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Caregiver's sharing thread IV

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Hepatitis
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Posted 3/27/2011 11:31 PM (GMT 0)
Thanks Carol, you are very right. I am glad that it is already shaping up. I seen that as well! Good luck to you and your husband and girls. Your kind words helped me :)

Natalie
Posted 3/28/2011 3:49 AM (GMT 0)
wow Carol... I think that helps many people in the situation... helps to sort things through... thanks for sharing.. I really got a lot out of reading your post... Sandi
Posted 4/5/2011 5:47 PM (GMT 0)
I posted on another thread earlier. My dad will begin treatment soon. Docs say they are leery about treating him. Dont know what that means, dont know what to expect...Me and my kids are all my daddy has...I'm very anxious and worried.....
Posted 4/6/2011 4:33 AM (GMT 0)

Marie, it's fine to post here, but if you want to start your own thread on the regular part of the forum, that's fine, too.  At any rate, welcome.

How old is your dad?  That might be one consideration in treatment.  What genotype he has can also play into it, with genotypes 1a and 1b being the most difficult to clear.  There is a new treatment becoming available soon from Vertex Pharmaceuticals that is a combination of interferon, ribavirin, and a protease inhibitor.  The protease inhibitor is the new drug in this mix.  It is showing a 76% clearance rate in genotypes 1a and 1b, with a 90% clearance in a sub-type of 1a (I just learned this today.)  But I believe you said in your other post that the genotype is 3.

I suggest you go to the doctor with your dad before he starts treatment, and ask some hard questions...specifically why are they "leery of doing treatment?"  If there's something that can be corrected, then that should be done.

Hugs,

Connie

Posted 4/6/2011 4:39 AM (GMT 0)
Hi Marie and welcome to Healingwell. So sorry that your dad has this terrible disease. I know you must be scared silly. First, have you read our education thread in the Hepatitis Resource folder about 2 threads down from this one? If not please do so. It has lots of good information about liver disease.

On you other post you asked if he should live with you during treatment. Well it depends on his health now and how the treatments effect him. I'd have a talk with him about it and see what he thinks or wants.

We have quite a few members or caregivers of patients who's been through treatment.......Some good results and some not so good.

Do you go to your father's doctor visits with him? If not.......do so if possible. He is going to need a healthcare advocate who he can trust to speak up for him just incase there comes a time that he can not speak for himself. And 2 sets of ears are usually better than one when trying to decipher what the doctor is saying.

Glad you found........thoughts and prayers.......
Posted 4/28/2011 11:32 AM (GMT 0)
Pink Grandma, is this the missing thread that used to be 'stuck' to the top of the list???
Posted 4/28/2011 1:30 PM (GMT 0)
It sure is Goddess, thanks for finding it.  Our administrator has been doing some maintenance on the forum and somehow it got unstickied.   Since it not a sticky any longer......and it's too long..... I am going to lock it and start a new one.  
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