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Posted 9/9/2008 7:24 PM (GMT 0)

John, thanks.  I wrote an update on the thread titled "Connie."  All is good.  I hope you make contact with your doctor today.

I suggest you contact your insurance carrier and ask for your case manager.  Have her explain the approved/not approving thing.  If possible, appeal the decision.

Hugs,

Connie

Posted 9/10/2008 1:02 AM (GMT 0)
John, I am really glad to hear from you. I am sorry you are having so much trouble with your insurance. You have enough to deal with. I also have Anthem but have not had to use it for anything serious yet.

As always, you will be in my prayers.
Posted 9/10/2008 3:20 AM (GMT 0)
Hi all,

I can't post tonight but know that I am thinking of you all.

Be well, John
Posted 9/10/2008 3:30 AM (GMT 0)
That's okay John we are thinking of you also...........thoughts and prayers.
Posted 9/10/2008 3:43 AM (GMT 0)

John, thanks for checking in.  I hope you can get a good night's sleep.  How is the fever?

I had the meeting with my hepatologist today to go over my test results from yesterday and to discuss hep C treatment.  At 16 mos. post rt. liver lobe resection due to cancer, I am still clear.  Everything remains stable.  My blood work was almost normal, even the liver enzymes.  My viral count was 300,000, down from 500,000 in Feb.  She said the entire team is amazed at how well I've done.  She agreed with me that it was best not to pursue treatment at this time, but to give my body a break after all the surgeries.  I hope my great outcome gives you hope, and my prayers are with you.

Hugs,

Connie

Posted 9/10/2008 4:30 AM (GMT 0)

Connie

 What great news yeah   It is so good to hear about your test results.

 KEEP UP THE GOOD WORK!!!!

Posted 9/11/2008 4:35 AM (GMT 0)

Thanks, Joelene!  :-)

John, I was hoping you would post tonight.  How is the fever?  Are you getting any decent sleep?

My prayers are with you, my friend.

Hugs,

Connie

Posted 9/12/2008 5:25 AM (GMT 0)
Hello John, How are you doing?

Lot's of thoughts and prayers........
Posted 9/12/2008 10:32 PM (GMT 0)

John, I'm concerned about you, as I'm sure the others are.  Please try to post a few words tonight!

My prayers are with you, as always.

Hugs,

Connie

Posted 9/13/2008 12:59 AM (GMT 0)
John,

I am a little behind on reading posts so I guess I'll sum it up by saying I hope your fever stays down, best of luck on Pet scan, take a break from the BC insurance thing and hope you feel better.
Cream...I haven't listened to them in years..ENJOY

Karen
Posted 9/14/2008 2:48 AM (GMT 0)
Okay John time to check in. How are you? Lot's of thoughts and prayers....
Posted 9/14/2008 3:24 AM (GMT 0)
HI JOHN

       I have been catching up on posts from when i was in hosp. you sound like you have had a rough couple of weeks. I am really sorry what happend w/ pet scan? Have you talked to dr about getting a home health care nurse they can do a lot of other stuff bsides just checking temp they can help you w/meds,check for infections,light housework plus alot more. My daughter has bc and she looked it up they pay for it in full w/ drs prescription. I hope you can get one it really helps alot.

Posted 9/15/2008 4:45 AM (GMT 0)
Hi all,

Thanks for the concern. I hope that you're doing well.

Sorry to have not posted but my schedule is totally whacked. My fever spiked again (it is simply a tumor fever, as they call it -- so nothing to be done until the tumor is treated) and the tumor is causing painful pressure on my jaw. The vicodin is no longer helping so the combination is that I'm sleeping a lot but not getting any rest. Whine, whine, whine.

On the bright side of the coin, my PET Scan is on Wed and my dentistry is done and healing well. It is another two weeks before the dentist releases me for radiation. Then we can beat this cancer down and get back to addressing the ESLD and the transplant.

I can't keep my eyes open so off I go.

Be well, John
Posted 9/15/2008 8:30 AM (GMT 0)
John

Am glad to see you posting and so sorry that the fever has came back again. Glad all the dental work is completed and hopefully they will release you quickly so you can get started kicking this tumor's you know what. Hope you get some rest. Keep us posted when you can.

Lucy
Posted 9/15/2008 9:24 PM (GMT 0)

John, thanks for posting.  We were really getting concerned about you.  Can you get something stronger than Vicodin for the pain?  I hope you can get some sleep.

Hang in there, my friend, and know that many thoughts and prayers are with you.

Hugs,

Connie

Posted 9/16/2008 2:51 AM (GMT 0)
Hi John, I am really glad to hear from you. I am so sorry that you are in so much pain. I hope that you will be able to get some much needed rest soon. You are still in my thoughts and prayers.
Posted 9/17/2008 3:13 AM (GMT 0)
Special prayers for you tomorrow John.
Posted 9/19/2008 2:33 AM (GMT 0)

John, how did the PET scan go?  I know you probably don't have results yet.  How are you feeling?  I've been thinking about you and am concerned.  Please check in when you are able.

Hugs,

Connie

Posted 9/19/2008 5:38 AM (GMT 0)
Hi all,

I'm not really up to posting but I wanted to check in. Full-body PET Scan is done but no results yet. Monday is feeding tube insertion. 26th is final dentist OK and 30th (or sooner) is beginning of chemo and radiation. They put me on duralgesic pain med patches (no pills for duration of no swallowing) but too expensive so I need to find a liquid narcotic that is cheap.

Anyway, hope you are all well. I'm thinking of you and wishing you well.

Gotta go.

Be well, John
Posted 9/19/2008 7:06 PM (GMT 0)

John, you have a rough road ahead.  Please remember that we are with you in thought and will be praying for your recovery.

I know that morphine comes in liquid solution and also a suppository form.  Your insurance should pay for your liquid meals, if there is a prescription for them, as they are medically necessary.  Of course, you can also whip up smoothies, soups, etc., in a blender.  However, you will probably feel too awful and tired to bother with that, so the high-calorie liquid meals are the way to go.  You will probably lose weight and also have no appetite, so it is important to do those liquid meals.

From my own experience with cancer treatment, I can tell you I felt truly awful after the chemoembolization and just wanted to stay in bed and sleep.  So we will understand if you are not up to posting.  However, if you can post the results of your PET scan when you get them, and after G-tube insertion and radiation just post 2 words--"doing okay" or "still here," we will all appreciate it.

Big hugs,

Connie

Posted 9/21/2008 4:32 AM (GMT 0)
Hi all,

I haven't read the posts but hope that you are doing well.

The Update
I finally heard about the full-body PET Scan: the cancer has not spread from my throat / neck area. So if we get the right chemo and radiation at the precise, right areas, I will be able to go back onto the transplant list if we get the sucker into full remission. Woo hoo! Monday -- feeding tube -- more fun than is legal in most states.

Can't keep my eyes open so off to bed.

Be well, John
Posted 9/21/2008 5:39 PM (GMT 0)

John

That is really good news.  WOO HOO back to you!!  Stay strong.

JoAnn

Posted 9/21/2008 7:46 PM (GMT 0)

John, that is FANTASTIC news!  It really makes all the difference.   :-)  

Keep on keeping strong, my friend!

Hugs,

Connie

Posted 9/22/2008 2:07 PM (GMT 0)
turn   smilewinkgrin tongue yeah John I am so happy.   Hang in there........the thoughts and prayers are working........

Many, Many more......thoughts and prayers........you internet family. 

Posted 9/22/2008 2:43 PM (GMT 0)
Great news John! You're one tough dude!!!! You can do this!!!!!!

Best,
Cary
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