Confused, scared and getting inpatient

I have been seeing a rheumy since May and no real diagnosis yet. I do have mild ulcerative colitis which is in remission (thankfully) and take medication for that. I started having pain in my joints and muscles which would get worse throughout the day. It was so bad that my children could not hold my hand or sit on my lap due to the extreme pain. Did blood work and had a mildly high ana. Did more blood work and all came back negative. Should be happy for that but doesn't answer why I have this pain. I tried working out and the pain got worse. I went on prendisone and felt great. So rheumy started me on plaquanal. Pain is less but still have burning pain daily, exhaustion and weakness. I want to work out again but am too tired or sore to. Every time I see the rheumy he marks off a different diagnosis. Says could be lupus or fibro or some form of arthritis. I really would love to know what it really is or what else I should be doing to feel better. I can still work and do some activities with my kids but I have pain every day. Sorry to vent but I am lost.

I feel the same way sometimes. I have seen multiple doctors multiple times over the last year and a half trying to get to the bottom of what is going on with the pain I am experiencing, as well as my other symptoms. We are still ruling out things before making a diagnosis. I am seeing yet another new doctor today, and plan on making an appointment with an out of network and thus out of pocket functional medicine doctor soon. I see that there is light at the end of the tunnel, but I don't know how quickly I will get there! I hope you are getting near to answers, and perhaps seeing a different doc will help.

Thanks everyone. I did get multiple blood and urine samples and they ruled out RA and lyme disease. I have been logging my symptoms and reading up on it daily. I feel like it is consuming me! I sleep with a heated blanket and love my hot showers. Stretching helps. However I have been very weak and can't work out. Plus I have gained weight since I started Amitriptyline to help me sleep. I also have been getting more migraines.

I love this forum and all the support here. Sorry to vent so much. I am just feel so lost.

Lisa, it is consuming you because you are,thinking about it all the time. It is a negative part of your life and this most likely is causing you depression. Depression can make you feel tired, sad, apathetic, etc. It steals your life.

Don't let Fibro do this to you. Have you been given anything to help with pain and fatigue? That's important because once you get in control of the pain. You can do more things and that will make you happier and this helps you feel better, too.

By the way, Amitriptyline can make you feel weak, tired, and a host of other symptoms. Perhaps this medication is playing into how badly you feel. Google it and you will see.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin that has really helped me a lot. These help with pain and they calm things down for me. Then I'm able to get moving, walking, etc.

This morning I was in tears due to pain. A cold front has moved in and had a lot of rain, too. I was in misery but I knew that once I took these things for pain, I would be feeling a lot better...and I am. So it really is so important to find what helps you be in control of your pain. Once you find that you can enjoy life because you know YOU are in control and not Fibro. Don't give in to this illness.

I find keeping a positive outlook is extremely helpful. It can be tough at times but just look at all the good things in your life! You have far more good than bad things so focus more on the good. Take some time for your self to do things you enjoy. Don't tell yourself you can't do it. When I got up this morning I sure didn't feel like keeping my date to go out with a friend for lunch today but now I'm really looking forward to it. I got up, took medication to help me, and started moving. It is something positive in my life today. In Fibro 101 there is a good link about how to maintain a positive attitude when you have chronic pain. You might want to check that out.

Meanwhile, enjoy your day, get moving and stretching, and stop thinking about illness and this lousy Fibro! Your life is far more that Fibro so shove it aside and do something you will enjoy. I do hope you start to feel better soon.

Sherrine

I'm sorry to hear your hubby is sick, too. Stress does cause a lot of pain. Just work on yourself and find what will help you with your pain. The supplements I mentioned have helped quite a few members, including me, and there are links in Fibro 101 about them and how they work in the body. They shouldn't interact with medications but ask your pharmacist. They would know. So would your doctor.

I just want to see you start enjoying life! As I said before, maybe the Amitriptyline is causing some of this. Think back to how you were before starting this medication. Sometimes we have to stop medications...but always speak with your doctor before stopping any medication.

I've had Fibro for decades and have had a full and enjoyable life in spite of this illness so I know you can too. Have a really good day today!

Sherrine