I just found this forum today, wished I had seen it earlier.
My wife is suffering from end stage liver disease (primary biliary cirrhosis) as a result of autoimmune hepatitis. Her liver enzyme levels have been high for several years, but she only began showing symptoms of liver failure this past December. She has been hospitalized three times since February, each time admitted via the ER for high ammonia levels, and/or aseties. Currently she is taking a total of 22 prescriptions each day, and am told will be placed on the liver transplant list at Methodist Hospital Liver Institute in Dallas, Tx the first week of August, as she has recently successfully completed all of their screening procedures. Her current MELD score is 13, and she is still able to work, but I don't know for how much longer, as she has lost over 50 lbs this past year, and seems to grow weaker each month. We have her ammonia levels under control with 60 mg of lactulose twice daily, and her fluid retention is also under control with other medications. I worry though about her continued weight loss, as she has little or no appetite. Due to the fact that her MELD score has remained at a constant 13 for the past 7 months, I am told she will not be considered for a transplant until it gets into the 20's. I just wanted to post in hopes of communicating with someone else going through this ordeal with a loved one, as I am her primary care-giver. 