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Medtronic neurostem peeps question

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Fibromyalgia
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Posted 4/6/2015 2:37 PM (GMT 0)
Good Morning Everyone,
I have Deg disk, osteoarthritis, fibromyalgia, thyroid disease, anemia, sciatica and nerve damage from accident. I have had 2 spinal surgeries and have a Medtronic stem placed. I have lived with Chronic pain for 6 years solid and off and on 4 years prior to the accident in 2009.

My real question is I have been increasing different meds lately due to a neck flare and it has caused me to have physio again and wear a neck brace "cone of shame" as I call it :) the pain in quite debilitating and I cannot move my head. but I am trying my best.

but I just got a email from my doc saying they need to get my meds under control that they need to work more effectively and need a better "HALF LIFE"

im scared my pain will get so bad that meds don't work, its increased, I exercise ive changed my diet ive lost 25-30 lbs in past year 1/2 and I have gotten a less crazy job.

I am trying to make living with illness a bit easier to deal with but I keep getting setbacks, I keep second guessing myself "am I trying hard enough" "am I the reason this flare happened" "why am I 28 and suffering like this" " are they going to put me on morphine again, that was awful"

I am thinking why did I get the stem anyway, is it really helping anymore, I was doing so good before in 2011 but now I am going downhill FAST in the past 4 years.
Posted 4/6/2015 6:06 PM (GMT 0)
I've never heard of the "stem", but I do understand back pain.
I hope you can get some relief.
Posted 4/7/2015 8:50 PM (GMT 0)
Bunny-so sorry for all your pain. Sometimes a flare just happens. Too many things we can't control like the weather Or external stresses. Even when we think everything is going fine-whammy-we get hit with a flare. Talk to your dr about your med concerns. Maybe they can try a different story med and decrease another. Hope you feel better soon.
Posted 4/8/2015 6:30 PM (GMT 0)
Hi Bunnygirl:

I have not heard of the Medtronic Stem. Will read what it is.

I have Osteoarthritis in multiple joints but I have been told that it is mild. The pain I am living with is far from mild. My neck and head pain are the worst. I have cervicogenic headaches. I just started a new pool program in a therapeutic pool with warm water. It is easier to exercise in warm water. My head and neck are stiff. Much pain is at the base of my skull. I do see a Registered Massage Therapist and a Headache and Pain Relief Doctor every 4 weeks. I had to miss the last session due to illness. Had a virus and now I am treating an ear infection.

Many things have put me in the shape I am in. Years ago I was rear ended. I had a front collision after and last summer my Husband and I had another car accident. I have been set back. I feel like 12 years of Physiotherapy has been wiped out. I have also had infections and numerous viruses. Medication to rid of one infection may have caused nerve damage.

You are much younger than me. I worked as long as I could. I just could not perform the duties of my job with neck and head pain.

No real solution for you but wanted you to know you are not alone.

Loring

Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...
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