Constant Questioning...

I'm new to the diagnosis, only about a month and a half, and have been symptomatic for almost a year now. I find that I'm still constantly questioning not only the validity of the diagnosis, but that anything is wrong at all. It flip flops quite drastically from week to week. One day I'll be having a pretty low pain day and start thinking it was all in my head and I troubled all of these doctors for nothing and I'm complaining and worrying too much. Then, the next day I'll be in so much pain that I start thinking something so much more serious is wrong and I'm stupid to have stopped looking for answers when nothing could be causing this much pain all over my body without doing serious damage. But then eventually eases away and I go back to doubting myself!


Do you experienced fibro patients find that it took time to accept your diagnosis and start trusting what you're feeling?

Also, for anybody interested in a nortriptyline update from my last post... I took it for 3 weeks and the first week was heaven. Then, symptoms very slowly started eeking back in and by the end of 3 weeks I was maybe around the 30% level of what I had been before. It made me EXTREMELY sleepy, I slept every chance I got. It was like I was living life underwater, moving so slowly and everything was foggy. So it helped the pain a lot for a bit, and while it was hard for my pain to slam back over the week after I stopped taking it, I also felt like I was finally awake again!!! I suddenly had so much energy and motivation (ok, still fatigued, but it's all relative, right?)! Going to talk to my doctor about it next time I see her.

Thanks!

Have had some form of it since childhood, in a genetic form ...so no doubts, but true that if something new comes up ...its hard for me to know..

Got it from my mom and 1 daughter has 😕

It IS extremely hard to accept. It's such a weird thing to have, since it seems to change faces constantly.

Plus, I think it's important to not ignore new things, just because it is called FMS. I've had it for a long time, but I still have to be cognizant of the fact that it potentially could be other things layered on to it. It's definitely a difficult thing to have. And yes, it can change moment to moment. I remember when my kids were young and we'd made plans to do something. I felt fine one minute, and like I would collapse the next. Many times I would have to cancel our plans at the last minute. But I was so very lucky to have children who would say "Oh, that's okay mama." How sweet was that?
Good luck to you. It's a very challenging, confusing illness to have.