Hello everybody. I hope you are all doing well. Posting in the blind, because I haven’t talked in the forum for a long time; although I do go back and read through these old threads periodically when I need to be humbled with gratitude. I guess facebook groups have become the norm now, but I continue to post here because this place became my primary log and journal through the entire ordeal. I encourage anybody going through this to keep a good journal somewhere.
I never wanted to become an advocate or advice giver on this subject matter or forum, but thanks to the support in this forum I have had the opportunity to pay it forward in numerous other ways commesurate with my native skillset.
The last several years have been awesome; I absolutely could not ask for a better family, career, friends or lifestyle than the one I’ve had the last several years.
My wife almost made it 7 years with this transplant, and now again the enzyme #’s suddenly started climbing into the low 100’s. I guess the Prograf quit working. Her Hep requested a biopsy. No damage done, but that darn AIH appears to be rearing its ugly head again.
Hep prescribed 30mg of Satan’s tic-tacs (pred) and aza. She starts that course tmrw. From my research, this seems to be an adequate and moderate starting point.
So now I guess we wait and see how bad the pred side effects are and hopefully confirm lower enzyme #’s.
The big bummer about
all of this is we had a vacation planned back to Korea on Oct. 2nd. This would have been my wife & daughters first time back since my wife first got sick, and my daughter’s chance to meet her extended Korean family. My daughter (now 7) is SO excited about
it. What an amazing little person she has grown into.
We are crossing our fingers that we can still go; that the enzymes go back down and the pred side effects wont be too bad. My employer has been very supportive as well.
Really not looking for any answers as this is another drill that it feels like we’ve been through a million times already. Only time will tell. I just wanted to throw down my thoughts in the same place that they all started. This one small corner of the internet was the one-stop shop for my cheering section, advice, and sanity during one of the toughest and darkest times in my life and I would not have perservered if it weren’t for the wonderful and caring people in here.
Post Edited (Brian74) : 9/21/2019 11:26:11 PM (GMT-6)