Hi, everyone. This is an excellent forum with lots of information and you seem to be a very caring bunch!
I presently live in Florida, but originally from Oklahoma (I miss it!).
I was diagnosed (by myself) with fibro a year ago and thanks to a care provider who actually has an open mind, it is now official! (I showed up at his office with 3 library books and 5 print-outs from the internet.) He did insist on a run of diagnostic tests, though. He's not a total pushover, but he hates it when I show up crying
Currently see a rheumatologist, an oncologist (due to a platelet disorder) and my (best friend) care provider - who is a Certified Nurse Practitioner. I wouldn't trade him for a dozen doctors!
Present meds are Gabapentin 300mg, Savella 100mg - Oxycodone, Naprosyn, Baclofen for pain. Ropinerole for leg spasms, and various odds and ends for other issues. Recently read about mega-dose injections of B12 (3mg 3 times a week) and CNP is fighting me on that one! Anyone else heard of or tried that.
I think the worst thing about this mess is the inability to do very much. I'm an artist and I started painting a 5" tile a month ago - simple design- and it's maybe half finished. If I try to take a little nap in the afternoon it becomes a 4 hour sleep! From then on, I just piddle around a little, waiting for bedtime. I hate it!
Okay, enough whining! Sherrine - I love your scripture at the bottom of your posts. This morning I was crying and I thought "this fibro is tougher than God" and immediately I thought about the part that says "God does not give us a spirit of fear". I used that to get up out of that funk and came in and joined this forum. I do believe knowledge is power! Thank you all for letting me vent a little and for giving me some hope.