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Posted 2/3/2013 3:14 AM (GMT 0)
Barbara, standing in the place where the doctor says "no treatment" or "no transplant" .. I've been there... and so have others here... the shock is hard to explain ... it's like one is walking in a glass bubble... people's mouths move... and the world just twirls.. but listen to the forum... some have made it back from this point.. it is not over until it is over... and that's what I focused on with Mike... I felt that dread... hard to explain tug at my heart... but I put that frickin smile on and I told that man... that the doctor was nutz and we were gonna fight it through together... if nothing it helped him ... emotionally... I know you're dong this... one minute at a time.. one problem at a time.. don't overburden your thoughts... deep breaths.. and focus on what is at hand ... prayin for both of you... and that something can be found yet to help... there's always hope... always... chin up girl.. you'll make it.. hang in there...
Posted 2/3/2013 5:34 AM (GMT 0)
Hubby and I will soon be into the second year of living with this end stage disease...after Dr said he only had 6 months ....so...hang in there. One hurdle at a time...one day...somtimes one hour at a time.
Angie1953
Posted 2/3/2013 9:08 PM (GMT 0)
there ya go... one step at at a time.. Sandia
Posted 2/14/2013 5:18 AM (GMT 0)
Hi All,
A quick update, Dennis ahs been back in the hospital for the last 8 days. It started out for severe pain, persistant vomiting and the runs and has progressed to so many other things. Long story short he will probably be going home on hospice.

Tired
Posted 2/14/2013 5:25 AM (GMT 0)
Sorry to hear this, Barbara. Thanks for keeping us updated.

Hugs,
Connie
Posted 2/15/2013 12:26 AM (GMT 0)
Barbara... we are at the hospital, too. Thinking of you. Same here with pain, vomiting, fever (for us) and now just setting here hoping for some urine to pass through to show that kidneys are still working.
Angie1953
Posted 2/15/2013 3:03 AM (GMT 0)
prayin for both of you and your family... Sandia..
Posted 2/15/2013 3:17 AM (GMT 0)
kidneys work...good.
Angie1953
Posted 2/15/2013 3:22 AM (GMT 0)
Good news, Angie! :-)

Hugs,
Connie
Posted 2/15/2013 6:53 AM (GMT 0)
As of tonight we are still at the hospital, we have agreed to hospice care but it's on hold until they do a tips procedure. Dennis had his first paransentiesis (ms) they drained off about 2 liters. I'm going to be glad to get him home (I think). The doctors don't think he even has 6 months left. This is all happening so fast.
Angie I'm praying for you
Posted 2/15/2013 6:55 AM (GMT 0)
This must be so hard on you, Barbara. I hope the paracentesis has given Dennis a little relief.

Hugs,
Connie
Posted 2/15/2013 7:23 AM (GMT 0)
It did for a little while it appears he's filling right back up again. And yes this is so hard. We were supposed to grow old together
Posted 2/15/2013 1:12 PM (GMT 0)
 Barbara , You know by now that the 6 month thing isn't always the case and it's based on his current condition . I know he is likely miserable and hopefully they will stay on top of making him as comfortable as possible .

 A. Ziffle 

Posted 2/15/2013 2:29 PM (GMT 0)
In Feb of 2011 my hubby had his first paracentesis and Dr. didn't think he would live 6 months. Here we are two years later. Fortunately it was the only paracentesis he every had and he had lots of decent quality of life days in that 2 years.

I'm not saying it wasn't very very hard..but keep on top of the meds...he has to take them regularly, especially the lactalose. Good luck Barbara. This isn't for the faint of heart.

We are in the hospital for the first time in 2 years. (Although we did have 6 months at the nursing home.) But..we are now in hospice and no treatment, just comfort care. Best to you both.
Angie1953
Posted 2/21/2013 6:09 AM (GMT 0)
We've been home now for 5 days what a transition. The first couple of days were really hard. Things are quieting down. Hospice is doing a great job. We've had round the clock care since Saturday morning. That will stop tomorrow. They have been able to stablize his pain. We was put on a low dose of steroids the first two nights on that were rough. But today was a good day. He's doing so much better at home.

We are still trying to process this. I was reading on angie's thread and someone posted that even being prepared there is no preperation. I think I've been trying to hard to prepare I'm going to let that go and cherish today.

Love
Posted 2/21/2013 6:16 AM (GMT 0)
Yep, Barbara, Thought I was prepared.. Cherish the day you have before you...good idea. This disease is so unpredictable from person to person. Glad he's doing better at home.
Angie1953
Posted 2/21/2013 6:39 AM (GMT 0)
it was 4 1/2 months for Mike after the "6 month declaration"...

prayers are with you daily...

Sandia
Posted 3/16/2013 3:14 AM (GMT 0)
I want to let all of you know that Dennis went home to be with the Lord on March 11, 2013 at 5:47 AM. We'll be having a Celebration of his life tomorrow. I'm functioning right now in a nessassary numb for the time being. Bedtime is the worst.I'll write you more when I'm up to it.

Love
Posted 3/16/2013 3:27 AM (GMT 0)
So sad , Barbara. My thoughts are with you. Carol
Posted 3/16/2013 3:42 AM (GMT 0)
Sorry to hear of your loss.
Posted 3/16/2013 3:48 AM (GMT 0)
Barbara, I'm so sorry. Remember we are here for you.

Hugs,
Connie
Posted 3/16/2013 11:21 AM (GMT 0)
Barbara,
So sorry to read about Dennis. Thinking of you as you go through this next week. Been there myself last month. Can't tell you how sorry I am that you are going through this.

Lit a Plumeria candle for you and Dennis and will burn it over the whole weekend. Please keep posting. We are here for you.
Thinking of you this weekend.
Angie1953
Posted 3/19/2013 5:52 AM (GMT 0)
I just join. I'm so sorry to hear of your loss. God loves u.

Post Edited By Moderator (hep93) : 3/19/2013 4:02:39 PM (GMT-6)

Posted 3/19/2013 10:04 PM (GMT 0)
Jacobsmom, I'm sorry but I had to delete the bible verses. It violates one of our rules.

I see you have posted in the Heartburn forum. Do you or a loved one have liver disease?

Hugs,
Connie
Posted 3/21/2013 1:43 AM (GMT 0)
Barbara,

  How are you doing?  Thinking of you tonight.  Let us know how it's going.  Many of us have been there...or are there now...same as you.  I know everyone grieves differently. 

   I was surprised at the physical pain I felt, in my chest, in my body everywhere.  Just keep taking deep breaths, which I am practicing doing.  Wish you didn't have to go through this...(me either).  ((Hugs))

Angie1953

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