HealingWell
Search Close Search
☰

horrible sore throat and tounge

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/18/2011 8:28 PM (GMT 0)
I have been having horrible sore or swollen throat and tounge since november.I have been to an ent and all he says is acid reflux  inwhich he gave me meds and they did not work.my rheumatologist says I have fibro because nothing else can be found.I just want to know if anyone else has this problem.It feels like an infection when none can be found.
Posted 4/18/2011 8:58 PM (GMT 0)
I was given a swish and swallow RX that still helps with the tongue especially. It is nystastin (sp?) Does your tongue have a whitish coating also?
Posted 4/18/2011 9:44 PM (GMT 0)
they tried that and it did not help.the doctors decided it wasn't that told me to get listerine whitening which has helped with the taste but not the throat swelling or sore tounge.I feel the need to mention that I had a treacheotomy that didn't heal well last summer so maybe its cause of that althought it doesn't explain the tounge
Posted 4/18/2011 10:33 PM (GMT 0)
Okay, Nana.  Are you sitting down?  wink    I have Crohn's disease and would get canker sores along the sides of my tongue, the inside of my cheeks, and just a general soreness to the tongue...like it had been burned.  I tried everything and felt, like you do, that it was possibly an infection.  I got thinking about what kills bacteria and thought of alcohol. 

 

Now, I wasn't going to put rubbing alcohol in my mouth so I did the next best thing...rum!  yeah    I do not drink but I had rum in the house for company.  I put some straight rum in my mouth and it burned terribly but for only a handful of seconds.  I swished it around my mouth and spit it out in the sink.  My mouth tingled strongly but a little later I noticed that it didn't hurt so much.  So, about 12 hours later, I did that again.  It still burned but not as badly.  I did this twice a day for two days and haven't had a problem since. 

 

Because it worked great for me, I used this with my children.  When they would get a painful canker sore, I would dip a Q-Tip in some straight rum and lay it on the canker sore.  I only would have to do this two or three times before the pain went away and it started to heal.  The kids knew it would burn but would come to ME to have me do this.  They knew it would get rid of it fast.  This also shows you it's not unbearably uncomfortable if I had elementary age children asking for my "cure"!  tongue   The pain from the canker sore was worse than the burning sensation from the rum. 

 

So, you might want to consider this.  There was another member that had a very sore tongue and tried everything to help it and nothing worked.  I posted this, she tried it, and it cleared it up for her.  I'm not a doctor but am just telling you what I did and how it helped me.  I see you had a trach so you might want to bounce this off your doctor.  But, if you are allowed to drink alcoholic beverages and gargle with Listerine, then this shouldn't hurt you. 

 

Sherrine

Posted 4/18/2011 10:36 PM (GMT 0)
The tongue is so close to the throat so whatever is going on could effect that too. What are they doing about the treacheotomy? Anything? Or maybe it is still healing. Things like that could take a long time. I sure do hope that you feel better soon. Does sucking on ice help anything? Have you tried that?

Keep posting and let us know how you are doing.

Hugs, Karen
Posted 4/19/2011 1:53 AM (GMT 0)
thanx for the advise.I definately have a mystery diagnosis.none of the tests I have had have showed anything.I have paresthesia without having nerve problems(ruled out my nerve conduction tests and eeg,emg)I don't have autoimmune ruled out by a 9 vial blood panel for everything including my dna.no hepatistis or hiv,no ms(had brain and cervical spine mri's)No doctors are really taking me seriously.The only two things I can think of is tendon(body wide)damage from floroquilones like levaquin or maybe ankolosying spondylits unless it is fibromyalgia.but a few of my symptoms don't add up.I don't really have too many of the tenderpoints,that is they don't hurt when you touch them,they just hurt.I have been getting a little down and have drank a couple of beer a day for the last five days,I haven't done that in 9 months,I know I can't continue I just don't know what to do.Is there some kind of test of the tissues that they can do to see if I had floroquiolne toxicity or residual effects from it?
Posted 4/19/2011 3:04 AM (GMT 0)
Just try not to let the alcohol start to become a habit, though I have heard a beer a day is healthy. Just don't use it as a way to cope. We care too much about you here to let you do that. It can also cause depression. Even if you aren't getting a buzz when you drink. The after effects are still depression as alcohol is a depressant. I don't mean to nag, just don't want to see you feel worse than you do.

There are times when we can't find all the answers, or a diagnosis. Just keep hanging on. You will eventually find out what is going on and know how to treat it. It just seems overwhelming at this time. Have faith and try to relax. You will get your answers.

Hugs, Karen
Posted 4/19/2011 1:26 PM (GMT 0)
I know eventually they will find the answer I am just afraid of it being too late.The sore throat is not there today,just a part of my tounge.today I have alot of nausea.It is close to that time of the month and I have heard that that's another trigger of fibromyalgia so who knows.I just wanna feel well enough to take my 7 little grand monkies to the park when the weather is good.
Posted 4/19/2011 1:31 PM (GMT 0)
I forgot to add that the main problem I am having is trying to get past the idea that I can feel this sick and not be dying.I don't understand the concept of feeling rotten and nothing terrible being wrong.
Posted 4/19/2011 3:34 PM (GMT 0)
Hi nana, Im sorry about the pain you are going through I really don't have any advice for you on the tongue and throat issue. I can definitely relate with you on how can you feel so bad and the drs. cant find anything. It took me a long time to accept the fact that fibro was not going to kill me. lol

I have learned to take one day at a time and to always try to think on the positive side. I know that this can be really hard to do sometimes but it does seem to help some.

I will keep you in my prayers that you get some relief soon.

Gentle Hugs
Shirley
Posted 4/19/2011 3:37 PM (GMT 0)
I have had so many things happen to me this past year that I am surprised that I have even made it this far, so I know exactly what you mean about being real sick but not dying.

First I had Iron issues - had transfusion, over doses of oral iron, and tired, tired, tired. My levels are steadily but slowly rising but still under recommended levels.

Then I had an infection - I had two teeth just die for no apparent reason. (well two different dentists said that usually only happens if I have ever had a severe blow to the face/mouth - not to my knowledge). So, now I have two partial root canals and had mouth surgery to clean out the infection that literally ate a hole in my jaw bone.


Then I had thyroid out - the thyroid was 3x bigger on the left than the right so they took it out along with the right side because when they took it out they found cancer. I had to go hypothyroid for 6 weeks before I could get the radiation treatment. This means tired, tired, tired. Then I got the radiation. Ever since then I have had a constant sore throat, sinus type pressure, and a raspy voice. I have been on two rounds of antibiotics but still the same. And, very tired, tired, tired.

Then - fibro flare. A really bad one. One I have not ever had before. My muscles all ache and my skin is very sore to touch. Any motion hurts me. If I hold the fork to long my hand aches, if I put on make up or brush hair/teeth my elbows and shoulders will ache. everything just hurts and my range of motion is very limited. My rheumy just sent me out to get some blood work done. Last week he doubled my mobic and that hasn't done anything to help, maybe made it even worse. And with this flare, of course, is tired, tired, tired.

On top of all this I have to constantly fight the doctors offices and the insurance company on keeping up with the paper work that will pay me my short term dissability for all these surgeries and procedures.

Right now I just want to curl up in a hole and hybernate for about 6 weeks. Hopefully that will be long enough.

Sorry so long. I just felt like I needed to write it all down to put it in perspective for myself. No wonder I am so tired, I have not been allowed to recouperate from one issue before another one pops up.

So sorry that everyone here has a lot of aches, pains, and sleepless nights. Its not fun and I feel for all of you.
Posted 4/19/2011 6:04 PM (GMT 0)
atleast I know I am not alone in this world just as far as my family and friends are concerned.
✚ New Topic ✚ Reply