Estabr, welcome to the forum! I am so sorry that your significant other has been diagnosed with liver disease. It is important to know what caused this. Alcohol, hep C, autoimmune hepatitis?
The first thing he should do is to get a referral to a hepatologist (liver specialist.) Even GI docs don't have the expertise that hepatologists do regarding liver disease. You don't say where you are located. I know that some states are sorely lacking in these specialists.
I am not very impressed with the new primary care doc. A fever is never "normal," but is an indication of infection somewhere in the body. However, I know that few primary care docs will accept Medicaid, so it may be difficult to find another one in your area. In general, primary care docs don't know much about liver disease.
Also, weekly drainings are dangerous. Those alone expose him to infection. Make sure he always gets the albumin with them. He really should not be getting them more than every two weeks. A TIPS procedure is something to be discussed with his GI docs and his hepatologist when he gets one. While this carries some risk, it also eliminates the drainings and ascites. If he is on Lasix alone, he should also be taking a potassium pill. Usually, Aldactone will be prescribed along with Lasix. He should be following a low-salt diet to prevent fluid retention. He might also be placed on fluid restriction.
Has the possibility of transplant been discussed?
I suggest you read the info in the folder at the top of the page entitled Hepatitis Resources. (It deals with liver disease, not just hepatitis.) That will give you an idea of what to expect. Also read some of the older posts for information. Do a search for ascites, infection, ESLD.
If you have any specific questions, please feel free to ask. Someone here should be able to answer them.
Finally, this is a very stressful disease for caregivers to deal with. Please don't forget to take care of yourself.
Hugs,
Connie