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Posted 2/9/2012 1:37 AM (GMT 0)

For a while i was doing great. Had my baby almost a year ago and i was doing good. Now the last month or so i'm crappy at least 5 days out of 7. My head pounds, i'm so tired i can hardly function and i get irritable quick. I stopped going to my doctor for the fibro because i didn't like him, but i obviously need to go back, i do have a referal for a new rheumatologist, i'm just worried. I don't know what to ask, and nothing they ever did before helped, and now i have a baby that's almost 1 and walking, i need to be able to keep up with her. I'm stressed, i could really use some support.

The biggest problem is this is causing me to hardly be able to keep the house clean, i live with my parents and that's my "rent". So my mom keeps getting angry with me, and i want to scream because i do sleep and i do try, i just can't physicaly make my body do what i need too.

(i've been on here before, haven't been around for a while and not sure who will remember me)

Posted 2/9/2012 3:09 AM (GMT 0)
So sorry, you sure are having a hard time of it. Remember your mom can't see your pain, so you should try to find some time when she isn't irritated at you to have a heart to heart with her. The stress and (maybe?) even some post-partum depression could be making your condition worse.
Posted 2/9/2012 4:52 AM (GMT 0)
I remember your name, Akina! I know exactly how you feel - body just won't cooperate, and it's maddening! Esp with a little one to keep up with, it seems insurmountable. And then, to try to figure out which doctor to believe in just complicates things....I'm going through that right now too, it's exhausting.

I hope things improve for you soon.

Debbie
Posted 2/9/2012 5:18 AM (GMT 0)
Hi Akina and I'm glad to see you back.

I sure wish I had some magic answers for you but I can share some ideas that might help. First, if I were you I'd take advantage of the referral to see a rheumatologist. They are actually the one who's the most capable of diagnosing Fibro. Don't worry about what to ask...the doctor is the one who asks the questions. He'll likely ask where and how bad your pain is, any recent injuries, stuff like that. He'll poke here and there to see your reaction in the muscle since fibro is a pain felt in muscles. Often if it's a good rheumy he'll take over your care for fibro or might send you to a pain specialist.

Personally I dislike being shipped from one doctor to another but that's just my own personal preferences. My doctor will send me to a specialist if he feels it's necessary then most often he'll take over the care of whatever the problem is once the specialist has things leveled out. Works well for me.

Also, there are medications to help with the agonizing sleepiness. Quite often it's not only miserable to feel so tired all of the time but when you are driving and/or caring for young children it then can become life threatening. I take something for the sleepiness I live with and it really does help. Otherwise I could do nothing but sleep my life away.

One last thought...have you talked to your mother about what's going on? Does she understand what's involved with fibro? If not it might be good to take her along on a doctor's visit. This way she can also have your doctor answer any questions she has also....takes the pressure off of you.

Hope something in this missive is at least a tiny bit helpful. One thing we have to remember....Never Give Up! It's not easy but you can live a good and productive life with fibro. Just look around and you'll see 'us' everywhere.

Hugs,
Chutz
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