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Who has been tested for MS?

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Posted 6/4/2014 2:51 PM (GMT 0)
Hi - just a quick question.
I was wondering who has been tested for ms before getting a fibro diagnosis and what were the results. Has anybody been out on a wait and see list by a neuro to see how symptoms progress?

Thank you
Posted 6/4/2014 3:42 PM (GMT 0)
I've been tested, 3 times over 30+ years. All negative. Each time this was along with tests for RA and other things. I kind of got the impression that these tests were standard when a person had some of the symptoms I had. Numbness, tingling, pain etc., etc.
Posted 6/4/2014 4:28 PM (GMT 0)
I have been tested for MS and heavy metal poisoning. My fibro symptoms initially were not pain related. I had the feeling of numbness in my legs along with a crawling sensation...sometimes feeling like water was dripping down my legs. All tests were negative.

Donna
Posted 6/4/2014 8:35 PM (GMT 0)
I had a MRI to check for MS.
Posted 6/5/2014 2:41 AM (GMT 0)
Yes I have been too. My first appt w my neurologist he did a bunch of blood work as did my general practitioner. All negative along w lupus, RA the standard when complaining of neurological systems..tingling, numbness, constant aching, headaches, fatigue etc
Posted 6/5/2014 3:38 AM (GMT 0)
I had a 4 thousand dollar brain scan to test for MS. They found a single cyst on the brain, if there were more than one they said it would be MS since there was only one it can cause migraines and should be checked every ten years to make sure it's not getting bigger. I don't intend to get it checked again...for four thousand dollars I'll know if I fall over it's time to check again...maybe. lol
Posted 9/4/2014 4:13 PM (GMT 0)
I had a lumbar puncture last year to get spinal fluid for check of MS and a SLEW of other possibilities. Neurologist covered It all in blood tests as well. Plus Brain MRI, body scans, CT and several unsuccessful pain management solutions. My PC also does blood work every six mos during check up and I see him every three months for med check cuz I'm on scheduled narcotics. I have fibromyalgia, neuropathy, degenerative disc disease, stomach issues, allergies, heart palps, and TMJ. I take pain killers, muscle relaxers, neurontins, anti-depressants with pain relief for Fibro, anti-anxiety and anti-depressants, stomach acid reducers, antihistamine, and vitamins, antioxidants, and amino acids. I'd say that's enough !!
Posted 9/4/2014 6:03 PM (GMT 0)
I had a brain MRI to check for MS. There were a few small white patches that showed up, but nothing the neurologist thought was significant.

I was also given a 'wait and see' diagnosis, but so far, so good.

My neurologist later told me he had thought for sure when I first became his patient, I either had MS or ALS.
Posted 9/4/2014 7:43 PM (GMT 0)
White patches in the brain, particularly H2 w/hypotentensity are typical of systematic lupus.
Posted 9/4/2014 9:18 PM (GMT 0)
Wow--I had never heard that, Joy. I have been tested for lupus a few times, but so far, a no-show. Good to keep in mind, though.
Posted 9/5/2014 12:59 AM (GMT 0)
MRI was negative for MS.
Posted 9/5/2014 1:35 AM (GMT 0)
I had a brain MRI a few years ago and all l was told was that everything was "ok." Guess l should get a copy of it, for the future...cause you never know.

Debbie
Posted 9/5/2014 4:59 AM (GMT 0)
Luvsminis, lupus has 11 indicators and you need only 4 of the 11 to be diagnosed. Positive blood test is one of the 11. Check us out over in the lupus forum.
Posted 9/5/2014 6:30 AM (GMT 0)
I was rechecked recently with a MRI due to symptoms occurring. It ended up being my back and a mass in my uterus causing my symptoms. My MRI was normal.
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