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Posted 4/19/2011 2:52 AM (GMT 0)
sad Hi, I am new here and i still don't understand about this condition,,my doctor just smiles and gives me gabapentin and no pain meds at all, he says they don't help frbro.... I am in constant pain and now it's spread to my hips and butt and my legs and back are weak. i had throat cancer taking out along with my thryoid. and i feel like well ill all the time,,, the doctor gave cymotel and not synthroid i am confused. i feel somewhat better more energy but i still tingle off and on hands and feet. any thoughts
Posted 4/19/2011 3:14 AM (GMT 0)
Hi Dannielle,

Welcome to the fibromaylgia forum. I am glad that you have joined us. The best way to find out about this disorder is to check out the thread titled "fibro 101". It is the first thread on the forum.

Fibromyalgia is a strange disorder. There are many symptoms including pain, fatigue and what we all call fibrofog. The pain and fatigue seem constant, though some days are worse than others. And the pain can move around from spot to spot.

One of the best things to do is gentle stretching and moving around. I usually walk, where others swim or go to the gym. But walking does the trick for me. You have to start out slowly though. Whichever you decide to do. But doing something will keep you going. I try not to think about the pain. Eventually it falls into the background. I do take mild pain killers though and that helps me.

Some doctors don't believe that pain killers help, but I think some people would beg to differ on that. Some people choose not to take them also. I do know the stronger that you take, the stronger that you need. So it can be a bad cycle for some that gets them nowhere because nothing helps after awhile. So if you can go without painkillers, you are better off. Atleast to go as long as you can without them. But if the pain is more than you can bear, you might need to see another doctor.

I wish you the best. It is no fun. But coming here atleast gets you some compassion and some understanding. This is a great group of members and I think that you will like it here.

Hugs, Karen
Posted 4/19/2011 1:44 PM (GMT 0)
How long has it been since the thyroid was taken out?
You have alot going on in your body.
Have you checked the thyroid disorder forum? It maybe worth checking. Just a thought.
Hope you find help soon.
Posted 4/19/2011 3:40 PM (GMT 0)
Hi Danielle and welcome to our fibro family, I cant imagine having a dr. that doesnt believe in some sort of pain relief. I do agree with Karen. It is best to try not to use to much but there are times when we need that relief.

I hope that you find something to help you soon. Prayers coming your way.
Gentle Hugs
Shirley
Posted 4/19/2011 4:20 PM (GMT 0)
Hi, Dannielle, and welcome!  I'm so glad you found us and joined the family.  I think you will like it here.

 

I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 supplements to help with pain and fatigue.  Then I add gentle stretching exercises, walking and swimming, and a monthly gentle massage.  This combination helps me be in control of my pain....not pain-free.  I have had fibro for decades and have had a great life so far.  We are all so different, though.  What works for one might not work for another.  It's totally trial and error with fibro. 

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information about fibromyalgia and you will learn a lot there.  Read the links called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  These are good links to start with.  There are also links about the stretching exercises and malic acid/magnesium and vitamin D3 supplements and how these work in your body.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from  you soon.

 

Sherrine

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