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Question from the newly diagnosed

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Fibromyalgia
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Posted 6/6/2012 7:03 PM (GMT 0)
Here goes..... when I first started having constant pain it was mostly in my neck and shoulder area.....I put up with that for months, then it got a bit better but never went completely away... then my butt and lower back started hurting... a lot!  I often made remarks about my butt hurting  in a joking fashion and thought it was just some sciatica or arhtritis type stuff. However it became unbearable at times to where I could hardly touch my own skin. So I thought I would try some Yoga. This was painful and I could barely turn from side to side when laying on my back for certain excercises, so I stopped that. Now, being a massage therapist myself, I tried certain exercises but found the pain to be just to much and the frustration level was high, so I gave that up.

My question is...... does the pain EVER stop?  At all? Or does it just have highs and lows? Does weather make it increase like arthritis or some other disorder? Will I ever have a day in my life again that is pain free? My mind is just fried......

sad

has anyone had any luck with any type of vitamin?

I take D3 2000 mgs a day, thats the only vit I have used but I did that before my diagnosos,  any other suggestions?

Always twisting in her seat,

Spool

 

Posted 6/6/2012 8:49 PM (GMT 0)
I teach performance and have trouble with yoga and floor work, as well. A little goes a long way. The best exercise for me for pain relief is deep water work. Still, it is easy to do too much, because you don't realize it until later.

I take tramadol and amphitrptyline for pain, as well as curcumin (the base of turmeric), along with s sleeping med. If I don't get good sleep, nothing else is possible. Ialsouse the sauna at the gym, as well as hot baths at home. I cannot use OTC painkillers, due to UC. Others find them useful.

Highs andlows are about what you can expect. Soon, you will be able to gauge how much you can do without going too far. The only way to figure out the balance is to see what you can do.
Posted 6/6/2012 9:01 PM (GMT 0)
I haven't been pain free since I developed fibro but I do have my pain under control and have had a full and enjoyable life in spite of it.  I take vitamin D3, too, along with malic acid/magnesium (info in Fibro 101) and also Curamin which is an alternative pain reliever.  I also take ibuprofen and Tylenol.

 

The pain does wax and wane.  If you are having excessive pain, that's called a flare.  My pain increases with rain, humidity, and barometric pressure changes.  Cold affects me, too, but I now live in Florida.  If I overdo instead of pacing myself, I pay a price too.

 

Sherrine

Posted 6/6/2012 9:25 PM (GMT 0)
Spoolbus,

I'm afraid I must concur with the rest - not ever pain-free, but vast differences in the AMOUNT of pain I'm in at any given time. You mentioned your neck and shoulder pain getting a bit better; that's how my Fibro started as well, and that also faded into the background. It's always there if I touch that area, or move it too much, or lift my arms. If I aggravate it, it's there. It's just that it's not the loudest pain anymore.


Now that's my sciatic nerve area...lots of parallels with you, actually! Of course, I'm recovering from disc surgery, so that makes sense...I really like my physical therapist, and she's usually realistic in her expectations of me so far. I am getting stronger, and moving more, which makes me VERY happy!


Since you're a massage therapist, I'm curious to know if you get massages yourself. I have never been able to afford to go often enough to get gradually deeper, and I couldn't handle even the light kind too well, so haven't really explored massage. But yesterday, my therapist pushed down on my butt and I felt immediate relief on the sciatic area, where I've felt constant pain and/or numbness for many years (even before my disc ruptured) - about a quarter-sized area. Hours later, I still felt good in a way I'm not used to - dare I call it - increased energy??  cool

As Angel said, the pieces will start falling into place after awhile. Never all of them, but enough so that life resumes some normalcy.

And we are always here for you.


Debbie

Posted 6/6/2012 10:09 PM (GMT 0)
Hi there,

I haven't been pain free since I got fibromyalgia either. I don't expect to be. But I too have my pain under control and can tolerate it. I just recently had a medication increase too and it really made a huge difference, but there is still pain. Eventually it does go into the background and you don't notice it as much. I hate to tell you you are going to have pain for the rest of your life and hopefully you wont. But I see it for myself.

Keep moving. Nothing is worse than when you sit for a long period of time or lay for a long period of time. Stretch gently whenever you can. It really does help. Also drink a lot of water. It helps keep your muscles hydrated. I was taking D3 2000 iu. But the doctor tested it and I was still low, so I take 5000iu a day now. I really think that D3 helps us a lot. Also the malic acid/magnesium that Sherrine mentioned. There are a lot of little things we can do to help us along. As you will learn with time, what is right for you. Keep an open mind, know that you will feel better. Keep trying, never give in to fibromyalgia.

Best wishes,

Hugs, Karen
Posted 6/7/2012 2:13 AM (GMT 0)
Spoolbus- I know having chronic pain is so tiring. I have had some hrs. and a day here and there free of pain. It feels so good. My pain is so much better under control since I started taking subutex.
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