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Fibromyalgia
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Posted 5/10/2013 9:44 PM (GMT 0)
I of course have fibromyalgia. I have eosinophilic esophagitis. There's also the nail patella syndrome. I've grown up not knowing much about it. It's rare and there were no drs anywhere near me that had even heard of it.

Recently, I've been in touch with other people with NPS. Turns out its a lot more severe than we thought. I do have arthritis but the pain I feel in my knees and shoulders is from the joints breaking down due to structural deformities. It affected all of my connective tissues. Now I have to meet with a team of ortho surgeons to determine my best course of action for my joints. Then I have to see some specialists about my eyes, kidneys, heart, and others.

I'm left thinking with all of this how will my fibro react? I've not had to manage coming through surgery with any surgery clouding the seas. So I guess I'm scared and worried about my fibro making recovery pain worse.
Posted 5/10/2013 10:42 PM (GMT 0)
((((((((((((((((((gentle hug))))))))))))))))))))

Try not to fret too much now. Deal with each surgery as it approaches and focus on getting through the recovery. If you start worrying about what's to come you will feel overwhelm. One step at a time. :)
Posted 5/11/2013 1:48 AM (GMT 0)
Good advice, couchtater!

I remember once hearing that we shouldn't get ahead of ourselves, when it comes to worry and anxiety. We can only deal with what we know NOW-today, right now. But it sure is easy to get ahead of ourselves, isn't it? (guilty here!)

Yes, one thing at a time is the way to go. Keep us posted, and remember your friends here care.

God bless!
Posted 5/11/2013 2:14 AM (GMT 0)
I'm so very tired of tests as lately when ever I get something done, oh it's routine, something always shows up, so just for now see what the ortho doctors say, maybe they'll recommend physical therapy first, keep positive and I do know how hard that can be, and just deal with one thing at a time, maybe seek out help with counseling if it gets to overwhelming. I have a chronic pain counselor and it does really help. and then there are days where you might just need to punch a pillow or get it out. Keep hope and know that we care, so keep us posted on what your doctors say.
Many many well wishes.
If you do need surgery, keep positive that it might help and give you a better quality of life, many Prayers.
Posted 5/11/2013 5:57 AM (GMT 0)
having so any meidical issues can really play on your mind. I have many issues myself and sometimes I even hate to go see new Dr's because they look at me as a train wreck. lol. I use to future trip and worry over my medical isssues. I now take a day at a time. I know it's easy to get anxious about future surgeries, but try to stay into the day. I know how you are feeling because I do struggle with recovery of any illnesss or surgery too. I hope they can find an alternate treatment beside surgery for you.
Posted 5/11/2013 6:55 AM (GMT 0)
Thank you all so much. I do know I shouldn't stress, I'm trying to just take it day by day. I'm just ready for things to quit popping up, especially any surgeries. I hate to be away from the kids for any length of time.
Posted 5/11/2013 1:38 PM (GMT 0)
Angelic, also sending you some gentle hugs :)

I definately agree with the one day at a time approach.

Thinking positive thoughts helped me get through my surgery and recovery last summer. Keep telling yourself you are a strong woman and you will get through it fine.

We are all here for you and will cheer you on :)

Hugs, Robin
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