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Posted 5/19/2014 7:21 PM (GMT 0)
So the fibro over the years made me feel weak...but this winter it got crazy...so tested and vit d was low...so i now take more and get into the sun whenever i can ...but i have read this will be slow..i think the fibro used every bit of patience i had..to add this muscle weakness on top is making me nuts... Some days i just have to do a chore and then sit ..ihave also read that it can be very up and down as you begin to recover the d levels which i am already exoeriencing..today is down..

I know it can always be worse...but wow
Posted 5/20/2014 4:43 AM (GMT 0)
I'm noticing more and more lately that my arms feel weak, and mildly achey. Not really what I'd call PAIN pain, just a nagging feeling. It really frustrates me, because I usually haven't done anything! Ugh.

We can deal with this...one day at a time :)

Debbie
Posted 5/20/2014 4:21 PM (GMT 0)
I have muscle weakness too. Last month my bloodwork showed a Vitamin D level of 15 which is really low, so my MD put me on 50,000 UI's a week plus a daily 2000 of D. I can't say it has helped much yet and it's hard to know what is causing the weakness. I often feel like my nerves are ultra sensitive, like I had too much coffee.

Bella
Posted 5/20/2014 4:25 PM (GMT 0)
LJM... what was your vitamin D level when they tested? Did they also test Vitamin B?

I had deficiencies in both that had to be addressed awhile back, but both are now in normal range.
Posted 5/20/2014 6:44 PM (GMT 0)
Hi, mine were 19 and it kicked my ----

How long did it take you to feel better? I seem better for a couple days and then have days i feel like i got body slammed...

I could manage the fibro fatigue, but this is much worse!!

I think he checked a ton of stuff..my blood results were 3 pages long...but all were in normal range except d...
Posted 5/20/2014 10:07 PM (GMT 0)
Mine was at 8 when I was tested years ago. It took a long time to build it up since I can't get out in the sun with my lupus.
Posted 5/20/2014 10:47 PM (GMT 0)
Wow cannot imagine 8 if 19 feels like this...

I am not that familiar with the lupus , i will look it up...i know i did see a woman interviewed about it on a news program.
Posted 5/21/2014 12:03 AM (GMT 0)
My rheumatologist said it's very common for people with fibromyalgia to have low Vitamin D. I had assumed it was because I live on the coast and stay out of the sun but maybe not.

Bella
Posted 5/22/2014 6:14 AM (GMT 0)
Do you mind if i ask why you stay out of the sun?

Its part of our nourishment....i know we should not stay long enough to burn. But in moderation is healthy for us....

Hoping i can get these d levels up quickly..although i have read that it takes time with some people

Ljm
Posted 5/22/2014 8:38 PM (GMT 0)
Most people with lupus are very photosensitive. UV rays make us very sick. With me I get weak, hurt, and itch like I've got poison ivy.
Lupus is an autoimmune disease where our germ fighters attack our healthy tissue instead of germs only. Anything that boosts our immunity will make us sicker. It's a tightrope walk.
Posted 5/22/2014 9:26 PM (GMT 0)
Ok couchtator,

That does sound like a tightrope...: ( ..do you look at mercola.com...he has a wealth of information on his site...and a search engine...wonder what he might have on lupus? So you basically would have to get it through supplementation?
Posted 5/23/2014 12:31 AM (GMT 0)
I take perscription level vitiamin D.....50,000 IUD twice a week.

There's no cure for lupus. It's a lifetime disease and one day (hopefully a long ways off) I will died of complications from it. It attacks any part of the body and can destroy it. If the disease doesn't kill you the medications could do it. Many of them can leave you open to infections or cancer.

So fibro is the least of my worries because it can't hurt you like lupus can. :-/
Posted 5/23/2014 1:16 AM (GMT 0)
Right now i am having trouble knowing where the d level and the fibro ends... I thought the fibro was getting worse but now think a lot of that was the d... I know there is a theory that fibro does not progress...but i disagree with the theory...or it causes other things to occur....hope you can find your balance in struggling with the lupus.
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