Hello im from Australia and have aih

Hello, im new and from Australia!
Hello, I was diagnosed with aih early November last year, and I have not been myself health wise for up to three years prior. I went to my local GP regularly complaining of feeling sick and my upper right side (my liver area) would blow outwards and cramp up to the point of not knowing what to do, the pain is terrible but they kept saying its just a bowel blockage, and I was literally going insane begging my doctor, then finally last year around mid September, i went to my doc feeling quite sick and lethargic again, and usually with a temperature. My doc gave me a written report to get me to my local hospital within two weeks, he suspected a stomach ulscer?? I went home feeling so down and medically neglected i thought it was all over and nobody in the medical profession cared! Two days later, I was on the mobile to my best mate when I dropped to the ground clutching my right upper side and dizzy as, so i rang my daughter who rushed me to my local hospital where I was put in a ward asap, on a drip blood tests n monitors all over me, I've never been so afraid for my life ever! The doctors were baffled as i lay in my hospital bed after five days of, not only me but my doctors not knowing why my body was shutting down? Day five i was taken for a liver biopsy, they took two samples and the next morning the liver docs came in and told me i had aih. I had never heard of it and there was so much to take in. It's now April 2014 and i have never felt so alone, yes, alone! Ever since I got aih ive had to battle through it all basically without knowing what to do if something related to aih were to happen, which it did on many occasions but noooo my local GP told me to talk to the liver doc and vice versa and other symptoms arising then sent home from an appointment with my liver doc who tells me to go down to 75mg with my imuran only to find when I get home that im already on 75mg wth?? I feel like im being treated like an idiot, i have concerns but they dont care cos im not allowed to speak to any of them, including my doc and I'm not the only one! Im sorry if ive gone on a bit but im a human being and deserve no different treatment than any other patients! Nice to meet you all and thank you.
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Hi BrokenArrow, sorry you have been through so much. I do not have info on aih, but this is a super support group. Some others should post soon who have some info which can be helpful.

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Hello Brokenarrow and welcome to HealingWell!

Sorry to hear you are having so much trouble.
What are your blood levels? How often do they have you come in for lab work?
Is there any way you can be transferred to another hepatologist?

If you're having issues with Imuran (I'm assuming since you are decreasing your Imuran dose), there are different immunosuppressants you can try.

I have to cut it short tonight as it's already Sunday :), will post more tomorrow. For starters, search for my older posts or for Ann's (AIHer).