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Posted 4/25/2013 1:17 AM (GMT 0)
I had fibro for three years before finally getting a doctor to say yes that is was this is. I was at the breaking point with pain and my head was a mess. After almost losing my sanity a Dr. finally put me on Cymbalta and it really saved my life. It really makes me upset when people even Doctors say OH, you have the ouchies huh...really the ouchies like this is a little baby boo boo lol. This is by no means a boo boo! nono
Posted 4/25/2013 1:19 AM (GMT 0)
My doctor believes that I have fibro, but doesn't know how to properly treat it. I am 99% sure he was googling last time I was in the office for ideas on how to help me. He was pretty much reading me websites I read the night before. I have an appointment with a rheumy that can hopefully help me, but we'll see. Most fibro meds seem to have interactions with other meds I take, and doctors don't want me to risk it, obviously. I need something that will help though. :(
Posted 4/25/2013 1:41 AM (GMT 0)
I have depression and anxiety, I have panic attacks. The Cymbalta worked wonders for my depression issues, and it helps the fibro pain. My head was a horrible mess be for the Cymbalta, I was ready to be committed before I got this under control. I had a rhem dr who was not very in to fibromyalgia being a dieses. To him is was all my weight, he even said I was not active enuff and that was why my body hurt lol I hope this Dr. is great and can help you:) If you don't like him or her, don't settle find someone who is caring and will listen, makes a world of difference:)
Posted 4/25/2013 1:45 AM (GMT 0)
I took Cymbalta years ago for an anti depressant (That was the one with the commercials with the bouncing dot, right?) but it didn't help the depression at all.
Posted 4/27/2013 2:55 AM (GMT 0)
Love when people just DON"T get it....

I was at my sisters earlier and my niece came by and just tapped me on the shoulder... I winced, she was like, "YEAH! That didn't hurt!"
SO I took her arm and said "Alley, this is how you touched me, (and squeezed her arm lightly).. But you need to understand, THIS is how it felt to me"(And squeezed her really hard)...
She goes, "OUCHHHHHH< crazy woman! that hurt!"

I said, yes, but that is how your tap felt to me...
SO my sister (An RN) explained to her briefly, that Fibro hurts EVERYWHERE, and it intensifies feelings in everything...
Posted 4/27/2013 4:51 AM (GMT 0)
Yes, it's hard.

What I've never understood is why so many people are quick to think we're using Fibro as an excuse to be lazy (why would anyone voluntarily give up all the things we have to?? I mean, do most people actually find it desirable to DO so much less? Frankly, it boggles my mind.) That's why I refuse to act as though I'm fine when I'm not - nothing will ever change that way in the public's perception.

Or they'll rattle off the most basic ways to try to feel better...;( I just want to say, "I LIVE in this body...don'tcha think I've thought of that? That I'm ALWAYS pushing my limits, reading up on new possibilities? I'm trying my best here!!"

Debbie
Posted 4/27/2013 2:25 PM (GMT 0)
Amen, Debbie--well said!!

Do some people really think we would rather be in pain and sit around than being out and about and enjoying life? It would seem that way. Crazy, isn't it??
Posted 4/27/2013 4:26 PM (GMT 0)
Doing the best we can is all we can do. No one knows what we live with unless they have been through it.

I can't change the way some people think so I live my life doing what I think is right. People are going to think what they want. If I keep my focus on living a good life...living, loving, laughing and having fun...I don't worry what others think about my condition. I'm going to live my life regardless.

Hugs, Robin

P.S. If a doctor doesn't take me seriously...I find another doctor, and I have...more than once.

It is sad when friends or family don't believe your condition. I've experianced a few people along the way. I got tired of being angry that they didn't understand...it is what it is.

Posted 4/28/2013 5:13 AM (GMT 0)
It really is crazy, I agree, Luvzminis. A lot of people seem to think we're actually faking the pain to get out of doing things ;(

Robin, I know you're right; I try to let the anger go and not let others' opinions get to me - I'm not there yet. (Lately I've noticed how much my shoulder rides up when I'm upset - no wonder it froze!!)

Debbie
Posted 4/28/2013 2:18 PM (GMT 0)
Debbie, I too have held on to the anger letting others' opinions get to me. It does hurt when our loved ones do not understand.
My post sounded insensitive...I'm sorry. Have you seen someone about your shoulder yet?

Over the years, I've worked hard at trying not to let others' manage my emotions. I often worried what others' thought, thinking they must think I'm weak or lazy because I'm not who I once was. It took a long time to let that go. It became easier when I finally accepted who I am now...I fought it for a long time. Accepting that we are not the same before our conditions is probably the most difficult thing we are confronted with.

Wishing great days ahead for all of us :)

Hugs,Robin
Posted 4/28/2013 3:59 PM (GMT 0)
Bottom line; people without Fibro will never understand.

I use to just say {all the time} "my stomach is killing me".... just because most people have had a really bad stomach ache at one time or another, so I would just throw something out that was easier for the next person to wrap their head around.
If I had said, my joints are aching, the inside of my mouth feels like I fried it with hot pizza cheese, my rectum is on fire, my groin feels like it has 3rd degree sunburn, feeling like I'm getting nails shoved into my flesh, etc, etc, etc, I'd have been instantly labled as a hypochondriac, who probably has nothing really wrong with him :(
In other words, a little made up "lie" was much easier for people to believe, than the crazy, complicated truth of the matter.

This forum is one of the few places where you can come, that everybody KNOWS what your talking about !

Best wishes,
Fish
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