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Thought I was better....but feeling in the dumps again

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Posted 10/13/2011 3:27 PM (GMT 0)
I hope everyone is doing well,

I posted a few weeks ago about having "cured" my fatigue with vitamin D supplements. I was feeling so great, I had energy, I could focus. But now the fatigue is starting to creep back up on me, and I have no idea what's going on.

I'm wondering if this has happened to anybody? Maybe I reached an energy "peak" or something and now my energy levels are balancing back out? Maybe I thought I was improving because of the vitimin D, but there was another factor in play all together? I have no idea. But I do know that I'm tired of optimistically trying all these different treatment plans and having none help. My bf thinks that I'm just crazy, maybe I am. Maybe this is in my head... but even if it is in my head, it doesn't mean that this pain and exhaustion isn't real and that it isn't seriously impacting the quality of my life! But enough complaining...

I'm talking 1000iuv a day, as well as vitamin B complex, calcium and magnesium. Maybe something needs to be readjusted here? I'm getting my vitiman levels checked again next week if I can convince my parents to help me out with the bills.

Has this happened to anyone here? Any advice?

Thanks!!
Posted 10/14/2011 2:23 AM (GMT 0)
Hi tara,

Have you tried the malic acid yet? The thread fibro101 gives a whole lot of info that you might find helpful, I certainly did. It seems like I am going through similar just when I think I have pain control surprise I hurt again in a different spot.

I hope you get some relief soon. Most of my family are supportive but there are days I know they just shake their heads and ignore me.
Posted 10/14/2011 2:28 AM (GMT 0)
I go through a lot of ups and downs... I feel energetic for a spell, and then really wiped out again. Such is the life of fibro... :-(

I think I am like you where I get so optimistic and hopeful that something will work, and if it doesn't the frustration escalates. This forum has helped me balance things much better (but I still have my highs and lows). It's just nice knowing that when I'm down in the dumps someone else is here to pick me up.

Thanks everyone for all you do!!
Posted 10/14/2011 4:20 AM (GMT 0)
I have had fibro for many years and I have those days that the fatigue is heavy. I listen to my body and rest more on those days. It seems to keep me out of flares so much. I am on supplements also.
Posted 10/15/2011 3:33 AM (GMT 0)
Oh yes, that is normal for Fibro. I "think" taking certain supplements & doing certain things has helped me, but then I'll go downhill again. But then feel much better the next day. It is frustrating, and makes me upset & angry sometimes. Even if I have a pretty good day, I still have to be cautious to not overdo things or I might regret it 2 days later. Fibro makes it hard to make plans without a disclaimer that I can never be truly sure how I'll feel. Very often, when I think something has helped me, I only had a temporary cessation of symptoms, & can't be sure if what I did or didn't do had any bearing at all. I am trying to just go with the flow, but it is indeed wearing on me psychologically.
Posted 10/15/2011 11:20 PM (GMT 0)
Hi,

There can be several things playing into the fatigue and which are related to different areas or functions of the body. I think the Vitamin D may have effectively treated one area, but maybe now another area is flaring up that wasn't before. It doesn't mean the vitamin D is no longer working, but just that it is limited to one area that was playing into the fatigue.

Also, sometimes as the body heals it will go through spurts where it feels better, than as the healing goes deeper, the symptoms can get worse for awhile, and then better again. That is what is known as a 'healing crisis.'

Don't ever give up. There are answers to be found.

Hope you feel better soon. :0) embers
Posted 10/15/2011 11:43 PM (GMT 0)
Hi.

I am new to the forum and thanks for your post Tara. I have been yo-yoing between feeling almost "normal" not much pain and a clear head for a week or so then one day the severe pain hits me and I am back in bed for days. I was beginning to feel like I was past crazy. Thanks for letting me know that I am not the only one going through this.
Posted 10/16/2011 1:03 AM (GMT 0)
I feel for you, Tara, and totally understand your disappointment. It is the variable nature of this condition, in my opinion, makes it not only hard to accept (for us) but also believe (for others). If I had a penny for every time that I've heard, Well, you were feeling better for a while, what DID YOU do?

Pls, pls pls don't assign blame on yourself - this is a long, winding road.
Posted 10/16/2011 11:30 AM (GMT 0)
Try watching what you eat, when I'm feeling blicky I make sure I eat something very healthy and most of the time I get some relief. Sometimes I get that blicky feeling if I eat sugar or chocolate or high-fat foods. I try not to eat these things.

Good luck.
Posted 10/17/2011 9:21 PM (GMT 0)
Thank you so much to everyone who replied.

grandmaroses - I have not tried malic acid yet, but its next on my list of things to try. Thanks for the suggestion.

crushfibro - This site has helped me so much, too! It's easy to feel alone in our everyday lives with fibro symptoms, but here everyone understands and is so supportive.

applevenus - It seems like we have experienced the same things in terms of trying supplements. Things help for a bit, then its back to the same old same old. Hopefully we will find an answer for us out there.

Manyembers - I was thinking this too. Things do seem to have improved with my fatigue, but there is still *something* wearing me down. I really hope what I'm feeling now is the 'healing crisis'.. that would be great!

recovery09 - Welcome to this forum. I'm sure you'll find that a lot of the people here will have similar experiences. You are definitely not alone!

Cloe_s_mom - Good question! What did I do? I took a semester off of school and spend an entire month resting. Maybe that had something to do with my temporarily increased energy levels? I sure hope not. Nonetheless, thank you so much for your encouraging words.

almost medfree - thanks for the advice. I try to eat healthy meals, but end up snacking on junk food now and then. Il try to cut the bad stuff out and see if it helps. Thanks!
Posted 10/19/2011 4:21 PM (GMT 0)
I have experienced the same thing, even very recently.  I was just offering to help a friend of mine who has similar health problems because I was feeling so great.  So I offered to help her clean her house.  Then with in a day I started feeling the fibro kick my butt again!!!  smhair I put myself back on a couple of supplements I was weaning myself off of and also tried to make sure I was getting rest and was doing daily relaxation.

I guess I just have to accept that this is how it's going to be.  Enjoy the good days while they are here, and don't beat ourselves up over the bad days.  Try to enjoy the little things in life and pamper ourselves a bit during those tough times. :-)

Hang in there everyone,

Susan

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