Scared s*@&$#(s

Hey all..
Just need to vent and (again) get some support..

So, brief recap..(sorry if this is out of place, but I know you all get how docs thinking we are fakers can be stressful)...
In February I went to our local e.r. with severe abdominal pain (most of you also know me from ostomies threads)..They did a c.t. scan (34th in 18 months), and said it was an ovarian cyst..
They made a call, and got me transferred to a surgical hospital ( one that I am established at), and I was seen by a gynocological oncologist (didn't have cancer, but that office is the one that did my hysterectomy, and had to take out my right ovary and a grapefruit sized cyst in October)..SOOO, she sees me, does NO testing, and says "Well, since Dr. S couldn't FIND the left ovary in October, I am not going after it, I would probably do more damage than good, so we are not touching you"..

She then released me, with instructions to follow up at a pain clinic, see a psychiatrist ( because all this pain HAD to be in my head), and do an MRI.

Fast forward, I did MRI..when asked who I wanted to see for a follow up, I said I would go to that office's Nurse Practioner that comes to an office closer to me..
about 3 weeks ago, I get a call from the main office. I can NOT follow up with NP, as I have to go to main office for a follow up concerning my MRI, to "discuss treatment options" WTH???????


So, I told secretary that I didn't feel as thought it was important for me to go all the way over there (4 hours and a ferry ride away), when she wasn't willing to do anything about it anyway. I would just follow up with NP, I was fine with that. Secretary said she would call me back.

Up til now NO ONE has told me the results of the MRI..and my primary won't talk to me. She said I am beyond her scope of things, and I need to find another physicain to see. Ok, I appreciate her honesty, she is a FNP.. so, that is ok.. I get it, and don't hold that against her, she has done great things for me :)

So, yesterday I started having some other issues with constipation, and ended up calling my surgeon's office for advice.. Did what nurse said, things didn't go anywhere, so I called her today for an update..Asked her about MRI, to see if they wanted a copy, as I have NO IDEA what it showed..

She says, hang on, checks it out..finally finds the report and says, "No, we have the report, don't need the actual films.. but you need to follow up with the gyno's"..

So, I go thru it all with her, about how gyno told me back in February that she wasn't going to go in after any thing, so I felt that appointment would be a waste of time..
The nurse was EMPHATIC that I KEEP that appointment..she said it was impairitive that I go to that appointment..


So, now I freaking out and have no idea WHAT to expect...
I know stress isn't a good thing..and to top if all off, my boss got yanked form worked VERY unexpectedly, and won't be back for the end of our "year".. (I am a tax preparer)

uuggghhhhhhhhhh... just want to cry..and I am TRYING not to add stress to hubby, as he is burdened with all our financial issues at the moment..but had to try and explain to him WHY i HAVE to keep the appt. Tuesday when I said I wanted to cancel it due to financial stress to go..uugghhh,
I don't feel like I have a full plate, feel as though I have moved up to a serving platter

You go, and see. You only your tour worry to the things you can actually control, or at least influence their outcome. Keeping the doctor's appointment is all you can really do, at the moment.

*fist bump*

Let us know.

I think all these Dr's should be held accountable in such lousy care. I just had an bad experience like you. I get so tired of paying all this money out and get poor care. I hope things work out for you.

Thanks guys..

It is just so stressful waiting when no one will tell me anything, just stress emphatically that I NEED to see her..

Leads me to wonder if what the tech and I talked about..(I know, techs don't diagnose, and he didn't, but I know him..so we chatted about "what if" things ;)
And when I was telling him about my symptoms, he said "Wow, someone with symptoms like that, it makes it sounds like the main artery going thru the abdomen is being compromised.."

That was during my MRI, then after, he said "You WILL hear from your doctor tomorrow..remember what we discussed"...

And then I never heard from her..when I called to see what was up, her nurse informed me that "Kat feels you are beyond her scope of things and wants you to follow up with an M.D."

But I never got any results...And since I am STILL having all of those symptoms, along with severe constipation now :( I can only assume that is what the problem is..
And of course you know what happens when we ass-u-me...

Thanks for the support, it really does mean the world to me as I feel I really have no one else to discuss all this with, and that just leaves me sad...

:) Thanks guys, I am off to bed now, as today at work kicked my butt, but good! Not good at 4 days in a row sitting at a desk you can't leave..

Just gonna keep swimming, just keep swimming...

Getting nervous for tomorrow..almost wish it was 4 a.m. so I could be getting ready to go to the doctors and get this mystery answered :)

We shall see.. Thank you all again for the encouragement and understanding..I really needed the boost after this last few weeks.

Hope all have a great week, and thanks again :)

Wishing you all the best tomorrow...sending gentle hugs and prayers. It is never easy waiting for results. Why patients are made to wait so long for test results, I will never understand.

Keep us posted!

Hugs, Robin