Anyone in Japan or Asia? Suggestions for support.

I'm living in Japan and would like to know if anyone else lives here or anywhere else in Asia.

I've had FMS for 5 years. I am seeing one of the best doctors for FMS in Japan, but the truth is, no one knows what really is the cause of FMS.

I also attend a support group here but it's not enough. There's not enough people who can counsel and provide lecture support session with those who are in pain like we are in with FMS. I am in my late 30s.

I am currently taking:

Lyrica 75mg in morning and 150mg at night

Tramadol long release 100mg once in the morning

Amitriypine 10mg at night for insomnia and pain

Clonazapam 1mg at night for sleep.


I cannot take Cymbalta as it makes me extremely fatigue.

My pain cannot be managed well and I am afraid I will no longer be able to work. I am trying everything possible, vitamins, magnesium, light stretching.

I don't ever want to file for disability, but I since my pain is about a 7-8 when it is severe and I cannot leave my bed, is it time to start planning to ask the doctor about filing? I have a situation where I don't need to work right now, but if the time came and I can't work consistently should I swallow my pride and ask for assistance about disability?

Konbanwa,

Genki desu ka? Watashi wa mama desu.

I do not live in Asia nor Nihon, however, I could find information out for you. My other half, is from Japan. There is a National Fibromyalgia Assoication (dont ask me to spell when I am tired lol)

http://fmaware.org/site/News2a2f8.html?page=NewsArticle&id=6369


The causes of foofoo (fibromyalgia) is usually genetic, aka genes aka dna. Sometimes its PTSD, Emotional Stress, Sometimes its even a person's health. Mine is probably a toss up between my health and genetics, as my father has it as well.

As for your flare ups that is the severe pain, you must keep moving. You have to study your body, learn your body, feel your body. You can learn when you are starting a flare up, like many of us have. I personally, email my doctor when I start a flare up and say "PT time" and he refers me to Physical Therapy in a Swimming Pool under the guidance of Therapists. The key is to slow down, not to over do it.

If you need translation into Japanese, I am more than willing to do as so. Your english is wonderfully written. Please consider us as one of your support groups, we are here 24/7 and really understand what you go through. Welcome to the group, hope you stay!

I have also found relief through acupuncture, as well as accu beads.

Arigato gozaimasu

Jamatane

I am not from Asia or Japan, but wanted to say your not alone in this. It was the best thing I did when I stop work. My health got so much better. I am able to control my day now. I can rest when I need to and best thing is the less stress in my life. I wish we had a support group in Anchorage Alaska.