sarcoidosis

Hi, everyone.  I have not been around for a while, I have been doing good.  But now I have a new diagnosis!  Some people collect, say, Hummel figurines, or Redsox pennants, but I collect diseases!!  I now have three--crohn's, autoimmune hepatitis, and sarcoidosis.  It was diagnosed after a biopsy of some non-painful lumps in my legs and arms.  I haven't seen a specialist or anything, so I don't know how else my body is affected.   Does anyone out there have Sarcoidosis?  Any advice/help for me?

Hi, connie

The doctor was a plastic surgeon. I had two biopsies. The dermatologist didn't want to do it---they were "too large and too deep". Thanks for the definition. I have researched it some. The problem is that the course is so varied that I don't know what my particular prognosis is without more tests and stuff. I have an appointment with my primary care on Sept 26 for follow-up. How are you doing????

Hi Pix

So glad to hear from you. I am so sorry though that you are having to deal with another disease, like the crohn's and AIH aren't enough. Please let us know how you appointment on the 26th goes. My prayers and thoughts continue to be with you.

Lucy

Thanks, Connie, Lucy and Pink Grandma!

I do appreciate any prayers and thoughts.  I think that a loving intention does produce actual  healing energy.

  I do wonder if I am doing the wrong thing in my life somehow, and if the illnesses are a result of something bad that I am thinking or feeling.  My lifestyle is good--diet, exercise and sleep, and my daily life really isn't very time-stressed.  I think I am fairly mentally healthy--no symptoms of anything, and no drugs/alcohol.  I suppose this is the long version of "Why me?" I have read books like "'the Secret" and now I feel that I am to blame for "creating" my sickness.  You guys are veterans, what do you think about all this?

Pix

Ah, yes, the mind-body connection.  No doubt a person can make himself sick by constantly thinking negative thoughts and dwelling on their ailments, etc.  However, I agree with Butterfly.  You are doing all the right things.  You just happen to have developed sarcoidosis.  "Unknown etiology" means they don't know what causes it.  So if the great medical minds don't know, there's no reason you should know.  "Stuff happens," that's all. 

Postive energy being directed towards you, along with hugs.

Connie

Pix

I certainly believe that there are mental conditions that can affect our bodies physically, such as stress, anxiety and depression, however I do not believe that you are the cause of any of your illnesses. Immune disorders are somehow interrelated and frrom what I have read it is "normal" (if there really is such a thing) to have more than one of these disorders at a time. I know it is so easy to get caught up in the "why me syndrome". Sometimes there is really no answer bad things happen even to good people even when we are doing all the right things. Please keep your chin up. Sending you postive energy and prayers.

Lucy