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High viral load,Hep b

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Posted 5/9/2014 10:17 PM (GMT 0)
I am curious if any is or has exper. very high viral loads? As of 5-9-14 my is 989,400,000, what is the point if any before God forbid, liver cancer sets it,,Or the C word?I am currently being treated bye liver specialist,as well as my GP, i was started on a new med,,, viread,has any had good luk with that med,if so any side effects?
Posted 5/10/2014 1:07 AM (GMT 0)
Bikeguy, welcome to the forum. To my best memory, we don't have anyone on the Viread for Hep B. It is not a cure, but does decrease the viral load in most cases and that would certainly be good in cases like yours.

I have more questions too....are you considered eligible for transplant with such a high viral load? what are your kidney numbers: Billi and Createnine? Your INR? We could calculate your MELD score and see how bad that is.

HOw are you feeling? Are you being seen at a major medical center by a board certified hepatologist. I would hope so with such a high viral load.

Let us hear again from you with more information.

Best,

Mama Lama
Posted 5/10/2014 1:19 AM (GMT 0)
Hi mama,,as tp date feeling ok,out of energy alot, alot of nappys lol,but i did that on the onset too,,just had a recent blood done wensday,will get results monday 12th, so do not know current loads or anything, but that last load result was only 3 weeks ago, ast/alt is high,have been for while now, others you mentioned have been ok, i am being seen by board cert, GI/liver specialist, and My GP in my home town,Andy
Posted 5/10/2014 1:20 AM (GMT 0)
sorry new to this whats INR count?
Posted 5/10/2014 3:43 AM (GMT 0)
Liver Function Tests: PT and INR

Besides its functions in metabolism, the liver makes proteins that are essential to normal blood clotting. True liver function tests check the liver's ability to make these proteins. They include:

Prothrombin time (PT): A test of the time it takes for a blood sample to clot, under specific conditions in a lab. If low levels of clotting factors are present, the prothrombin time is longer.
International normalized ratio (INR): Not really a test, but a standardized way for all labs to report PT, so their results can be compared accurately with each other.
Posted 5/10/2014 5:57 AM (GMT 0)
Thank you,,for all the Info, i honestly dont know if i had all that,i have had many many blood test and screening at two different locations, when differnt screening were ordered,id hope that they use all thos screenings.
Posted 5/11/2014 2:51 AM (GMT 0)
      hey bikeguy,   we do have one member who is on a Tenofovir trial. tenofovir is generic for viread.  maybe he will see this.  you can look for a thread about hep b trial log.  i didnt know viral loads could be quantified that high.  i know in hep c tests, the upper limit of quantification is 69 million.  yikes!!!!

      viread is strong antiviral that is rxed for hiv also.  hopefully, your viral load will drop to a manageable level.  the drs can also add a 2nd antiviral to strenghthen the tx.

 best of luck in tx

barry

Posted 5/11/2014 6:38 PM (GMT 0)
Thank you.
Posted 5/12/2014 1:52 PM (GMT 0)
I am currently on my second week of a trial of Tenofovir TDF vs TAF (Until the end of the trial, I will never know which one I am treated with). As mentioned, Tenofovir is basically generic for Viread. For the most part, it is the same thing.

Make sure to keep an eye on your bon density as well as your kidney functions.

You also need more tests, other than viral load numbers, to determine if this is chronic or if this is recent. If it's recent, you need to give your body 6 months to clear and try to rest. Unfortunately, mine has turned into an active chronic infection.. which means that the virus slowly reproduces itself. My last number said 23 million for the load.

If you feel weak and tired, I'd suggest Vitamin D. Get a lot of it. Your body will not have enough due to this virus. I currently do 10,000iu a day. Doctors said to reduce it but I know I still need it, at least until I get outside more.

As for side effects, it ranges form person to person. Right now, I just had felt nauseous the past few days when waking up. Didn't have that the first week but started the second week. Also, you may get dizzy on this. I had to switch my times I take it because I did feel somewhat dizzy about 20 minutes after taking it. Now I take it before bed. It's important to take this with food.

Hope I am of help. I'd also suggest maybe seeing someone from the hepb.org site, if there is one in your area.

Posted 5/12/2014 8:23 PM (GMT 0)
yes,i have been seeing GP and liver specialist for litte over two years now,They have not check just the viral load,but everything else, yes it is chronic,ive known that from aug, of 2011,was taking baraclude for viral ,but resistant to it,thats why the viread!, i have just started the viread, 4 days ago,ive been getting the sytptoms you stated,, some of that come from the other issues i have,not related to the hep b. thanks for your input.
Posted 5/12/2014 8:47 PM (GMT 0)
Sorry to hear you were resistant to Barraclude. Ouch! I guess that means your viral load did not go down on that med at all, huh? Or did it and then did you stop and it spike back up? If so, could be that you had a Hepatitic flare up.

I had the same nauseous feelings back in November. They eventually went away with lots of food, so this might be the case here. When Hep B started for me, the dizziness started too. Doctors said it's not related but I know better.. I wasn't having this before.

Anyway, glad to see someone else on here taking Viread. Let me know how you make out. Keep an eye out for joint pain and weakness too. While not supposed to happen with Hep B patients, I've noticed it.. but been told it's not due to meds and due to virus and immune system trying to fight it now. Praying I clear this!

Also, if you are looking for more help by experienced Hep B people.. try these guys: http://www.medhelp.org/forums/Hepatitis-B/show/223

Posted 5/12/2014 9:09 PM (GMT 0)
I hope you clear it too,at least control it,,,Chronic hep b, is a lifer tho im have been told,, although we have a friend that had hep c, from being stuck by needle she was EMT,, she had Hep c since 80s or early 90s,she went in for her testing and it disappered gone,not in remission state,but gone from what i heard,,,,blow the doctors mind! Although i dont know any with Hep b,or if theres a chance of that happening with B,
Theres conflicking info,or i think so with the two docs i see, my GP orded a viral blood test,and thats the one that read 989 million and 400,000, that was 3 weeks ago,, but went in this morning to hospital at the liver doc to get results of blood test from week ago,,,,and it went down some,i find that weird, i stopped as told to by my GP to stop taking the baraclude, and to just take the viread, I have not got and taken viread at the time of the blood testm that shwed the reduced viral load!Ive been told a few times your viral goes up and down sometimes,even week to week at times,however even the reduced rate of the viral load ,if correct,,is still far above 100,000,000.
Posted 5/12/2014 10:33 PM (GMT 0)
Thanks! Yeah, kind of crazy. I can't worry about how I get this but I suspect that it came from dirty dentist equipment -- especially after I was told by the same dentist that he had 3 patients with Hep B. Lovely!

That being said, not all chronic cases are a lifetime... and not all people remain on the drugs for a life time here. I believe Viread, has had a small cure rate. It's all a matter of how the body responds to the treatment once undetectable. My GI doctor also told me that viral loads will fluctuate. Until now, my viral loads were actually constantly increasing. The last result was the first result I saw it go DOWN in 9 months.

And right now, that is my main goal, to get undetectable. I'm curious to see if some of my issues I've been dealing with go away as I go undetectable. By the way, what Genotype are you? Did you lose any weight with Hep B?

Post Edited (luckyman316) : 5/12/2014 6:18:21 PM (GMT-6)

Posted 5/13/2014 12:22 AM (GMT 0)
I have gained a few pounds,sorry but what Genotype?
Posted 5/13/2014 12:42 AM (GMT 0)
Interesting. I went the opposite way and lost 25lbs when it started.. probably because I had no appetite for 2 months. I've gained 10lbs of that back.

Are you asking what Genotype I am? If so, Genotype D. Or are you asking what Genotype is? If this is the case.. then read this:

http://www.hepb.org/expforum/media-player.aspx?speakerid=drKeefe&topicid=genotypes&language=English&mediaType=text&topicList=Questions

Knowing your Genotype will help the doctor's treat you the proper way. Hopefully, they have all that info in their labs.

FYI - Genotype C leans more towards liver cancer.
Posted 5/13/2014 1:11 AM (GMT 0)
thanks
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