HealingWell
Search Close Search
☰

HELP...Hepatitis ?'s

Support Forums
>
Hepatitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/11/2012 8:57 PM (GMT 0)
My health has taken a severe turn since sept 2011, prior to that I was completely healthy at 40. I have seen 14 specialists and almost 40+ dx and the only thing I have been dx with that would cover my 3 pages of symptoms is Chronic Lyme disease. Every part of my body has been effected.

Yesterday I went to a chiropracter that did this scan which was spot on on all the organ deficiencies and bacterias/virus/parasites/fungal issues I was already except it mentioned hepatitis. I came home and googled symptoms and every symptom I came across on different sites was spot on except Jaundice.

 I have been bedridden since nov/dec...using a wheeelchair...the joint pain is HORIFFIC and is my worst symptom by far along with low grade fevers, swollen glands, light sensitivity, nausea, vomitting etc. I have lost about 35 lbs since dec and 20 the first month...I have severe muscle loss.

I was told I have Psoritic Arthritis which I have never felt comfortable with that dx and was put on Plaqenil and wonder if that would effect my hepatitis test. I went to my gyn this morning and tested and freakin out waiting for results! I read that there is an immune hepatitis which could be a possibility.

Any kind words or thoughts or suggesstions would be greatly appreciated.

Posted 9/11/2012 9:19 PM (GMT 0)
Good afternoon Beachlover.

I'm going to ping our AIH specialist, Dany, who can look at your list of complaints and see what she thinks about auto immune hepatitis as a diagnosis for you,

I am caregiver for a Hep C patient, so this is not my area of expertise.

However, I do know that folks with autoimmune disorders often spend years chasing a diagnosis and are often sent off thinking the problems are all in their heads. Grrrr.

And I know that folks with one autoimmune problem often have others as well...so don't be surprised in the end to have more than one syndrome working hand and hand to make your life a nightmare at the moment.

Best to you, and welcome to the Forum. This is a very active site, I'm sure some folks will come along soon.

I f you search AIH you will see posts from some others. If you respond to their post, they will likely be looking out for your posts.

Mama Lama
Posted 9/11/2012 9:51 PM (GMT 0)
Has your Lyme disease been treated, and if so is it now gone?
Posted 9/11/2012 9:55 PM (GMT 0)
yeah...they have tried numerous times to send me to a shrink...I am sure they think I am a hypo...But why was I completely healthy and all of a sudden EVERYTHING went wrong in my body! 

All my bad blood work in the past year should tell them something but I am starting to think they want a wild goose chase..they make more money that way! 

Please keep me posted if you hear anything!  :-)

Posted 9/11/2012 9:58 PM (GMT 0)
Lyme is active and on heavy antibiotics...maybe that explains everything but do not want to blame everything on lyme...wanted to run this by the "experts"...the patients who live it!
Posted 9/12/2012 12:34 AM (GMT 0)
Beachlover89,

Lyme disease does couse a whole heck of a lot of problems.  I would deal with that one before worrying about adding more to your plate.  Have you checked the Lyme disease forum out?  I don't want to dismiss your symptoms, I've just read that Lyme has multisystem symptoms.

Have they run any autoimmune tests?  ANA is the first, generally.  If yes, what were your results?  Psoriatic arthritis causes a lot of pain too.  What tests did you have for that and is it a confirmed diagnosis?  Doctors don't like to risk you going untreated if they have diagnosed you for fear of malpractice suits.  I would doubt that they are deliberately trying to ignore your symptoms.  As MamaLama said, it could take years to have a true diagnosis for autoimmune disease.

✚ New Topic ✚ Reply