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Posted 6/10/2008 2:49 PM (GMT 0)
Well I finally have the Liver biopsy behind me. As most of you told me,it wasnt that bad.

 I have to say that at first I guess they didnt give me enough of the Med. (Versed) spelling?

Anyway I felt them going in and I flinched. I heard the DR. tell the Nurse give her some more and then I felt nothing else.

 The worst part way laying flat of my back for four hours after it way over and the worrying

before hand. Now the week wait to see what they have to say.

 Just thought I would share with anyone facing a liver biopsy so that maybe they would feel a little better...

                                                   God Speed,

                                                    Soonerfan1

Posted 6/11/2008 3:26 AM (GMT 0)

Soonerfan, thanks for posting!  I'm glad to hear it wasn't bad for you.  That's great that they gave you Versed.  My sadist of a doctor wouldn't give me a thing.  mad   Be sure to let us know of your results.

Hugs,

Connie

Posted 6/11/2008 4:42 AM (GMT 0)
Hello Soonerfan1,

Thanks for sharing. I had a bad experience with one almost 30 years ago. Glad that they have improved them. And do keep us posted as to the results.

Lot's of thoughts and prayers for good results..........
Posted 6/11/2008 5:46 AM (GMT 0)
Hi soonerfan1,

I am glad to hear that you did the biopsy and that it wasn't a bad experience. As Pink Grandma said, please keep us posted on the results. I haven't had one yet but anticipate that I will when my MELD score gets a bit higher.

We're all hoping and praying that things will go well for you.

Be well, John
Posted 6/11/2008 10:59 AM (GMT 0)
Soonerfan

Glad that the biopsy went well and that it wasn't painful. Your right that the laying around for hours afterwards is the worst part. I hope that the results are as positive as this experience was for you. Keep us posted.

Lucy
Posted 6/14/2008 2:25 PM (GMT 0)
Hi Sooner.

Are you wiling to share your biopsy results? How are you feeling now?

Best, Cary
Posted 6/16/2008 3:40 PM (GMT 0)
Hi Cary,

I will share my results when I get them. Seems like it might take an act of congress to get them.

I am not scheduled to go back to Hep DR. until August. I was told I could request a copy by calling a 1-800 #. I called that this morning and it was a recording that said I would have to go online and print some sort of release form off then mail or fax it to them..lol  I just cracks me up to think that they would think ANYONE else might be wanting a copy of my biopsy results.

 It seems like they could have had my sign the paper that day when I was there for the test.

Seems EVERYTHING has to have some red tape. Like we dont have enough to worry about!

  I am feeling fine. I had a few little aches in the liver region for a few days but for the most part thats gone.  I am just praying for good results

 I tell ya this is not a cheap disease to have. I have good insurance but the expense it about to break us and I have not even been real sick like some of the people on here. I never knew that labs could cost $4500.00 for 1 visit. I am sure that when I see the bill for the biopsy I will be even more surprised. Just thankful for the Insurance and pray I can keep working as I am the holder of the policy..Thats something else to worry about....

 I will stop babbling just wanted to get a few things off my chest.

 You all take care and hope all is doing well!!!

                                                                      God Bless,

                                                                      Soonerfan

Posted 6/16/2008 7:55 PM (GMT 0)
Hi again,

I called and got to talk to the nurse and I think I got good news. I have no cirrosis or Fibrosis

and mild inflamation. The nurse said the Dr. had looked over the report and said I could come back earlier then August to start treatment. Am I looking at this wrong? I feel like if I have had this since I was 17 yrs. old and am now 43. I dont know I am just not thinking that the treatments would be a good idea. I have to work because of the Insurance. If the treatments made me sick and I couldnt work, That would not be good.

 I just told the nurse I would have to think about it. I still dont know what type I have. HAve only seen the Hep DR. once and havent seen him since the blood work.

 What do you all think? Treatment or not?  It's so scary and I am not a good decison maker anyway.

 Can you guys give me some input?                   Thank,  soonerfan

Posted 6/16/2008 9:49 PM (GMT 0)
Soonerfan, I would go ahead and try to get in to see the hepatologist to discuss the results and have your questions answered.  Have you tested positive for Hep C?  From what you say, it sounds like you don't know what type of hepatitis you have, but I'm guessing either C or the immune disorder type.  Did the biopsy show that it is active?  It's good news that there was no fibrosis or cirrhosis!  However, IMO, there are too many unanswered questions for you to be able to make an educated decision about treatment--or for us to weigh in on it.

Hugs,

Connie


Posted 6/16/2008 11:18 PM (GMT 0)
Hi Connie,

Yes I did test positive for Hep C back in Dec. last year. What I dont know is the geno type or what ever its called.             Soonerfan

Posted 6/16/2008 11:20 PM (GMT 0)
Sorry Connie, I forgot to tell you that yes it is active....
Posted 6/17/2008 5:25 AM (GMT 0)
Hi soonersfan1,

I am not an expert and wouldn't presume to advise you on your situation but can tell you my feelings if it were me.

I've had Hep C for 30 years, long before they had treatments. Due to the slow damage the Hep C did to my liver, I now have cirrhosis, and an enlarged spleen that causes a reduction in platelets in my blood, plus other symptoms of 'late stage liver disease'. Because the treatment would dangerously cut my already low platelet count in half, treatment is not an option until I get a liver transplant. Then I will start the treatment.

So for me, if I had insurance to cover the cost and I were in a position to treat the Hep C before it seriously damaged my liver and before the spleen and platelets were affected, I would ask a couple of questions. First I would ask previously treated persons how they fared through the process. Then I would ask myself whether I would be willing to grit my way through the side effects.

In my case, I have heard from some that while torturous, they were able to maintain a level of normalcy and work. Other have said that the side effects were too much for them and they discontinued the treatment. If I could have treatment, I would do it -- but then I was built for pain. LOL (it just seems like it these days)

I'm sorry that you must deal with this. I wish you well in your decision.

Be well John
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