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Posted 3/30/2014 12:01 AM (GMT 0)
TeeHi. I'm new here. 35yo with 2 daughter's. One is six and has autism, the other is four and full of energy. I was dxed with fibromyalgia a few days ago. Never even heard of it before. I'm reading about it and I'm a highly skeptical person. I have a hard time with this.

My issues in my view started this time last year. I was very active e doing things like insanity, cross fit, and I was a part time fitness instructor. I started having aches and pains and I and my doctors concluded they were injuries from my high impact expertise routines... only... they wouldn't go away. So I had to keep scaling back until I was doing nothing. And yet my pain continued to get worse. Only now I would get awful headaches and the feeling of swelling along with. Then I started getting intolerable headaches accompanied by chills, nausea, and all over pain. Luckily this doesn't happen too much. Some days I'm so tired and achy and stiff I don t want to do anything. But in addition to the kids I also work full time.

I'm handling now, but I'm not exactly improving. My new rheumatologist died me with fibromyalgia and arthritis this week (that part is obvious the arthritis is advisable). I'm not sure what's going to happen as I definitely am having a hard time keeping some commitments and can't sustain energy for social events (I have aspergers too, socializing takes considerable energy). At a girl scout meeting last week I ran out of energy after five minutes and basically couldn't even think straight. It was embarrassing. Anyway the dx is a shock to me. I'm not sure what the future holds. Right now I'm on celebrex (it's all my stomach can handle, I'm super sensitive to nsaids) and I'm on flexaril.

Probably the part that bothers me most is my short temper. I yell at my poor kids constantly because I'm just tired and owy...
Posted 3/30/2014 12:32 AM (GMT 0)
Hi Littleln,

Welcome to the fibromyalgia forum. I am glad that you found us...

I am sorry about the dx. And fibromyalgia is so unpredictable. You never know how you are going to feel. But sometimes we don't feel all that bad, it is hard to make plans to do things. It is kind of like on an impulse type thing...

You will get use to this and you will learn your limitations. It just takes time. It is like starting over from scratch learning what you are going to be capable of. It really is a guessing game...

It sounds like you have a good grip on it so far with medications and all. I can only take celebrex once in awhile. It is hard on my tummy. I took one last night though before bed. It helped. We have been having some really damp weather and I have arthritis too. So a celebrex now and again is routine for me.

I can't stand the flexeril though. It gives me a hangover the next day. It does help me sleep, but I sleep really hard and feel crappy in the morning. So I only take that when I really have to...

Be happy if you can maintain. If you have a good day, that is a plus. You can always go into a flare if you over do things. So pace yourself and most of all, keep moving... I find if my pain is only in a 3 or a 4 area, I am having a good day.

I was the worst when I first got fibromyalgia. I think a lot of it was the fear and not knowing what I was up against. I had flares, could barely walk. I had to hang on to furniture to get around. I am a lot better now. In fact went for a walk today for the first time since autumn. Basically because of the snow...

You will find baby steps helps. Taking life one day at a time. If you carried a heavy schedule before, you may not be able to do that now. But you got to try to go with the flow for now. Keep things at an even keel. Keep a momentum going I guess. Fluid motions...

I hope that you feel better. I think a lot of us get a short temper when we can't think straight. Try to be patient with things and mostly with yourself.

Check out the first thread on the forum called "fibro 101". I think you will find it very helpful right now.

Take care and do keep posting...

Hugs, Karen...
Posted 3/30/2014 12:58 AM (GMT 0)
Thanks Karen. Fortunately I am at this point having more good days than bad. Looking back I see where I've had flares and thank goodness they aren't often and I have right now gone awhile with out a really bad one. When I've had really bad ones it was exactly like the flu minus the congestion and snot. Now that I know that most of my pain does not mean any damage has occurred or is occurring (well other than the arthritis) I plan to start some low impact excessive like tai chi and water fitness in an attempt to get some level of fitness back. It's got to be close to zero impact now though as I find that just a little bounce will send my feet and knees into pain for day s (and it's not muscle workout pain.. it's different).

I just started the celebrex. It's great for the pain but I can tell my stomach can't take it. I'm not sure what I'm going to do long term on that front. I'm extra paranoid about that too as my father nearly bled to death internally from nsaids...

Is there a genetic component? I suspect my mom had fibromyalgia as well. She was in pain Every day. I always blamed her lifestyle as she was quite obese. That's why I was such a fitness nut. Now I wonder.
Posted 3/30/2014 1:18 AM (GMT 0)
Hi LittleIn and welcome!

I'm sorry that you have fibromyalgia, but I'm also glad that you seem to be managing it fairly well.

I think that doing Aqua Fit and Tai Chi are great ideas :)

You might want to try remedial massage for the pain, which would hopefully reduce the amount of NSAIDS you have to take. Remember to eat a decent meal before taking an NSAID tablet.

Yes there is a genetic susceptibility to fibromyalgia. Might I venture to propose that your mother didn't manage fibromyalgia well, so she became overweight, partially from lack of exercise due to the extreme increase in pain and fatigue that followed exercise.
Posted 3/30/2014 1:41 AM (GMT 0)
Yeah I have to eat before hand. If I don't eat before I get horrid stomach cramps. If I do eat I "only" get nausea and reflux...

For my mom I think that's a chicken egg scenario. She was thin till she quit smoking when I was 7. Then she gained weight. Around the same time yeah, that's when I would come home from school and find her listless and grumpy on the couch or worse, stuck somewhere in pain and,needing help to get unstuck. I always thought that was weird.
Posted 3/30/2014 1:58 AM (GMT 0)
I'm not allowed NSAIDS because of my kidneys so I take tylenol, gabapentin, and tramadol.
Posted 3/30/2014 2:58 AM (GMT 0)
Welcome littlein

Though sorry you are a fellow fibromite
I kept expecting to get better, for the pain to go away.. very confusing & frustrating.
Read on here that someone descrobed it as grieving for our old lives & I agree.

Lotsa info on the introduction thread
Think it is called fibro101

My brief fix for short temper
Rest when you can
Learn to interact with kids while sitting / laying.. you will find some threads about that by using search function..
My youngest granddaughter is still a toddler & she has grown up knowing she has to pull herself up/ crawl into my lap. I have a laptray that we use for coloring, playing cars, etc

If you have someone, something, to help you do physical things so you can not wear yourself out, use them.

Chopping, cooking, cleaning, grocery shopping, especially with kids uses a lot of energy..
Prioritize


Wishing you the very best
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