizance said...
Getting another doctors opinion is always good. The worst that can happen is that they are horrible and we have all dealt with those. I know it is frustrating with all the symptoms, but try try try to be relaxed about it. There is a real process to this that if you fight it it will tear you apart. Try to accept that you will be having problems...and new ones yet to come... and be proactive about treating symptoms while you look for answers to why this is happening.

It can take years to pin down some of these things so work on solutions NOW to reduce pain. I know your working on that desperately, but don't forget to push your doctors to treat the symptoms and not just take more tests to find out the cause. Most doctors are unwilling to treat what they don't know but some do.

Tramadol has been fantastic for me. No side effects, great for relaxing as well as pain, and it is a gentle in the way it works, at least for me. You do build up a resistance though. I started on 50mg twice a day and now I am up to 50 mg 4 times a day over the course of 4 years. So at that rate I will max out the daily limit in about 5 years or so. I am working to find replacements.

Good luck, and build understandings with you doctors. remember you are in charge of what you decide to do with your body, so don't get pushed into tests or treatments you don't believe in.

Feel better.

Thanks I'll try to mention that to my doctor. I had tramadol for my migraines, they didn't help so i stopped taking them and threw them out. This was before all the pains of course, and it was probably a lighter dose. I am up for medication, but I just dont want to feel groggy, and no crazy side effects. I need to get my life going at least, and I am just looking for some relief enough to work, and i'll worry about the rest over time.

cognizance said...
I have started and stoped many meds and I would suggest that you make sure you give things time to settle down. I have heard of people who take med for three days and say, "it made me dizzy so I stopped taking it"! Unbelievable... I am working through the side effects of Lyrica now and I am on my 6th month and all the sides are still not quite gone yet.

I try to remember that when I stop a drug because of side effects or lack of results, that I have to be sure I have tried every variation of dosages, spacing, and time. That way when I slam the door on a drug it stays closed. I have found some drugs work great at tiny dosages that are smaller than the "book" the doctors have tell them to prescribe.

For example, I took Lyrica two years ago at 75 mg twice a day and the side effects were horrible. dizzy, sleepy, and I gained 20 lbs in 5 weeks! So I stopped. with my new great doc, I started on 75mg at bed time for three months. Now I am taking it twice a day and my sides effects are so much better and it is working better on my pain.

Just something to keep in mind that helped me. Good luck.

I was advised to take tramadol "as needed" for 3 months and they were for my migraines. and no believe me, I know. I took amitriptyline and got up to 40mgs and it just made me feel groggy, i let the pills kick in a month at a time for each new dose, but it got bad so i stopped. it just wasn't working anymore, and the doctor told me stop when I reached 50mgs, 40 was too much i was getting nauseous and dizzy, the doctor advised i'd stop and try another med but i never took it. I have been looking for other alternatives the past year to not take the meds and nothing has been working so far. i am going to go back and see the lady doctor in the next couple weeks to see what she can do or if she has any other suggestions, or maybe even test me for fibro.

hi,I have most of the same symptoms but more of aches than pains plus weird vibrations in left ear and chest so you are not alone.Been to almost every doctor and almost every test.Novacaine like feeling in the left foot,had back xrayed,autoimmune tests,cbc's emg's etc....so it looks like it is fibro.

Femangel said...
Hi Tripleh3lix21

Your symptoms sound realy familiar.. Not just for Fibro but for something else too; now bare with because i can not remember the name, but i saw a health program a while ago on one of our local Belgian tv stations and they mentioned this diseas that causes a lot of the symptoms u've been describing like the sore eyes, the skin rashes, the overall pain and even the ringing in the ears. Now as i said i can not remember how exactly it was called, it was the disease of .... and than something starting with a B thats all i remember from it. And it had something to do with joints and stiffness was very common in this. Its a disease that takes a very similair path to Fibro. Maybe it's also worth checking into? You might have one or both this things.
I hope this helps at least a little bit and i do hope u get diagnosed with something, anything soon, cause its a daily struggle for us the not knowing whats going on AND the doctors even not knowing makes it all the more worse.

Hugs
Fiona

T

Thanks Femangel! I looked it up, I think you may be takling about Behcet's disease. Some of the symptoms match, but fibro matches a bit better. And omg my pains are so bad today, it feels like a bunch off bee stings, and my prostate is really hurting too and going down into my leg and left foot. *im a guy* wondering if anyone has had issues "down there" as a cause of fibro?