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Posted 12/19/2012 1:58 PM (GMT 0)
I'm new to the board and I have a question for everyone. I know everyone deals with things different, but how did everyone deal with finding out for the first time they had Fibro? I get the weird looks when someone is asking me why I'm not walking upright when I tell them I have Fibro. Also, how do you cope with knowing this pain may be forever? Depression alone is a major bummer but now to add the stress of not knowing what new pain may rear its ugly head tomorrow. I guess I'm just having a rough time dealing with the lack of support and not knowing what to expect.
Posted 12/19/2012 2:22 PM (GMT 0)
Welcome!

I don't tell most people I have fibro. They don't get it. I say "chronic pain condition". This they mostly can understand, or at least will let them get why you are walking funny.

As for the second, a period of grief is normal. Then, learn the new normal. Life never turns out as we plan, and that is a good thing. You still will have a terrific life, so long as you make your peace with the change. You just have to do a little less and plan more.

I still do much of what I want, I just have to do it on my terms. You can't let the condition control your actions, but you do have to make plans for the condition to co-exist with your actions.

How very buddhist of me.

Happy pain-low day!
Posted 12/19/2012 5:01 PM (GMT 0)
I guess I wasn't surprised when I first was told I had fibro because I figured that I had it. I was first diagnosed with some autoimmune connective tissue diseases...it is not uncommon to have fibro along with these.

It is not unusual to go through a mourning for the loss of your old self. Experiancing anger, sadness or grief is common. It takes time to accept your new normal...and everyone does it at their own pace. Life does change...it is up to you to do what you can to help yourself...we all still have purpose and can live good lives, my first step was believing I could. My worth does not depend on what I can or cannot do.

Joining this forum, I know that I'm not alone...others understand, it is a great place to share experiances, knowledge and to support and be supported.

Life is still good!

hugs, Robin
Posted 12/19/2012 8:45 PM (GMT 0)
I was informed of having fibromyalgia about two months ago on top of being told I had Lupus last year. Both are a constant pain illness for me.

I'm still going through the whole "grief" process and decided to go to a psychologist to help me learn to cope and adjust to my new life. It's a challenge to me, but she's helping me deal.
Posted 12/19/2012 9:05 PM (GMT 0)
I was informed years ago and I was relieved to find out it was "something." Some thought what I was going through was just psychological before my diagnosis. Of course there are some who think fibro is psychological.

How do I deal with it now? I consider myself an inspiration to others by how well I take care of myself. That gives me good feelings. A positive attitude, eating as healthy as possible, and getting some exercise, doing stretches everyday helps me get through.

Having a very supportive and understanding significant other helps a lot too.
Posted 12/20/2012 3:38 PM (GMT 0)
Welcome to the fibro forum. I know what your saying. I get that look when I mention fibro to others. I just dont waste my breath anymore. Lol I figured they would never understand my pain.

I use to struggle with severe depression due to thinking about my chronic pain and health issues. I now have turned that into a postive way. I really didn't have strong support at the time, so I had to cry for help. Once I got heard, I was given tools to work with. Finding a good therapist to talk to helps. Filling your day with postive things and reading self help books helps me. My self help book is the Bible. Lol

This is a great place for support. I hope to see you around again.
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