End Stage Liver Disease

How many people on this site have ESLD and/or Transplant?







(Corrected spelling in title)

Post Edited By Moderator (hep93) : 2/17/2012 9:54:34 AM (GMT-7)

Hi Mr. B,
My partner had ESLD after 40 years with HepC.

His ESLD almost got him in the fall of 2010. He was an alcoholic who had refused to quit.

With AA and a lot of will power, he got sober, went through the transplant evaluation, and got his new liver May 2011.

9 months post TX he is doing very well.....except he still has Hep C. Hopefully it takes another 40 years to "get him" again.

There are many of us on here...patients with all kinds of liver disease. The path of the disease is rough.

How are you? Would you like to tell us your story? I posted ours earlier to day, check it out.

Carol aka Mama Lama

My hubby has cirrhosis due to alcohol. Except for one slip 50 weeks into sobriety, he has been alcohol free since his dx, Sept 2010. His liver is not decompensated. His labs have settled down, and are close to normal, but not quite. Symptoms of liver disease (fatigue, jaundice, nausea, sleep cycle mixed up, etc.) that he experienced before his dx have GONE AWAY! This is due to changing diet, following doctors orders, but most importantly NO ALCOHOL! He (and we) have returned to pretty much a normal life...we just don't drink anymore...we are eating better...and trying our best to live a healthy life style. We take it one day at a time and thank God every day for our blessings of improved health.

Emma

Thanks for the feedback. My name is Brian. I was diagnosed in July of 2010 with acites and cirrhosis. I was 52. My PC doc sent me to a GI and he told me that I probably had scaring and varicies by doing a manual check of my liver...he then scoped me did Upper GI. That GI doc didn't call it cirrhosis but I;m sure it was. Sent me to cardiologist to check abnormal heart beat and I was Dx'd with atrial fribrilation. Cardiologist put me on propranolol for suspected portal hypertension. That caused my blood sugar to drop and I was diagnosed with diabetes. Also have hearing loss and vertigo that may be Menieres related. I also have sleep anea....so maybe I'll see you on another board.

Mr. B,

I was diagnosed with idiopathic ( unknown cause) hepatitis in 1990 when I came down with Lyme disease. My liver enzymes were elevated so I had a biopsy which showed some cirrhosis. They think I have had this hepatitis most of my life.

I was under the care of a hep doctor and had regular scans and took prednisone to keep my enzymes near normal. I developed some edema in my feet and calves, especially in the summer. In 2008, I was hospitalized with an ammonia level of over 400 and was referred to the transplant center.

Since then, I have mri's every 3months to monitor two lesions on my liver, endoscopies to monitor my small varicose in my esophagus , and take all the standard cirrhosis meds. Last year, I had the tips procedure done because I had an old clot in my portal vein which was compromising my portal vein. Ironically, it has made my HE improve not worsen.

I am currently listed. My meld fluctuated last year between 13-18. I need to be in the 20's to qualify for an immediate transplant as I am blood type B. I have been disabled from work since 2008 due to my HE and severe fatigue.

Oh, and I had my 50th birthday last July.

I also suffer from kidney stones, have gallstones, and have a pancreatic cyst they are watching.

Susie