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Anyone w/Hep C and unexplainable anger/crazy spells?

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Posted 6/13/2006 11:17 PM (GMT 0)
Hello.  I myself am a Crohnie.  My dad however has HepC and has not, and is not planning to get any treatment.  He had a physical 6yr ago after losing his brother to heart disease. Found out Dad has Hep C. And strangly enough my dad said "to H#LL" w/treating it.  Now days he is very moody, and just isn't himself.  Says and does crazy things that just don't make sense.  I was wondering if anyone can relate to this.  Is it just him, or can it be the toxins from the liver??  Please let me know if you have anything to say.  Thank you.
Posted 6/14/2006 1:23 AM (GMT 0)

My parents and others who knew me before the Hepatitis said I've changed alot.  I definitely had some severe mood swings, from the worst anxiety to horrible depression, with no happiness or peace in between.  I raved, had amnesia, talked to myself to try to keep myself from flying out the window from the pain I was in, was paranoid and argumentative, and I looked pretty doggone nuts.  I received treatment, but, in my case, the mental symptoms lingered until recently.  I'm now finding out that I have diabetes from the Hep C, which can cause some pretty bad mood problems (don't underestimate how bad a person can feel with diabetes that is untreated) and I have some hypertrophy in my brain, peripheral neuropathy, and was having problems with my eyes, blood pressure problems.  I also have an autoimmune disease caused by the hepatitis, which made me really go nuts, especially as I developed really bad arthritis and had to have surgeries on my neck and have constant pain.  People can only stand so much pain and suffering and my autoimmune problem made me want to rip my guts out and it was everything I could do to hold it together for myself and my family.  And not getting tx for hep could be really scary (getting tx is scary). 

I had hospitalizations and a slew of medications but, in my case, treating the pain and illnesses, especially the diabetes, is really helping me a lot and now that life is not unbearable, I'm very happy to live it out.  I hope you can talk to your dad and get him to seek some help, it must be hard for you.  I hope you can talk to him and find out how he feels and help him somehow.  Hepatitis can be a devastating disease (my acute infection lasted a mere 18 months and you can see the long lasting harm-- I'm 11 years out of tx and still having problems though I've been steadily negative for virus).  I hope you are not angry with your dad, this is hard disease to cope with and treatment can be very tough and is not a 100% cure.  I know my sister sometimes bypasses me and talks to my doctor directly, when need be, to protect me and my interests.  I'm not sure if I answered your question.  Sorry I couldn't help more.

Posted 6/14/2006 2:16 AM (GMT 0)
Thank you.  It helps.  I know the feeling of pain w/ my own disease and how it makes me feel like you said.  I just try and avoid my dad when I know he's flipped out.  I am 32, been a daddy's girl from day one and to know that he is so sick and not treating it makes me mad, sad all so confused.  Best of luck to you.  Hope things stay good for you.  This site sure must help lots of people.  Know talking about it does wonders.  Take care.
Posted 6/14/2006 9:50 PM (GMT 0)
brooks,
just a suggestion,sometimes its very hard for a parent to listen to their children,no matter what age,,when it comes to health issues,maybe your dad has a good friend that might talk to him? hep can greatly affect moods,,my hubby is hep b and is VERY hard to deal with,,,not sure from one moment to the next what kind of mood he will be in..take care of yourself and good luck with your dad
Posted 6/14/2006 10:16 PM (GMT 0)
Brook, when I was first diagnosed with chronic, active hep C, I went through all the stages of grief, including disbelief, anger and depression.  Fortunately, I went through all the emotions rather quickly...in about a month.  Once I was able to accept that I had the disease, I was ready to seek treatment.  Unfortunately, interferon (which is all they had in '93) made my white cell count plummet.  The doctor cut my dose in half and it still didn't change the WBC...plus my liver enzymes were not showing any improvement.  I went through 2 rounds of this, but neither lasted more than 8 weeks.  I could have participated in a research med (which I believe was the combo), but decided I didn't want to--I'd had enough.  Except for fatigue, I was feeling fine. 

Twelve years later, with no further treatment, I was diagnosed with liver cancer--a huge tumor that had metastasized to the inferior vena cava.  I was not considered a surgical candidate.  However, over some months, I went through numerous tests and scans at Mayo Clinic.  Today I had a brand-new treatment called TheraSphere.  It's a form of radiation in tiny glass beads, that is injected into the tumor itself, via the hepatic artery.  Two months ago, I had chemoembolization which killed 90% of the tumor.  However, even if the treatment I had today kills the other 10%, I will still need surgery to remove the entire right lobe of my liver.  I will also need treatment for hep C, as it is still in my blood stream.  At the same time, I am faced with needing a 2nd revision on my left artificial hip.  I've been in a brace and on crutches since last Sept.  I really don't know which surgery to have first.

Sorry to ramble, but my point is that with no treatment, your dad faces liver cancer or cirrhosis down the road.  Better to go through it now than have to face a life and death situation.  Please let your dad know that with untreated hep C, he is at high risk for liver cancer, cirrhosis, and/or liver failure.

I know that Crohn's is a life-changing disease and difficult to live with.  You have to take care of yourself.  Therefore, lay out the facts to your dad and encourage him to get treatment...then let it go.  Nagging or cajoling him will not work at all.

Hugs,

Connie

 

Posted 7/12/2006 11:07 PM (GMT 0)
Hello there everyone,

        In reply to your question. I have Auto Immune Hep.

and I was born with Epilepsy. And I have noticed A change in

my moods, sometimes I get angry, (for no reason), and sometimes I just burst out crying too. I can't explain it I've

never been like that b4. But i just learned over time, to take

myself out of the room, and get myself back under control.

My Dr. told me to try to control it myself if possible because

I cannot have any medications at this point. One advantage

to living alone is I don't have to worry about hurting others

feelings, or upsetting them. I noticed lately that my emotions

are tied to certain situations also, but I learned to recognize

them and get it under control. My biggest trouble right now

are siezures, as I can't take siezure meds anymore. I look at

the fact I know that I am not a bad person, just bad disease.

Good luck and i'm praying for all of us...... yeah

...........................................lil_miss Kathy

Posted 7/14/2006 10:43 AM (GMT 0)
I would just like to add that I have what they term "medically acquired Hep C" and I too suffer from terrible moods. Although I am also going through menopause (not recommended) and I have had to deal with childhood issues and other such matters too. It is very hard when it is the body that is triggering off these episodes. Particularly when the immune system is down it tends to be worse or if the person has the onset of other sickness. I guess meditation and affirmations have worked in the past for me but that is not everyones thing. All I can suggest for those around them is that they love them at arms length until the moment passes. Like it has been said, they are not bad but sick. Trish love the motto I think that will be me too.

Fi
Posted 7/17/2006 12:07 PM (GMT 0)
Hi everyone,
Yes, I've had terrible mood swings and depression for a long time. Like at least 10 or more years....With a hard headed boyfriend and 2 teens it hasn't helped. I have 3 more shots for my hep c and and you know deep down inside I feel better. Once I get off these meds I should feel like wonder woman!!!!! lol okay, maybe not that good....but I can't wait....
hugss to all
eileen
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