Hi,
I'm just reeling, lost the love of my life on December 14th, 2014. On Nov. 28th his eyes looked jauniced so went to Dr. Was sent to emerge and was immediately admitted . Fifteen days later he passed away.
He didn't have any other symptoms worked that Friday never complained about
pain or anything. We had just booked vacation for January 2015.
After first ultrasound they thought it was a gallstone blocking passage to liver, easy fix, take gallbladder out. Than the surgeon took a look at the ultrasound and ruled that out. So than all the questions about
where we had vacationed, how much he drinks, if he used intervenes drugs, who he had sex with. None of these raised any red flags. Did all kinds of blood work. Some had to be sent out of hospital to be tested.
He would get up every morning shower dress in regular clothes and we go out walking around hospital every day, anywhere from 3 to 5 times a day for the first week.
All they where giving him was his normal vitamins took him off his cholesterol pill.The following Friday results that were sent away, started to come back they ruled out all the viral heps. and mono. Now saying they didn't think it was viral.
That afternoon came in and said he tested positive for AIH which we had never heard of. They started him on steroids that night, and that was when he started the downward spiral. The liver enzymes started to go down. The bilirubin was still increasing not as fast but still climbing.
He was allowed out for 5 hours Saturday, but by time I got him home all he wanted to do was lie down. At least in his own home. Sunday we were suppose to meet his golf foursome and their wives. He really wanted to go so we did, but we were only there for 45 minutes before we had to go. He was definitely slowing down, only couple short walks Monday, Tuesday. Wednesday just outside the front door to breath fresh air. Toxin building up, no energy and slept a lot now and bilirubin still climbing. Still no pain, upset stomach they would ask if wanted something for pain and he would say no he wasn't in pain. Friday and Saturday just out of bed to use Washroom. When I left Sat. night he was sleeping and still no pain meds.
When I arrived Sunday morning could tell he had not had good night. Asked him if been bad night he shook his head and told me to sit down, he took my hands and said to me that every part of his body was in so much pain, pain like he never felt before.
They told him he had a blood clot in his lung. He squeezed my hands and looked at me and said honey I have to go. He had already told his Drs. to stop everything and no more procedures, just keep him comfortable. He passed away 8 hours later.
I'm in bits in our 32 years this man had never had anything more than a cold or flu.
No other symptoms but the jaunices and than dead in 15 days. I just don't understand. Guess I just need to connect with others that have been through this.
I wouldn't wanted him to suffer like he did that last day, but I would like answers and guess that not going to happen. Thanks for this outlet.
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Added title so others could more easily find this AIH post.
Post Edited By Moderator (MamaLama) : 1/2/2015 8:55:33 AM (GMT-7)