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Posted 3/19/2014 12:26 PM (GMT 0)
Hello there

Im new here and im looking for friendship, support and understanding for a disease that we here suffer from. Fibro has been in my life for the last maybe 25yrs since I contracted a rare virus call 'ross river fever'. I was so ill for three months I thought I would die and often wish I did. I have suffered ever since with pain, fatigue, anxiety, depression you name it. Its only been the last couple of years that I have realised the problem. a doctor diagnosed me about 15yrs ago but he didn't know what it was and said its a term we use for 'we don't know whats wrong'. that was it. its debilitating for sure.
I have just managed to get on a disability pension now as I just cant work anymore. im 55 and have dragged myself around for years now.
I find I have triggers that can set it off worse than usual. coffee, coke and pepsi in particular. stress of course and doing too much physical stuff though for most it would be a normal day or routine. I feel like im not living but just existing and I don't know how to live my life in a way that I can feel fulfilled instead of crippled.
I just don't know how.... so I guess I feel a little lost. do any of you feel that way?

for two years I was taking vitalgreens its a powder and u mix it in juice. I was fibro free for two years! im not sure why but I was. I guess it built up my immune system or maybe I went into remission. I went off it as I could no longer afford it and sure enough. back came the fibro. I take it when I can and I do get some improvement but not like then.
anyway

I just wanted to say hi and hope that I can get connected with u all and share ur lives and thoughts and support. thanks
Posted 3/19/2014 3:42 PM (GMT 0)
Welcome!! Sorry you have fibro, but happy to meet you.

Fibro can be such a downer, but little by little, one can find ways to deal with it. I've found pacing helps, and alternating sitting/standing and trying not to overdo.

This is a great forum, with lots of support and ideas. Hope you'll keep posting. :)
Posted 3/19/2014 4:22 PM (GMT 0)
Hi there,

Welcome to the forum... I am glad you joined us...

I just kind of started over with life. I started by walking. And I still walk when I can. It really stinks when we have to deal with not being able to do the things we use to. We have to find the things we can and like to do. Keeping a positive attitude helps a lot. Being open to doing new things too. It isn't always easy but we can do it. You can have a good life in spite of fibromyalgia.

When you get a chance, check out the "fibro 101" thread. It is the first thread on the forum. If you haven't already, you will find things to help you there. And ask away, we all share here.

I hope you have a good day. Keep posting...

Hugs, Karen...
Posted 3/19/2014 4:29 PM (GMT 0)
Hi, The Wonder Downunder, and welcome! Ahhh....depression. It's a bummer and quite a few with fibro suffer from this. I see it in your post and having chronic pain can cause depression. You feel like you are in a hole that you will never get out of. I know you will get help here.

We are all so different. I do not suffer from depression. I did experince a severe depression when my husband died suddenly and it took me over a year to pull myself out of that hole so I do understand the pain and dispair that it causes. But, I have a positive attitude and that has helped me immensely with fibro. I don't look at what I can't do or how difficult things can be especially in a flare. Instead, I look at all I CAN do and that is a lot. I look at all my blessings and all the beauty that is around me and it just makes me very peaceful.

I find ways to work around my illnesses so I can do the things I want to do. I always try, also, instead of telling myself that I can't do it. I pace myself when doing things. It all gets done but in a different time frame and I set reachable goals every day. When I have accomplished them I give myself a nice pat on the back. This makes me smile. I love to smile and smile a lot. I don't even know I'm doing it now but I will see strangers in the stores look at me and smile right back. It's neat! Plus it makes people wonder what you have been up to. turn

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. There is even a link about how to maintain a positive attitude when you have chronic pain. It really does help and I read it when I'm having one of those days.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 3/19/2014 6:57 PM (GMT 0)
well thankyou for the warm welcome.

'In a flare' YES!! that's a good way to put it.
The pain is......... well u all know I don't have to tell u.
I will go and read what u suggested and look forward to getting to know u all.
Posted 3/20/2014 7:24 AM (GMT 0)
Welcome down under ! I bet it was nice to be in remission for 2 years. I couldn't imagine how that would feel. Lol As you know we hurt mostly 24/7. I try to keep myself encourage with postive things. I have suffered in the past with depression. It does take daily upkeep to keep our bodies functioning. I am disabled myself at the age of 50. The fatigue and pain is what keeps me from working.

This is a great place to learn and get support. I wish the Dr's were on this site, so they could see its real. My dr's have me making a schedule for the day. This way I don't have too much time on my hands to do poor me syndrom. It really works for me. I also use my spirituality to lean on daily.

I hope we see you around again. Anytime you feel to share some valuable tools on fibro, go ahead. We all learn from each other.
Posted 3/20/2014 9:59 AM (GMT 0)
thanks its lovely to meet u too.
I learnt something already about taking vitamin d and magnesium so I went out and got it. im back on the vital greens too and so far the pain is halved. could it be true? lets see.
Posted 3/20/2014 10:23 PM (GMT 0)
The vitamin D and magnesium made a big difference with me. You might hear that your magnesium is normal, but it sure help after taking mine. I found out to take the pure vitamin D. You can buy them in 5,000 and 50,000. It's important to monitor your vitamin D levels when taking large doses such as these. You might not see a difference for awhile, so don't get discorage.
Posted 3/20/2014 11:05 PM (GMT 0)
Welcome, Wonder.
We have all such different stories, but share so much the same. I don't feel as alone as I did before I began reading the forum. I also have gotten some great tips and insights. Glad you are here.
Posted 3/23/2014 1:29 AM (GMT 0)
Nice to meet you, Wonder.

It really is a Hard Knock Life for us, isn't it? (sorry, I'm a big musical fan ;) On the other hand, what can we do but plow ahead the best we can? The hard thing is that doing that looks different for each of us, so to a large extent all we can do is cheer eachother on...

but that's actually a lot. I don't know what I'd do without this forum ~ where everybody knows your pain.

Debbie
Posted 3/23/2014 10:20 PM (GMT 0)
Welcome!
I have had fibro for 14 yrs, 52 almost 53 now. I was rear ended in Dec 2013. With the new physical, cognitive and mental issues, I am slowly working on a new way to rework how I live. I found a book by Darryl Starling and M E Copeland that helped me get all the way through 10 steady yrs of university w enormous pain. Unfortunately, while I accomplished my goal and had a plan for a new career I could handle and love, it wiped me out. Then the whiplash, sigh. I am currently studying to be a WRAP educator and instead of a MSW I will work from home as a Wellness Life Transition Guidance Advisor. I am also moving to take stairs out of my life, minimizing my possessions, have a therapy dog, and much more. In essence, this is my new WRAP plan, wellness recovery action plan.
I have to give up many things I wanted, again, but forums like this one has always been my go to for the understanding and care only we understand.
Keep posting
Blessings and Compassion
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