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fibromyalgia what does it feel like

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Posted 11/19/2014 9:07 PM (GMT 0)
okay everyone so i got my new blood test and i had the ana 1 160 but now its down to 1 80 its still the nucleolar like before. okay so i started on a detox diet and i got my sed rate from 41 to 11 also. my question is that everything is normal but the ana 1 80 and my rheumatologist says its so low that it means nothing and is normal. well it was higher and i am having LESS symptoms now that its lower but i still have problems.

so im wondering now if my problem really is fibromyalgia since my ana is so low. i do have inflammation in my elbows and redness over them and tendonitis in my tendons. but my joint pain is mostly in my tendons and i also have what feels like burning pain over my whole body, it comes and goes in flares and is felt mostly in the tendons or joints. its not so much in my muscles

i was wondering if its normal to feel a burning pain in the tendons with fibromyalgia. they gave me cymbalta and i was hesitant to try it. im on a special diet for inflammation and it was helping so i dont want to add a bunch of meds and stuff unless necessary. i am still having the burning pain but my stiffness is alot better now on my detox diet.

is there any way to get rid of fibromyalgia without medication

thank you
Posted 11/19/2014 9:28 PM (GMT 0)
Fibro can be made better, but few get rid of it.

I have often had what i think is tendonitis with my fibro, it can be any soft tissue.

Even with meds you do not get rid of it..you are basically treating the symptoms.

The burning pain is often described in fibro.welcome and it takes a while to find what works for you
Posted 11/19/2014 10:09 PM (GMT 0)
Welcome, there is no test that tells you if you have Fibromyalgia, basically Doctors run a bunch of tests to rule out other things before they tell you if you have fibro. As Ljm said there is no cure for fibro, but with life style changes, including diet, exercise, and some times meds you can control the pain. There is a post on the very top that has a lot of information on fibro and suggestions on how to control the pain.
Posted 11/20/2014 12:24 AM (GMT 0)
You may have to try medication if it is severe pain. I just started Cymbalta a week ago but takes 4-6 weeks to notice a difference. Your doctor may try different medications to find the right one for you then adjust the dosage.
I wish you luck!
Posted 11/20/2014 12:32 AM (GMT 0)
Hi, FnFiacco.

The thread at the top that AngelLisa is referring to is "Fibro 101." It is very helpful. I personally have pretty much given up trying to figure out what is causing what in my body, unless something crazy or new starts....in my experience, Fibro can give you just about any kind of pain in any place!

Not helpful, I know....but true.

Debbie
Posted 11/23/2014 2:23 AM (GMT 0)
I have had fibromyalgia for many years. I stopped complaining about my symptoms because the test were always negative. The situation was getting worse, finally, by chance, a doctor diagnosed fibromyalgia and post polio syndrome neither of which I had ever heard of. Confirmed by a rheumatologist and neurologist. No treatment other than come back for monitoring and pain meds and antidepressant meds. Not keen on taking too many meds and those that I did take did not help but produced side affects that only added to the already miserable problems. I Stopped all artificial sweeteners and diet foods. Seems to have helped.

If you have recently been diagnosed just know that I have found stress a trigger, diet foods are also a trigger, cold affects me, and a myriad of other seemingly insignificant issues can set it off. You are not crazy, or a hypochondriac, people that don't have it will not understand why a simple hug can be painful or that your itchy scalp is not associated with dry skin, that your feeling down is due to that fact that you never feel well, not because you have a mental issue, that you have full body pain and aches 24/7. Just know that it is a very real illness and one that is debilitating but invisible. Take care of yourself, watch your diet and ignore those that snicker at you or tell you it is imaginary, it is real.
Posted 11/23/2014 2:56 AM (GMT 0)
Hey pd Baxter!

I just read your reply to this post and am curious about you mentioning itchy scalp? I don't have dandruff, lice or dry scalp but my head gets itchy a lot of the time. Is it from the fibro??
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