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Why does it hurt so bad

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Fibromyalgia
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Posted 8/29/2011 5:01 PM (GMT 0)
 For the last couple of years I been living with Fibromyalgia and everyday is a struggle to wake up and to be able to do things. Things seem to a fight everyday and it seems no one really understands. Life has gotten harder and I cant even do things with my kids I get really down with all the pain I have and the constant fight Can anyone help me find a way to be able to deal with this better. I have tried Physical thearpy and that was a complete failure . Doctors have been doing medications to help but I still feel like I am at a lost please help

                                          Sincerely ,

                                              ChitownsChinadoll

Posted 8/29/2011 5:29 PM (GMT 0)
Hi ChitownsChinadoll (cute name, explain it if you feel up to it sometime)

I can tell you whey it seems like no one really understands. No one really understands. Trying to cheer you up, but really I think that is is. They are so clueless you just have to remember that, and you are NOT wrong or crazy. I try to sit and imagine how it used to be without any pain, then I get mad at myself for how I took it for granted.

I do know that listening to mediation and relaxation recordings help me a lot. I've always had a high level of anxiety, the relaxation never seemed to help that much, but funny how it IS helping my fibro symptoms! If you have a phone or a device that you can upload apps on, there are some that are free. One I've found is the Qi Gong (it's pronounced Chee Gong)

Anyway, when you feel like sh** it's understandable that we get isolated and nobody understands and our feelings get hurt, which leads to more tension in the muscles and stress/loneliness/depression and I know I often have guilt over not being able to be the mom I want to be for my kids.

Listing all that isn't helping so I'll hush! But just know you aren't alone. They have found that people who research and stay more involved with learning about fibro tend to feel better (I know it's helping me feel more in control and that it's not something happening TO me, it's something happening WITH me, and the more I learn the more I do feel validated that I am a normal person just going through some hard stuff)...and that helps.

I found this video validating and although it's long and highly technical in some parts, you might like to see it too https://www.healingwell.com/community/default.aspx?f=24&m=2197316

Be careful when you go to YouTube, there are some videos that have made me feel worse instead of better and you have to be careful of snake oil salesmen promising cures...lol

Hugs,
D
Posted 8/29/2011 5:34 PM (GMT 0)
Hi Chinadoll, welcome to the forum...the fibro family. We are like a family. We look out for one another and we care.

I am so sorry for your pain. We all understand the challenges of fibro and its pain. There are some ways to help alleviate it. Heat tends to help soothe sore muscles, so when you can find the time, soak in a warm bath. Relaxation therapy has helped me...I practice deep breathing, meditation and use visual imagery to help reduce pain and stress. our moods affect our pain too. I know it can be difficult to remain upbeat when you are hurting, but finding fun things to do helps distract pain.

Exercise is very important, inactivity is the worst thing for us. Doing gentle stretching and walking has helped me. Before you even get out of bed in the morning to some gentle stretches.

It is important that we eat healthy too. Many of us have been vitamin D deficient and that add to our pain. If you haven't been checked, it is a good idea. Sometimes prescription vitamin D therapy is needed. It helped me.

There are a number of med combos used to trat fibro. We all tolerate meds differantly...what works for one might not work for another. I am on Savella and I use muscle relaxers when needed.

The motto here seems to be one day at a time and it does help :)

Please check out fibro 101 on the top of the page. Sherrine has put together a wonderful resource for us.

I am so glad that you have joined us. Post often...we care!!!

Hugs, Robin
Posted 8/29/2011 5:40 PM (GMT 0)
CrazyKitty, I'm looking for the "Like" button on Facebook...but there isnt one here...I LIKE your post lol
Posted 8/30/2011 4:00 AM (GMT 0)
I'm sorry that you are having such a difficult time of it. Fibro is a very isolating disease because it is so invisible. I often wish there was a sign above my head with a number for my pain at that moment. Then everyone (kids, co-workers, strangers on the street) would know what is going on.

Talk to your doctor. You are overwhelmed and you need someone in your court.

Joy
Posted 8/30/2011 6:14 PM (GMT 0)
Oh man, I am going thur the same thing this week. It's so depressing. The pain makes my depression worse. When you figure this out, please let me know. Fibro. is hard to except anyway. The fatigue make the depression worse. How do we snap out of it!! At least we are not alone. Please take care of yourself, and I wish I could figure this out so I can help others.
Marilyn
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