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Diagnosed finally. Still in pain.

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Fibromyalgia
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Posted 4/11/2012 2:33 PM (GMT 0)
Hello. Yesterday I was finally diagnosed with fibromyalgia and I've been able to deal with the pain last night and this morning kind of well. Next week I need to get an MRI done to rule out any type of bone damage or whatever. I'm not very concerned as I had an MRI six years ago and there has not been anything traumatic since then. My only issue is with the pain medicine they prescribed, I feel like they started me at way to low of a dose. I was taking 2x 5mg Oxycodone capsules every four-six hours prescribed by my primary. This barely made it so I could get it through the day. When I went to the pain clinic yesterday I was prescribed Percocet 5/325 every six hours, not to exceed 2/day. I'm ecstatic to finally have minor relief, but I don't know how to talk to my doctor on my next visit about upping my dose. I'm already on Cymbalta 60mg. Does anyone have experience with this? I'm worried about looking like I'm just trying to get high because I'm only nineteen. You get treated differently when you're young, they assume everything cry very prejudice.
Posted 4/11/2012 2:43 PM (GMT 0)
We get treated like that when we are older too, but I understand your concern. I am going to ask for an increase of meds when I see the doc next week, and I don't want himn to think I am drug seeking either. The worst that could happen is he could say no. But let him know that you are still in a lot of pain. You are taking good meds. I want to start endocet. It is like percocet just stronger. I don't want oxycodone without the tylenol. My husband takes 15mg oxycodone. They are too strong for me, make me sleepy. I like the tylenol in it. It really seems to help. I hope this works out for you. Are you staying active? It does help. Try walking everyday.

Hugs, Karen
Posted 4/11/2012 3:55 PM (GMT 0)
Welcome Emin,

Glad to have you here. Did you check out the Fibro 101 thread, 2nd on the list? You will find out more there about Fibro than you ever thought possible! The more you know, the more you will be able to talk to the doctors intelligently, and the better the outcome.

What you're talking about really is a problem for everyone. We talk about it a lot. I am sorry that you have so much pain at a very young age.

Debbie
Posted 4/11/2012 4:01 PM (GMT 0)
Do you realize that Percocet is oxycodone with Tylenol added?  The 5/325 means there are 5 mg of oxycodone in it and 325 mg of Tylenol (acetaminophen) in each tablet.  From what you wrote, you are taking less of the narcotic but getting more relief.  The Tylenol is what might be helping you...not the narcotic.  If you take added Tylenol for any reason, be sure to consider the Tylenol in the Percocet.  You do not want to have more than 4,000 mg of Tylenol a day.  So check cold products, cough syrup, etc. 

 

Narcotics don't seem to help me at all.  I tried both Vicodin and Tramadol and that didn't help my pain at all but ibuprofen with food and extra strength Tylenol are what helps me...along with the supplements I take.

 

I'm not sure what the MRI is for.  You don't get bone damage with fibro...at least I've never heard of it.  They might be checking for signs of inflammation.  If you have inflammation then something else is going on besides fibro.  I just discovered this myself.

 

I'm glad to hear you are getting some relief now.  Let us know how things go for you because we do care about you.

 

Sherrine

 

Sherrine

Posted 4/11/2012 5:24 PM (GMT 0)
Perhaps I stated it confusingly; my GP was giving me 5mg Oxycodone IR and told me to take 2x every four hours. Now I am getting half of that at the pain clinic. I don't care that it has APAP in it, it helps more than the IR.
Posted 4/11/2012 5:24 PM (GMT 0)
I couldn't function on narcotics. I take a half occasionally at night when the pain is particularly bad. My PC doc has recently cut my pain-killers way down, which I am not happy about. Her argument is that I am too young to be taking so much, and that I need to learn to deal with the pain. I am 43, and have been taking painkillers for 8 years. I cannot take OTC meds, due to ulcerative colitis.

I think there is a fine line that's hard to see, sometimes. Finding the balance is hard for everyone.
Posted 4/11/2012 5:35 PM (GMT 0)
Myself, I have Crohn's disease ad was misdiagnoses with ulcerative colitis for nine years, but yet I take ibuprofen and Tylenol.  It hasn't hurt me in that way.  I did develop a bleeding ulcer, after using ibuprofen for nearly 25 years, but have to take them again for another problem that has cropped up.  But I now take it with Pepcid AC and misoprostol to help protect my stomach. 

 

I know I could not function with the pain I have without something to help out.  Obviously your doctor hasn't walked in your shoes.  I see you have arthritis, too.  I have ankylosing spondylitis and that is a rheumatic illness too so I went back on the ibuprofen...with my doctor's blessing.

 

Sherrine

Posted 4/11/2012 6:04 PM (GMT 0)
Everyone is so different! My tummy inflammation becomes worse when I take OTC painkillers, so I try not unless I have a headache. I get cramping and diarrhea, and the unfortunate side effects of both.

I tried to take Naproxen at night for a while, until it became clear that the med was causing so much gastric distress.

Two states and three rheumies ago, I was on a prescription anti-inflammatory as well as prilosec to try to buffer the stomach. But, I disliked taking a medicine just to counteract the side effects of another med, and the original med didn't seem to be doing much anyway.

It's so very hard to find a workable solution! Blessings to all.
Posted 4/11/2012 6:10 PM (GMT 0)
I really think that the tylenol helps a lot with pain. That is why I prefer the pain meds with it in them. I think it picks up where the other leaves off for some reason. And when there is tylenol in it, for some reason it gives me a little energy. I should try tylenol alone and see what happens. lol... You never know.

I just want to say that I hope all of you are having a fantastic day today. It is sunny out, but still a little chilly.

But I did get my walk in. Feeling great!!!

Hugs, Karen
Posted 4/11/2012 11:37 PM (GMT 0)
Emin- you will find out that there is no med out there that going to take your pain away. I started young taking high doses of meds and over the years they kept bumping them up and up! Next thing I knew I couldn't function without them. Just be careful taking them. If you go to your pain management Dr. They will ask you how is your pain. Just be honest and let them know and let them prescribe. They usually will know when to change your dose. I went to a class and I learned other alternatives for pain control. There are so many things that does help with addition to meds. Tylenol mixed with other meds use to work well with me.
Posted 4/12/2012 3:08 PM (GMT 0)
I've tried a lot of different routes, I've been going through this for more than a decade and I'm not even 20. I know everything about pain relief. Coupling Tylenol and Aleve with meds is optimal and is what I'm doing. I guess I just hope my doctor can see that I'm still in pain.
Posted 4/12/2012 4:12 PM (GMT 0)
I hope so, too. Wish you well....

Debbie
Posted 4/23/2012 9:05 PM (GMT 0)
Endocet is Percocet. It's a brand name made by Endo pharmaceuticals. Some people actually think Endocet is less effective. Unless one gets a higher dose prescribed, it's not stronger than Percocet.

Many people have preferred brands of meds that they believe work better than others. Although it's not supposed to be true (they are all supposed to have the same amount of active ingredients), I have found that I "think" certain brands work better.
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