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Posted 11/19/2012 9:01 PM (GMT 0)
First week of Nov, I went to see her and she said still says fibro, but something else seems to be going on and she thinks RA or lupus. So I had many files of blood drawn that day and x rays last Friday. Next appt scheduled 12.20.12  

Just as i start therapy today i get a call from her office. Saying they found some abnormalities in my blood work. Saying the markers showed I was in danger of having more seizures or heart attacks. I needed to have more blood drawn, a 24 hr urine collection and they are going to set me up with an endocrindiologist. They said i needed to come in asap as it was vital to get the blood work done as quickly as possible.Talk about getting very worried. I went to her office to pick up the lab order and I asked the nurse what they are looking at. He said my calcium and phosphurus (sp) was higher than normal and that could cause heart issues.

I looked up about high calcium in blood. My dh said it is all the pumpkin seeds i eat. I love to snack on roasted seeds. My pcp knows this as we have talked about it. I hate to tell dh he could be right. mad

They are high in calcium.

I know not to believe everything i read online so i am trying to be patient. But i am scared. I was not sure what all that specialist deals with other than diabetes (which i have) so i found also alot of other things they look at such as thyroid and other glands .

Any thoughts?

Posted 11/19/2012 11:42 PM (GMT 0)
Lay off the seeds for awhile and see if things change for you.
Posted 11/20/2012 1:27 AM (GMT 0)
One day at a time, and follow the doc's advice. That is all we can do. Hope you get some answers!
Posted 11/20/2012 7:12 AM (GMT 0)
Lady- try not to read into the Internet too much. It can really play mind games on you. Next thing you know, your thinking the worse. It might be a good thing to see a endocrinologist. It's not uncommon for fibro patients to have thyroid problems. These Dr's are real Smart and usually figure out what is going on with your body. I have low thyroid and it really has help my fatigue.

If you are eating things that are high in calcium. Lay off of them until you see your new Dr. Then you might have your answer. Do you take calcium supplements?
Posted 11/20/2012 9:48 AM (GMT 0)
Hi Lady...I had a doctor call me at 8:00 on a Saturday morning to tell me to go back to the lab ASAP for another blood draw as my calcium readings were too high...got told the same thing about the heart attack risk.  I went in immediately, had the draw and they tested it while I was sitting there.  It was normal.  Turns out (I was told by a lab tech) that my initial blood had sat in the tube for six hours before they tested it.  Calcium is very time sensitive.  I hope they do another draw before jumping to conclusions...it's always good to repeat the test when numbers are too high.

Good luck to you...

Donna

Posted 11/20/2012 4:49 PM (GMT 0)

They drew blood again while i was at the hospital after i picked up the orders. I think they believe i have

Hyperparathyroidism. Just from what i have researched and what they said. I know not to jump to conclusions, but the symptoms i have fit. Including hair loss at front of head (i wear wigs a lot). I am diabetic, have osteoporosis (which means that the calcium is coming from my bones). A lot of fatigue, just "not feeling good". I am not as worried if this is the case, as it is an easy fix with minor surgery. They have watched my thryoid before, and it was always "high normal".

Since i had the heart attack, seizures and strokes in april, it scares me that it could happen again. I was scheduled for a sleep study eval but i am putting it off till i see what happens with this. I get scared and nervous easily, so when the nurse used the words asap, vital, etc it is a wonder i did not have a heart attack then and there. They have said my previous problems were caused by very low magnessium and potassium so there is def a problem with nutrients or whatever in my body.

Posted 11/20/2012 10:47 PM (GMT 0)
Just know that even if they diagnose you with this...it all depends on what your exact levels are and whether anything else is affected.

As mentioned, there are actually many natural ways to reduce calcium levels...

Then there are medications if that is needed.

Or last resort if they need to do surgery (if any of the glands are enlarged or have an adenoma...) it is usually an outpatient surgery with a very small incision.

So...try not to worry too much and just take it one day at a time:)
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