Should I be feeling better by now?

Hi All

Ive had this illness now since Dec - Jan and nothing has really changed in 7 months.

I have tried various different medications / supplements / treatments...I still feel exactly the same. I pull or push myself through each day. Surely it doesnt stay like this everyday?

People on here have said you can live a full life once you have fibro under control...I am yet to see this and have started to feel a bit hopeless...Can anyone offer me any hope or advice...maybe im starting to get depressed?

Am I expecting too much to soon? I see others with fibro working / coping ok and yet I often feel like I am dying inside.

Sorry for the non positive post :o(

thanks Jasmine

I think its work and the kids together, Im finding it so hard and so very draining...its only part time work - but i am seriously considering giving it up...it will mean such a strain on our family financially.

Its a desk job, so not physical, but im just so exhausted all the time...In fact i think if i gave up work, i would probably lay around all day and have my youngest to look after (shes 3) and so very active...easier being at work!

for me its definitely the fatigue and energy...I can't cope with it...Maybe I should talk to doc about trying something like an anti d which might help my energy levels?

I'm very fatigued at the moment even though my current iron and thyroid levels are perfectly healthy. I do half an hour of study and I have to sleep for a about 5 hours afterwards because it is just so mentally draining. My mum thinks I have burnout. I'm planning to ask he doctor to get my adrenal levels checked.

Mental work can just as draining as physical work, if not more so - at least for me.

I would suggest you pop over this thread in the CFS forum and read that. I saw some good ideas in there of what to be tested for.
https://www.healingwell.com/community/default.aspx?f=15&m=2654392

Post Edited (Jasmine Grace) : 7/23/2013 4:23:29 PM (GMT-6)

I was really sick for about a year and a half before I started feeling better. Even then there were a few set backs. Now I have the occasional flare up but it doesn't last long nor does it get as bad.

This is what worked for me, and each thing helps a little but they all add up:

Savella (I didn't even realize this was helping until my Rx ran out and I was off of it for a couple of weeks)

Malic Acid (again, took months to build up in my system and I noticed it most when I stopped taking it for a bit)

D-Ribose (another that took months and I ran out of it before I realized it was really helping)

Acupuncture (this one I started noticing improvement pretty quickly in small areas, especially my thigh muscles and back muscles that were really tight)

Chiropractic (this mainly helps when my neck or lower back get really painful. Sometimes my acupuncturist notices that I need an adjustment)

Walking, DAILY -- the building I work in has a long hallway that runs the length of it and is 1/8 of a mile long. In the beginning I could walk the length and back once a day, very slowly. It took about 20 minutes. After a few weeks I'd walk it twice, once on my morning break, once on my afternoon break. I gradually got faster so I could walk it twice in the morning and afternoon. Then I added the stairs, walk down, go up the stairs, walk back, go down the stairs, repeat. This was over MONTHS.

I need this walk, without daily exercise I get stiff, when I get stiff I move less, when I move less my pain levels go up.

I've worked 40 hours a week the entire time I've been sick. If I'd taken a leave of absence or quit my job I know I would've laid in bed and gotten worse. I needed the job for medical insurance and for my health. Now my house...that is another story. It got so bad I'd have been embarrassed for anyone to see it. But I was just too darn tired when I got home to do anything about it. I'm just now getting the house back into shape. It is taking some time, but I'm determined to dig my way out!

Now after 2 1/2 years I'm about 85-90% of normal and I can accomplish most of what I used to do.

Joy